Background: Face-to-face/group education for palliative caregivers is successful, but relies on caregivers travelling, being absent from the patient, and rigid timings. This presents inequities for those in rural locations.
Aim:To design and test an innovative distance-learning educational package (PrECEPt: PalliativE Caregivers Education Package).Design: Single-arm mixed method feasibility proof of concept trial (ACTRN12616000601437). The primary outcome was carer self-efficacy, with secondary outcomes focused on caregiver preparedness and carer tasks/needs. Analysis focused on three outcome measures (taken at baseline and six-weeks), and feasibility/acceptability qualitative data.
Setting and participants:A single specialist palliative care service. Eligible informal caregivers were those of patients registered with the outpatient or community service, where the patient had a prognosis of ≥12 weeks, supporting someone with nutrition/hydration and/or pain management needs, proficient in English and no major mental health diagnosis.
Results:Two modules were developed and tested (nutrition/hydration and pain management) with eighteen caregivers. The materials did not have a statistically significant impact on carer self-efficacy. However, statistically significant improvements were observed on the two subsidiary measures of (i) caregiving tasks, consequences, and needs (p=0.03, CI: 0.72, 9.4), and (ii) caregiver preparedness (p=0.001, CI: -1.22, -0.46). The study determined that distance learning is acceptable and feasible for both caregivers and healthcare professionals.
Conclusions:Distance education improves caregiver preparedness, and is a feasible and acceptable approach. A two-arm trial would determine whether the materials benefitted caregivers and patients compared to a control group not receiving the materials. Additional modules could be fruitfully developed and offered.