Disease-specific health-related quality of life instruments among adults diabetic: A systematic review

Achhab, Youness El; Nejjari, Chakib; Chikri, Mohamed; Lyoussi, Badiaâ

doi:10.1016/j.diabres.2007.12.020

Cited by 143 publications

(122 citation statements)

References 56 publications

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“…Ten items loaded above 0.50, all of which were from the Diabetesrelated Negative Emotions subscale (items 3,6,7,8,9,10,12,16,19,20). We removed three items rated on average by respondents as less than a 'minor problem' (items 8, 10, 20) and the remaining seven items were subjected to a reliability analysis.…”

Section: Resultsmentioning

confidence: 99%

“…The PAID has four factors or dimensions measuring diabetes-related emotional problems (12 questions), treatment-related problems (three questions), food-related problems (three questions), and social support-related problems (two questions). The PAID has been translated into various languages, is widely employed to monitor change following an intervention and its psychometric properties have been established [6,7]. However, while clinically useful, wider use of the PAID may be limited by its length.…”

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confidence: 99%

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Short-form measures of diabetes-related emotional distress: the Problem Areas in Diabetes Scale (PAID)-5 and PAID-1

et al. 2009

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Aims/hypothesis We wanted to identify a five-item short form of the Problem Areas in Diabetes Scale and a single-item measure for rapid screening of diabetes-related emotional distress. Methods Using an existing database of 1,153 patients with diabetes, we conducted a principal-components analysis to identify a set of five items and then conducted a reliability analysis and validity checks. From those five items, we identified the item with the strongest psychometric properties as a one-item screening tool. Results We identified a reliable and valid short version of the Problem Areas in Diabetes Scale (PAID) comprising five of the emotional-distress questions of the full PAID items (PAID-5, with items 3, 6, 12, 16, 19). The PAID-5 has satisfactory sensitivity (94%) and specificity (89%) for recognition of diabetes-related emotional distress. We also identified a one-item screening tool, the PAID-1 (Question 12: Worrying about the future and the possibility of serious complications), which has concurrent sensitivity and specificity of about 80% for the recognition of diabetes-related emotional distress. Conclusions/interpretation The PAID-5 and PAID-1 appear to be psychometrically robust short-form measures of diabetes-related emotional distress.Electronic supplementary material The online version of this article

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Section: Resultsmentioning

confidence: 99%

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confidence: 99%

Short-form measures of diabetes-related emotional distress: the Problem Areas in Diabetes Scale (PAID)-5 and PAID-1

et al. 2009

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“…diabetes knowledge and self-care). We identified the measures while conducting a published systematic review (Dennick et al, 2016;Sturt, Dennick, Hessler, et al, 2015) and by hand-searching published reviews of diabetes-specific PROMs (Eigenmann, Colagiuri, Skinner, & Trevena, 2009;El Achhab, Nejjari, Chikri, & Lyoussi, 2008;Hirsch, Bartholomae, & Volmer, 2000;Luscombe, 2000;Watkins & Connell, 2004). Any additional measures of potential relevance known to the authors were also included.…”

Section: Identification and Selection Of Measuresmentioning

confidence: 99%

What is diabetes distress and how can we measure it? A narrative review and conceptual model

Dennick

Sturt

Speight

2017

Journal of Diabetes and its Complications

124

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BackgroundDiabetes distress is the negative emotional impact of living with diabetes. It has tangible clinical importance, being associated with sub-optimal self-care and glycemic control. Diabetes distress has been operationalized in various ways and several measures exist. Measurement clarity is needed for both scientific and clinical reasons. ObjectivesTo clarify the conceptualization and operationalization of diabetes distress, identify and distinguish relevant measures, and evaluate their appropriateness for this purpose. ResultsThree measure were identified: Problem Areas in Diabetes (PAID) scale, Diabetes Distress Scale (DDS); Type I Diabetes Distress Scale (T1-DDS), Diabetes-specific Quality of Life Scale-Revised (DSQoLs-R) 'Burden and Restrictions -Daily Hassles' sub-scale, Well-being Questionnaire 28 (W-BQ 28) 'Diabetes Well-being' sub-scale, and Illness Perceptions Questionnaire -Revised (IPQ-R) 'Emotional Representations' sub-scale. Across these measures a broad spectrum of diabetes distress is captured, including distress associated with treatment regimen, food/eating, future/complications, hypoglycemia, social/interpersonal relationships, and healthcare professionals. No single measure appears fully comprehensive. Limited detail is reported of the qualitative work informing scale design, raising concerns about content validity. ConclusionsAcross the available measures diabetes distress is seemingly comprehensively assessed and measures should be considered in terms of their focus and scope to ensure the foci of interventions are appropriately targeted.

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“…It is a central issue for patients, providers and policy makers. In patients with diabetes, it may predict an individual's capacity to manage this condition and to maintain long-term health and well-being [4]. Generally, diabetes negatively impacts HRQoL.…”

Section: Introductionmentioning

confidence: 99%

Assessment of health-related quality of life among adult patients with type 2 diabetes mellitus

Stanetić

Račić

Kević

2017

Biomedicinska istraž.

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Disease-specific health-related quality of life instruments among adults diabetic: A systematic review

Cited by 143 publications

References 56 publications

Short-form measures of diabetes-related emotional distress: the Problem Areas in Diabetes Scale (PAID)-5 and PAID-1

Short-form measures of diabetes-related emotional distress: the Problem Areas in Diabetes Scale (PAID)-5 and PAID-1

What is diabetes distress and how can we measure it? A narrative review and conceptual model

Assessment of health-related quality of life among adult patients with type 2 diabetes mellitus

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