Do adolescents with chronic illness want to make decisions about their treatment

Britto, Maria T.; Cote, Max P.; HORNING, R; Slap, Gail B.

doi:10.1016/j.jadohealth.2003.11.079

Cited by 3 publications

(3 citation statements)

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“…Adolescents living with chronic illness value clear and straightforward technical information (Britto et al, 2007;Britto, Cote, Horning, & Slap, 2004;. Less than 20% of adolescents "preferred patient led decision making;" the majority do not want to direct decision making authority or to make the final decision (Britto et al, 2004;. Knopf and colleagues (2008) suggest this may be due to their recognition of how complex and life-threatening the decisions really are.…”

Section: Discussionmentioning

confidence: 99%

3 Dimensions of Treatment Decision Making in Adolescents and Young Adults With Cancer

et al. 2020

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This dissertation is dedicated to my family, who provided me unconditional support and love during this journey through my doctoral education: my children, David, Laura and John and my husband, Paul. v Acknowledgements There are so many people to whom I am very grateful for their assistance, support and mentoring during my doctoral education. I am especially thankful to the following individuals: Dr. Roberta Rehm, my faculty advisor and dissertation chair, whose wisdom and gentle guidance has been invaluable. She was constantly encouraging and teaching me. She spent immeasurable time sharing her knowledge and teaching me about qualitative research, family research and its application to pediatric nursing. She was instrumental in my successful grant applications to the National Institutes of Health/National Institute of Nursing Research and the American Cancer Society. I am humbled to have been her student over the past few years and aspire to be like her in the future. Dr. Linda Franck, chair of my qualifying exam, challenged me to look at my research through a broader lens. Her vast research experience set the bar high, which I strove to reach, and hope I did. She provided incredible mentorship and increased my understanding of the research process. Dr. Bonnie Halpern-Felsher, whose enthusiasm and knowledge of AYAs was critical for my dissertation. Thank you for sharing not only your expertise about AYAs, but also allowing me to participate in your lab meetings and learning from your wonderful staff. Dr. Robert Goldsby, whose long-time experience in pediatric oncology and especially in the area of AYAs helped to guide me. He kept the study grounded in reality, with a practical focus on research and the care of these patients. I was fortunate to learn so much from each of my committee members. Thank you for your time, expertise and patience. vi To the many members of the oncology team who enthusiastically supported this work in so many ways to move the science forward: Pam Simon, NP, Christie Chaudry, NP, Dr. Sheri Spunt MD, and the staff at both Lucile Packard Children's Hospital Stanford and Benioff Children's Hospital. I could not have done this work without your warm welcome and enthusiasm for me to conduct this research at your respective institutions. I felt supported and encouraged by your advice, words of encouragement, and assistance with the recruitment of participants. Finally, to the AYAs who participated in this study, it is with deep gratitude that I thank you for sharing your stories. You have taught me so much and I will never forget you. I would like to thank my three children: David, Laura and John, who have grown up to be such amazing human beings during this time and for whom I hope to have been a role model. Thank you for the many sacrifices you made for me. To my incredible, encouraging husband Paul, who has been my love, my support and my inspiration. Because of you, this dissertation has been possible. Lastly, to my parents, Kathleen and Robert, who were always so proud of my accomplishmen...

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Section: Discussionmentioning

confidence: 99%

3 Dimensions of Treatment Decision Making in Adolescents and Young Adults With Cancer

et al. 2020

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“…Adolescents living with chronic illness value clear and straightforward technical information (Britto, Cote, Horning, & Slap, 2004;Britto et al, 2007;Dunsmore & Quine, 1996;Knopf et al, 2008). Less than 20% of adolescents preferred patient-led decision making; the majority do not want to direct decision-making authority or make the final decision (Britto et al, 2004;Knopf et al, 2008). Knopf et al (2008) suggested this may be because of their recognition of how complex and life-threatening the decisions really are.…”

Section: Discussionmentioning

confidence: 99%

Treatment Decision-Making Involvement in Adolescents and Young Adults With Cancer

Pyke‐Grimm

Franck

Kelly

et al. 2018

ONF

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“…The practical tips for assessing capacity were developed from a literature review [5][6][7][8][9][10] and a survey of current assessment tools. 11 They were made specific to the assessment and treatment of young patients.…”

Section: Development Of the Guidementioning

confidence: 99%

A Guide for Health Care Practitioners in the Assessment of Young People’s Capacity to Consent to Treatment

Geist

Opler

2010

Clin Pediatr (Phila)

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The Health Care Consent Act, 1996, states that every person in Ontario, regardless of age, is presumed to be capable of consenting to or refusing medical treatment unless he or she is found incapable with respect to a specific treatment or plan of treatment. Health care practitioners may find it especially challenging to apply the legal test of capacity to young people. As an aid to assessment, a guide incorporating both legal and medical perspectives has been developed. This article describes the background and context of the development of the guide and explains how it helps practitioners to conduct a simpler, more focused evaluation of capacity in youth. The guide, along with an introduction and comments for parents, is included in an appendix.

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Do adolescents with chronic illness want to make decisions about their treatment

Cited by 3 publications

References 0 publications

3 Dimensions of Treatment Decision Making in Adolescents and Young Adults With Cancer

3 Dimensions of Treatment Decision Making in Adolescents and Young Adults With Cancer

Treatment Decision-Making Involvement in Adolescents and Young Adults With Cancer

A Guide for Health Care Practitioners in the Assessment of Young People’s Capacity to Consent to Treatment

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