Distress and Quality of Life Among Patients with Advanced Genitourinary Cancers

Bergerot, Cristiane Decat; Philip, Errol J.; Bergerot, Paulo Gustavo; Pal, Sumanta K.

doi:10.1016/j.euf.2019.10.014

Cited by 14 publications

(7 citation statements)

References 44 publications

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“…An elevated risk of suicide in patients with sensory impairment [13] and some cancers, especially in the first 6 months after diagnosis of malignancy, is well documented [14]. Furthermore, the prevalence of distress and impairment of quality of life have been highlighted in many types of cancer [15]. In Oregon and Washington, most patients who used assisted suicide had cancer or terminal illnesses leading to loss of autonomy, dignity and quality of life [16].…”

Section: Discussionmentioning

confidence: 99%

Determinants of suicidal history before assisted versus self-initiated suicide late in life: an observational study

Dieudonné-Rahm¹,

Pautex²

2023

Swiss Med Wkly

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BACKGROUND: Older adults are at risk of assisted and self-initiated suicide. The links between prior attempts and assisted suicide in the elderly have not been investigated. Hence, we aimed to investigate and describe the occurrence, timing and determinants of suicide attempts prior to assisted and self-initiated suicide. METHODS: We developed a retrospective study of all assisted and self-initiated suicides among people over 65 years in the canton of Geneva, Switzerland, for a 10-year period (2010–2019). Cases were identified by cross-referencing hospitals’ routinely collected electronic data and a forensic report database. Cases were characterised in terms of sociodemographic factors, mental health disorders, main comorbidities, temporal sequence, methods of injury, medical complications and disclosure rates of previous attempts. The study used descriptive statistics. RESULTS: A total of 26 of 497 (5.2%) and 20 of 149 (13.4%) older adults had made previous attempts before assisted and self-initiated suicide, respectively. More than half of them had made a single attempt, mostly by medication poisoning, sometimes more than 10 years before dying. Individuals who made two attempts were significantly more represented among the assisted suicide decedents. One self-initiated suicide decedent and half of the assisted suicide cases had disclosed that they had considered suicide. Individual characteristics were similar, except for assisted suicide decedents, who were eight years older than self-initiated suicide decedents. Almost all the individuals had mental disorders. Depression, anxiety and chronic pain were particularly prevalent among decedents of assisted suicide. The substantial representation of women in both groups may be an indication of their vulnerability, possibly related to chronic pain and life stressors. CONCLUSIONS: Our results show commonalities between older assisted and self-initiated suicide decedents who made an attempt (s) before suicide. Further research is needed to demonstrate the overlap between the determinants of assisted suicide and other forms of suicidality and to support a suicide prevention strategy applicable to both types of suicide.

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Section: Discussionmentioning

confidence: 99%

Determinants of suicidal history before assisted versus self-initiated suicide late in life: an observational study

Dieudonné-Rahm¹,

Pautex²

2023

Swiss Med Wkly

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“…Ho et al further considered fatigue as a potential intervention target because fatigue may lead to depression (19). A mini-review reported that the prevalence of distress among patients with renal, bladder and prostate cancer were 20%, 12% and 30%, respectively (20). Another study found that the prevalence of depression, anxiety and post-traumatic stress disorder among patients with newly diagnosed bladder or renal cancer was 77.5%, 69.3% and 25.2%, respectively (21).…”

Section: Discussionmentioning

confidence: 99%

Propaganda and Education Can Improve the Quality of Life of Patients With Urologic Cancer Before Surgery

Huang

et al. 2021

Preprint

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Background: Distributing propaganda materials is a way of doctor-patient communication. Our study aims to demonstrate its influence on patients' quality of life with newly diagnosed urologic cancer before surgery.Methods: Patients with urologic cancer were retrospectively enrolled from April 2020 to March 2021 in the Cancer Hospital of Chinese Academy of Medical Sciences. The propaganda materials were written and published by our center and distributed after admission. The quality of life was assessed by EORTC QLQ-C30 version 3.0 on the day of admission and after patients read the materials.Results: A total of 180 patients were included. Most of them were male and with renal cancer. Sleep disturbance (p=0.002), appetite loss (p=0.013), fatigue (p=0.002) and physical function (p=0.006) showed statistically significant improvement after the intervention. In subgroup analysis, the changes of sleep disturbance, fatigue and physical function remained significant among patients with renal cancer. Several items remained significant among younger patients(≤57 years old).Conclusions: Distributing proper propaganda materials could exert significant impacts among patients with urologic cancer. Patients with renal cancer and younger patients might be more likely to benefit from that.

