Dismantling Systemic Racism and Advancing Health Equity throughout Research

Beard, Kenya; Iruka, Iheoma U.; Laraque‐Arena, Danielle; Murry, Velma McBride; Rodríguez, Lourdes J.; Taylor, S. Martin

doi:10.31478/202201a

Cited by 13 publications

(13 citation statements)

References 5 publications

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“…Guided by these principles and focus areas, and also inspired by learning health system frameworks [6][7][8][9], the TF then developed the DEIA Action Cycle. This iterative component of the framework has seven stages aimed at achieving DEIA progress.…”

Section: Resultsmentioning

confidence: 99%

“…These would allow the Hubs to be centered in a standard manner for gaining a greater understanding of DEIA and to normalize approaches to be shared across the consortium. These include: Guided by these principles and focus areas and also inspired by learning health system frameworks [8][9][10][11], the TF then developed the DEIA Action Cycle. This iterative component of the framework has seven stages aimed at achieving DEIA progress.…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

The CTSA Diversity, Equity, Inclusion, and Accessibility (DEIA) Task Force’s recommendations for the CTSA program consortium

Carter-Edwards

Hightower

Schick

et al. 2022

J. Clin. Trans. Sci.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

The CTSA Diversity, Equity, Inclusion, and Accessibility (DEIA) Task Force’s recommendations for the CTSA program consortium

Carter-Edwards

Hightower

Schick

et al. 2022

J. Clin. Trans. Sci.

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“…We were not able to identify any existing studies of persons aging with disability that had a similar finding. In the U.S., non-White individuals tend to have worse health and participation outcomes due, in part, to racial disparities in health equity in the U.S., for which there is overwhelming evidence [58,59]. There are some U.S.-based studies of participation among adults identifying as African American or Black with chronic disease but none that we identified with a comparative White sample.…”

Section: Discussionmentioning

confidence: 86%

Aging with Disability Symptoms and Ability to Participate in, and Satisfaction with, Social Participation among Persons Aged 45–64

et al. 2022

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Pain, fatigue, and depression, considered aging with disability (AwD) symptoms, are known to be substantially higher among middle-aged adults with long-term disability compared to their age peers. Participation has been recognized as an important component of health. This cohort survey study reports findings on the relationship between AwD symptoms and ability to participate in, and satisfaction with participation in, social roles and activities using PROMIS measures. Data were collected at three time points from individuals aged 45–64 with an average of two decades of disability duration and primarily living in the state of Missouri, USA. This study reports on Time 1 (T1) and Time 3 (T3), pre- and post-COVID-19 pandemic declaration, respectively. Multiple regressions using both individual AwD symptoms and a composite measure demonstrated that having more pain, fatigue, and depression was associated with worse participation outcomes. Lower physical function scores were also related to lower participation scores, as was being female and living with others, and having more income reduced participation. Better physical health and identifying as African American/Black were associated with higher participation scores. Our findings suggest that AwD symptoms, along with other sociodemographic and health factors, play a substantial role in the social participation outcomes for persons aging with disability and remain consistent over time.

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“…Some may argue that examining mass incarceration as a possible hazardous exposure for individuals and their families may be outside the scope or too large of an issue to address within the health care system. Reports issued by the National Academies of Sciences, Engineering and Medicine 28 , 29 and other scholars 30 in support of reducing adverse childhood experiences say otherwise. We need to understand the association of intergenerational transmission of stress and trauma, especially due to the incarceration of parents, and children’s well-being, so we can develop appropriate interventions.…”

Section: Discussionmentioning

confidence: 99%

Assessment of US Federal Funding of Incarceration-Related Research, 1985 to 2022

et al. 2023

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ImportanceThe US leads the world in the raw number of incarcerated persons as well as the rate of incarceration, with detrimental effects on individual-, family-, community-, and population-level health; as such, federal research has a critical role in documenting and addressing the health-related impacts of the US criminal legal system. How often incarceration-related research is funded at the National Institutes of Health (NIH), National Science Foundation (NSF), and US Department of Justice (DOJ) levels has a direct association with the public attention given to mass incarceration as well as the efficacy of strategies to mitigate negative effects and poor health related to incarceration.ObjectiveTo understand how many incarceration-related projects have been funded at the NIH, NSF, and DOJ.Design, Setting, and ParticipantsThis cross-sectional study used public historical project archives to search for relevant incarceration-related keywords (eg, incarceration, prison, parole) since January 1, 1985 (NIH and NSF), and since January 1, 2008 (DOJ). Quotations and Boolean operator logic were used. All searches and counts were conducted and double verified by 2 coauthors between December 12 and 17, 2022.Main Outcomes and MeasuresNumber and prevalence of funded projects related to incarceration and prison keywords.ResultsThe term incarceration resulted in 3540 of 3 234 159 total project awards (0.11%) and prisoner-related terms resulted in 11 455 total project awards (0.35%) across the 3 federal agencies since 1985. Nearly a tenth of all projects funded at NIH since 1985 related to education (256 584 [9.62%]) compared with only 3373 projects (0.13%) that related to criminal legal or criminal justice or correctional system and 18 projects (0.0007%) that related to incarcerated parents. Only 1857 (0.07%) of all NIH-funded projects have been funded related to racism since 1985.Conclusions and RelevanceThis cross-sectional study found that a very low number of projects about incarceration have historically been funded at the NIH, DOJ, and NSF. These findings reflect a dearth of federally funded studies investigating the effects of mass incarceration or intervention strategies to mitigate adverse effects. Given the consequences of the criminal legal system, it is undoubtedly time for researchers, and our nation, to invest more resources into studying whether this system should be maintained, the intergenerational effects of mass incarceration, and strategies to best mitigate its impact on public health.

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Dismantling Systemic Racism and Advancing Health Equity throughout Research

Cited by 13 publications

References 5 publications

The CTSA Diversity, Equity, Inclusion, and Accessibility (DEIA) Task Force’s recommendations for the CTSA program consortium

The CTSA Diversity, Equity, Inclusion, and Accessibility (DEIA) Task Force’s recommendations for the CTSA program consortium

Aging with Disability Symptoms and Ability to Participate in, and Satisfaction with, Social Participation among Persons Aged 45–64

Assessment of US Federal Funding of Incarceration-Related Research, 1985 to 2022

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