‘Doctor, I’m not here to quit drugs!’ Hidden goals that undermine shared decision-making during access to services by young people who use substances

Rocelli, Michele; Sdrubolini, Francesco; Romania, Vincenzo; Faccio, Elena

doi:10.1080/16066359.2023.2210840

Cited by 2 publications

(2 citation statements)

References 57 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The choice to mix the roles of family member and user may have conditioned the themes expressed and the freedom of speech, however, we believe that the two facilitators of the focus groups, being a family member and a former user, paid great attention to the space of expression of the members of their role category. In future research, built from the beginning in collaboration between EbEs and researchers, we will pay more attention to this issue 59–62 …”

Section: Limitationsmentioning

confidence: 99%

‘ALL ABOUT MY IDEAL MENTAL HEALTH SERVICE’: Users, family members and experts by experience discussing a co‐designed service

Rocelli,

Aquili,

Giovanazzi

et al. 2024

Health Expectations

Self Cite

View full text Add to dashboard Cite

IntroductionMany studies have investigated patients' understandings of how to optimise mental health services. However, only a few studies in the Italian context have involved experts by experience (EbEs), who can be ex‐users, family members of ex‐users or current service collaborators. Their role is crucial in implementing collaborative service quality assessment projects.MethodThe study investigated the experience of 35 EbEs,  users, and family members who carried out a 9‐month fortnightly project aimed at imagining an ‘ideal service’. The facilitators of the discussion groups (two EbEs) were interviewed; written reports of each meeting were produced with relevant comments, notes and specific suggestions; and content analysis was applied.ResultsThe most important result concerns the effectiveness of the project management method and group leadership carried out by the two EbEs. This approach allowed for complete autonomy of the work, without professional gaze or power imbalance. Also, the ideas and specific contents focused on by the two groups offer strategies to facilitate users' entry and reception in health care centres, to reduce the stigma of mental illness, to improve the centres' physical environment, to improve organisational aspects, to keep family members actively involved and to network mental health services with other territorial services.ConclusionsEbEs have proven to be key figures in ensuring equity of role in the service co‐design process. This also concerns a context, the Italian one, where their role has not yet been recognised and legalised. Their contribution and ideas to improve services could be fundamental not only in mental health centres, but also in other health facilities, and could concern the entire service delivery process rather than being limited to quality assurance, according to a virtuous circle based on active participation and transformation of the role of users.Patient or Public ContributionThis work resulted from close collaboration between the two EbEs who conducted the groups, users and family members, the university, and the psychiatrist in charge of the service. All of them contributed to the research. The EbEs, researchers and psychiatrist participated in the interpretation of the data and are the co‐authors of this paper.

show abstract

Section: Limitationsmentioning

confidence: 99%

‘ALL ABOUT MY IDEAL MENTAL HEALTH SERVICE’: Users, family members and experts by experience discussing a co‐designed service

Rocelli,

Aquili,

Giovanazzi

et al. 2024

Health Expectations

Self Cite

View full text Add to dashboard Cite

show abstract

“…According to Fitzsimmons-Craft et al [ 10 ], only 20% of therapists have asked patients with ED about the perceived impact of social media on their body image experiences. Understanding the meanings and ways in which girls use SNSs is essential for designing educational and rehabilitation pathways that help build self- and body perception based on criteria different from those that contributed to the development of the ED [ 11 , 12 ].…”

Section: Introductionmentioning

confidence: 99%

Issues Related to the Use of Visual Social Networks and Perceived Usefulness of Social Media Literacy During the Recovery Phase: Qualitative Research Among Girls With Eating Disorders

Faccio,

Reggiani,

Rocelli

et al. 2024

J Med Internet Res

Self Cite

View full text Add to dashboard Cite

Background:The patient-centred approach has been identified as essential for quality health care and patient safety. Knowledge of the service user's view of the maintenance factors involved in the health problem is necessary for successful treatment, particularly with patients who tend not to recognise their condition as clinically relevant or worrying.Objective: This research examines how young women in recovery from eating disorders (EDs) perceive the health risks and potentialities associated with visual social networks (i.e. Instagram and Snapchat), which the literature has found to be detrimental for online body comparisons. Although the heavy use of visual social media has been associated with body dissatisfaction and EDs, too little is known about the meanings that users associate with posts of or searches for edited photos and the strategies they use to protect themselves from digital risks during treatment.Methods: Thirty semi-structured interviews were conducted with adolescent girls aged 14-17 at the end of their treatment for EDs. Content analysis was applied.Results: Seven main themes emerged: active or passive role in social network (SN) use, the impact of online interactions on a person's relationship with their body, investment in appearing photographic effects on the self, perceived risks, self-protection strategies such as critical thinking, avoidance of sensitive content and increased SN control. There was a strong awareness of the JMIR Preprints

show abstract

‘Doctor, I’m not here to quit drugs!’ Hidden goals that undermine shared decision-making during access to services by young people who use substances

Cited by 2 publications

References 57 publications

‘ALL ABOUT MY IDEAL MENTAL HEALTH SERVICE’: Users, family members and experts by experience discussing a co‐designed service

‘ALL ABOUT MY IDEAL MENTAL HEALTH SERVICE’: Users, family members and experts by experience discussing a co‐designed service

Issues Related to the Use of Visual Social Networks and Perceived Usefulness of Social Media Literacy During the Recovery Phase: Qualitative Research Among Girls With Eating Disorders

Contact Info

Product

Resources

About