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“…[11] Outpatients with H&N cancer in the Netherlands reported satisfaction with their nurse's knowledge and attention to concerns when a distress screening and follow-up intervention was implemented, [8] and evidence supports promoting screening and psychosocial interventions among patients with urological cancers. [12] Furthermore, Riedl et al [7] observed that oncology patients were more likely to engage in screening if the results of said screening were then incorporated into their individual care plan. Indeed, it has become well recognized that, on its own, distress screening is not effective in achieving truly patient-centred care; patients need their HCPs to be supported and upskilled to address their distress scores with them, then further assess, assist, and refer for evidence-based care where indicated.…”

Section: Introductionmentioning

confidence: 99%

“…The screening process is perceived to be highly acceptable, helpful in facilitating communication about patient issues, increasing awareness of the assistance available, and enhancing clinician-patient rapport [11] . Outpatients with H&N cancer in the Netherlands reported satisfaction with their nurse's knowledge and attention to concerns when a distress screening and follow-up intervention was implemented, [8] and evidence supports promoting screening and psychosocial interventions among patients with urological cancers [12] . Furthermore, Riedl et al [7] observed that oncology patients were more likely to engage in screening if the results of said screening were then incorporated into their individual care plan.…”

Section: Introductionmentioning

confidence: 99%

The PACT Study: results of a time series study investigating the impact, acceptability and cost of an integrated model for psychosocial screening, care and treatment of patients with urological and head and neck cancers

Girgis

Candler

Handley

et al. 2021

Journal of Psychosocial Oncology Research &Amp; Practice

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Background: The significant psychosocial morbidity experienced by cancer patients is often undetected and untreated. Despite international priority given to psychosocial care for cancer patients, implementation of psychosocial programs into routine cancer care is limited. We developed, implemented, and assessed the impact, acceptability, and cost of an integrated, patient-centered Psychosocial Assessment, Care and Treatment (PACT) model of care for cancer patients within a general hospital setting. Methods: A time series research design was implemented to test the PACT model of care, newly introduced in an Australian tertiary hospital. System-level impact on systematic distress screening and management was assessed through audit of the medical records of three cross-sectional samples of 141 patients, at baseline and at 12 and 24 months post-baseline. The impact of the model on patient experience and health care professionals’ (HCPs) knowledge and confidence was assessed via surveys. The acceptability of the intervention was assessed through HCP interviews at 24 months. The cost of the intervention was assessed by PACT staff recording the time spent on care provision, training, and intervention administration, and associated costs were calculated using staff payment rates adjusted for superannuation and leave. Results: Across the 24 months of implementation, formal distress screening increased from 0% at baseline to 29% of patients at 12 months and 31% of patients at 24 months, with an associated decrease in informal screening as formal screening increased. There was no notable change in distress management (ie, development of care plans) across the time period. Baseline patient experience was already high (mean score = 46.85/55) and did not change significantly over the course of the study. In both general and specific areas of addressing patient psychosocial concerns, HCP knowledge and confidence was moderate and remained largely unchanged over the course of the study. HCPs perceived the PACT model as highly beneficial and instrumental in bringing about significant changes to staff's knowledge, practices and awareness of psychosocial issues. The estimated total labor cost (including on-costs) was AUD$119,239 (over the 2 years); with a declining cost over the lifetime of the intervention reflecting the higher initial set-up costs. Conclusions: Although the PACT model was associated with an increase in distress screening, staff workloads, high turnover, and administrative barriers may have restricted the translation into distress management. Future research exploring effective avenues to engage staff at a management level and ensure that staff view distress management as a valuable component of their role may assist to embed strategies into the general hospital culture and lead to more sustainable changes.

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Distress and Quality of Life Among Patients with Advanced Genitourinary Cancers

Cited by 14 publications

References 44 publications

Determinants of suicidal history before assisted versus self-initiated suicide late in life: an observational study

Determinants of suicidal history before assisted versus self-initiated suicide late in life: an observational study

Propaganda and Education Can Improve the Quality of Life of Patients With Urologic Cancer Before Surgery

The PACT Study: results of a time series study investigating the impact, acceptability and cost of an integrated model for psychosocial screening, care and treatment of patients with urological and head and neck cancers

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