Distilling authentic community-led strategies to support people with dementia to live well

Courtney‐Pratt, Helen; Mathison, Karin; Doherty, Kathleen

doi:10.1080/15575330.2018.1481443

Cited by 11 publications

(9 citation statements)

References 28 publications

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“…The importance of public awareness about dementia when achieving dementia-friendly communities (Alzheimer's Disease International, 2016;Cahill, 2015;Vernooij-Dassen et al, 2005) was in line with our findings; our participants requested a need for public education for all citizens if the municipality wanted to develop a dementia-friendly community. Several models around the world have been devised to support the establishment of dementia-friendly communities aimed at public awareness campaigns about dementia, for example, in the United Kingdom (Crampton & Eley, 2013) and Australia Courtney-Pratt et al, 2018). Education about dementia for children of all ages (Baker et al, 2018) and undergraduate healthcare professionals (Cashin et al, 2018) is one of the first steps needed to reduce the stigma related to dementia.…”

Section: Discussionmentioning

confidence: 99%

Health promotion initiative: A dementia-friendly local community in Sweden

et al. 2020

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Dementia is a great public health concern worldwide. Despite this, little is known from a health-promoting perspective about dementia in general as a public health issue, in dialog with people living with dementia, applicable at individual, group, and societal levels with regard to policies and practice. This study therefore aims to explore the experiences related to living with dementia in the local community by advancing a health-promoting perspective. Semi-structured individual and group interviews were conducted with participants ( n = 22) with lived, professional, and personal experiences of dementia living in a medium-sized municipality in Sweden. Transcripts were analyzed by thematic analysis. Four themes emerged: health promotion through knowledge and public awareness, health promotion through opportunities to be active, health promotion through meaningful meeting places, and health promotion through improvements in the welfare system. We found that more knowledge and public awareness about dementia are needed to advance a health-promoting perspective and increase the prominence of dementia as a public health issue. Further research and policy need to focus more on how professionals in dementia care practice could be involved in promoting health and well-being for people with dementia.

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Section: Discussionmentioning

confidence: 99%

Health promotion initiative: A dementia-friendly local community in Sweden

et al. 2020

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“…Consequently, dementia-friendly communities (DFC) initiatives have been geared towards augmenting community participation and social inclusion of people living with dementia (Buckner et al., 2019). This involves improving the capability of community-based services and businesses to adapt to the needs and preferences of people living with dementia, as well as creating dementia-specific leisure and recreational activities that promote community engagement (Buckner et al., 2019; Courtney-Pratt et al., 2018). DFCs are envisioned as communities that are affirming, empowering and supportive, cultivate dementia-positivity and promote equal rights and resources for people living with dementia and their families to be meaningfully engaged in the community (Lin & Lewis, 2015; Lin et al., 2014; Shannon & Bail, 2018).…”

Section: Introductionmentioning

confidence: 99%

“…DFCs are envisioned as communities that are affirming, empowering and supportive, cultivate dementia-positivity and promote equal rights and resources for people living with dementia and their families to be meaningfully engaged in the community (Lin & Lewis, 2015; Lin et al., 2014; Shannon & Bail, 2018). In promoting community participation and engagement, the ultimate goal of DFCs is to eliminate the stigma associated with dementia, raise awareness and help people living with dementia, who may be socially isolated, feel a sense of belonging to the community (Courtney-Pratt et al., 2018; Shannon & Bail, 2018).…”

Section: Introductionmentioning

confidence: 99%

Community participation in activities and places among older adults with and without dementia

2020

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Availability of community-based destinations and amenities can facilitate healthy aging by supporting older adults’ functional abilities and enabling their participation in society, especially for those experiencing declining cognitive abilities. This study used a survey tool called participation in ACTivities and places OUTside the Home for older adults, specifically designed to examine the out-of-home participation of older adults living with or without dementia, to collect data on specific places and activities that individuals participate in over time. Thirty cognitively intact participants and 29 participants living with dementia were recruited. The past/present net participation figures indicate that all destinations are likely to be abandoned by persons with dementia over time. The findings indicate that both groups of participants were most likely to abandon recreation and physical activity places, although a higher number of persons with dementia reported that they would likely abandon these places in the future than the cognitively intact participants. Participants with dementia indicated multiple en route and at destination challenges, as well as their coping strategies. This study adds to our understanding of the out-of-home places visited by persons living with and without dementia and the patterns of changes in those visits over time. The findings are useful for health and social care professionals, including occupational therapists, social workers, as well as family caregivers, in recognizing the relative importance of certain out-of-home places and activities over others and the challenges faced by persons with dementia in getting to those places. This knowledge can inform programme and service providers to develop targeted interventions to support continued engagement by older adults with dementia and cognitively intact older adults.

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“…For DFCs to be supportive and safe for people with dementia, built and social environments in the community need to be considered ( Courtney-Pratt et al, 2018 ; Sturge et al, 2021 ). For example, when the social environment is disempowering and stigmatizing, people living with dementia may lose motivation to participate in occupations that are meaningful to them ( Teitelman et al, 2010 ) and may avoid asking for help ( Milby et al, 2017 ).…”

Section: Introductionmentioning

confidence: 99%

Assessment tools for measurement of dementia-friendliness of a community: A scoping review

et al. 2022

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Background A quantitative assessment of the dementia-friendliness of a community can support planning and evaluation of dementia-friendly community (DFC) initiatives, internal review, and national/international comparisons, encouraging a more systematic and strategic approach to the advancement of DFCs. However, assessment of the dementia-friendliness of a community is not always conducted and continuous improvement and evaluation of the impact of dementia-friendly initiatives are not always undertaken. A dearth of applicable evaluation tools is one reason why there is a lack of quantitative assessments of the dementia-friendliness of communities working on DFC initiatives. Purpose A scoping review was conducted to identify and examine assessment tools that can be used to conduct quantitative assessments of the dementia-friendliness of a community. Design and methods Peer-reviewed studies related to DFCs were identified through a search of seven electronic databases (MEDLINE, CINAHL, PsycINFO, Embase, EMCare, HealthSTAR, and AgeLine). Grey literature on DFCs was identified through a search of the World Wide Web and personal communication with community leads in Australia, Canada, New Zealand, the United Kingdom, and the United States. Characteristics of identified assessment tools were tabulated, and a narrative summary of findings was developed along with a discussion of strengths and weaknesses of identified tools. Results Forty tools that assess DFC features (built environment, dementia awareness and attitudes, and community needs) were identified. None of the identified tools were deemed comprehensive enough for the assessment of community needs of people with dementia.

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Distilling authentic community-led strategies to support people with dementia to live well

Cited by 11 publications

References 28 publications

Health promotion initiative: A dementia-friendly local community in Sweden

Health promotion initiative: A dementia-friendly local community in Sweden

Community participation in activities and places among older adults with and without dementia

Assessment tools for measurement of dementia-friendliness of a community: A scoping review

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