Disease-Specific Outcome Measures Evaluating the Health-Related Quality of Life of Children and Adolescents with Idiopathic Scoliosis and Scheuermann's Kyphosis: A Literature Review

Abstract

Adolescent idiopathic scoliosis (AIS) and Scheuermann's kyphosis (SK) are the most common types of spinal deformities in adolescents, and both have substantial ramifications on health-related quality of life (HRQoL) parameters. Various questionnaires have been developed to assess HRQoL in age-group populations with spinal deformity. Nevertheless, there remains a lack of consensus across the literature as to which instrument is the most suitable for evaluating the HRQoL of this cohort. Thus, this literature review was conducted to present disease-specific questionnaires for children and adolescents with AIS and SK to provide their psychometric characteristics (validity, reliability, and responsiveness) across different languages. A literature search was performed in the Medline (PubMed), Scopus, EMBASE, and Google Scholar databases. Studies that outlined the development and application of questionnaires evaluating HRQoL of children and adolescents with spinal deformity were included, and data on their validity and reliability in different translated languages were collected. A total of 10 disease-specific questionnaires were identified. Except for one questionnaire that was a proxy-reported measure, the other questionnaires were self-reported.We determined that selecting the proper questionnaire for clinical and research purposes requires careful consideration of various factors including the type of treatment intervention planned as well as various patient demographic factors. For children with early-onset scoliosis, the ideal questionnaire to evaluate their HRQoL is the Early-Onset Scoliosis Questionnaire-24. For adolescents with AIS and SK who are potential candidates for surgical intervention, the use of

Determination of predictors associated with pain in non‑surgically treated adults with idiopathic scoliosis

“…Another limitation is that individuals’ quality of life was assessed with SRS-22. It has been reported that SRS-22 may have a ceiling effect in the assessment of quality of life in IS [ 53 ]. Therefore, in future studies, it may be more appropriate to assess quality of life in adult individuals with IS using the Brace Questionnaire or the Italian Spine Youth Quality of Life questionnaire.…”

Global research hotspots and trends in non-surgical treatment of adolescent idiopathic scoliosis over the past three decades: a bibliometric and visualization study

“…Furthermore, the positive effect of Schroth physiotherapy scoliosis-specific exercise (PSSE) on slowing or interrupting the progression of AIS has been supported by randomized controlled trials (cited frequency 3rd, Among the questionnaire studies of HRQOL, five papers selected the Scoliosis Research Society 22-item questionnaire SRS-22 (centrality 2nd, 4th, and 5th studies), the Bad Sobernheim Stress Questionnaire (BSSQbrace) (centrality 6th study), and the Spinal Appearance Questionnaire. The SRS-22 patient questionnaire has been shown to be an effective tool for the clinical assessment of patients with AIS, especially for patients who may undergo surgical interventions (43), and the widespread use of the SRS-22 in non-English-speaking countries requires its cross-cultural adaptation. The 2nd study of centrality translated and culturally adapted the SRS-22 questionnaire into Spanish, and testing demonstrated adequate internal consistency and excellent reproducibility of the Spanish version of the SRS-22 patient questionnaire.…”