Disease related use of the internet in chronically ill adults: current and expected use

Lankveld, W.G.J.M. van; A, Derks; Hoogen, F.H.J. van den

doi:10.1136/ard.2004.035006

Cited by 20 publications

(19 citation statements)

References 9 publications

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“…Previous research among rheumatism patients, as well as among those suffering from other diseases, has shown similar findings [20][21] [22]. In this study the emphasis was on the kind of information and the reasons for which patients searched the internet.…”

Section: A Informationsupporting

confidence: 75%

“…Communication with health professionals shows a large discrepancy between current use and needs for the future. This is also shown by Van Lankveld in a study on current and expected use of online health applications by the chronically ill [22]. This discrepancy is largely due to lack of opportunity.…”

Section: B Communicationmentioning

confidence: 59%

“…Much is written about the possible positive results peer support groups can give [27] [28]. Still, actual usage of online support groups seems to be moderate [22][29] [30][31] [32]. The current study shows that most participants do not immediately reject the concept of online peer support groups, but they only will participate under certain conditions.…”

Section: B Communicationmentioning

confidence: 71%

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Experiences and Preferences of Patients with Rheumatic Diseases Regarding an Interactive Health Communication Application

Vaart

Drossaert

Taal

et al. 2010

2010 Second International Conference on eHealth, Telemedicine, and Social Medicine

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Objective Interactive Health Communication Applications (IHCAs) can make a valuable contribution to rheumatological care. The development of online health applications is moving quickly, and positive results have been shown. Yet solid research on use and acceptance of different information, communication and participation tools by patients is still lacking. In this qualitative study, we examined the health-related internet use of patients with rheumatic diseases, their motives for using or not using certain applications, and their needs and preferences with regard to a rheumatology IHCA. Method Semi-structured individual interviews were conducted with eighteen patients, who were selected from a hospital's patient panel. Participants were diagnosed with eight different forms of rheumatism and their mean age was 50.7 years. The interviews were coded by two independent researchers. Results The applications most preferred by participants were: information provision on both medical and support topics, online communication with their doctor and insight in their personal health records. Patient support groups were less valued as were participation tools such as symptom monitoring and online exercise programs. Furthermore, a large discrepancy was shown between patients' current use and their future preferences with respect to information about care and support, access to personal health records and having online contact with their doctor. Conclusion Patients see great value in an IHCA provided by their own hospital, since it could increase reliability, and would give them the confidence to use the application. The current study shows a significant discrepancy between current use and future preferences rheumatism patients have regarding online communication with their doctor, online symptom monitoring and insight in their personal health record. Overall a rheumatology IHCA should contain communication and participation tools, both linked to the hospital, and information about disease, care and practical support. Since this study focused on the communication with patients regarding a technological ehealth system which will include information, communication and participation, this paper is relevant on the conference topics eHealth systems and communcations, eHealth technology and devices and Telemedicine/ehealth applications.

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Section: A Informationsupporting

confidence: 75%

Section: B Communicationmentioning

confidence: 59%

Section: B Communicationmentioning

confidence: 71%

See 1 more Smart Citation

Experiences and Preferences of Patients with Rheumatic Diseases Regarding an Interactive Health Communication Application

Vaart

Drossaert

Taal

et al. 2010

2010 Second International Conference on eHealth, Telemedicine, and Social Medicine

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“…Surprisingly, despite the emotional toll, few patients felt the need for psychological or emotional support. The use of internet support groups and online discussions allows patients with PLS to interact with other PLS patients, a phenomenon that has been reported in other chronic illnesses (6, 7). …”

Section: Discussionmentioning

confidence: 90%

Usage of support services in primary lateral sclerosis

Peters

Floeter

2009

Amyotrophic Lateral Sclerosis

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Patients with Amyotrophic lateral sclerosis (ALS) rely on a variety of support services during the course of their illness. Patients with Primary lateral sclerosis (PLS) have a slower progression of disease and different clinical spectrum. Their needs for allied health services and social support have not been well characterized. To investigate these needs, 25 patients with PLS and caregivers were surveyed about the use of assistive devices and support services. Needs for assistance changed as the disease progressed. Their greatest need was for gait assistive devices and home help for activities requiring mobility. As in other chronic diseases, there was a striking use of the internet to gather information and for patient support groups.

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“…Furthermore, many patients have used information obtained from the Internet to discuss their condition with their health care professional (14,17), claiming that it improved their understanding of their disease (49) and helped them to make informed health care decisions (10). In addition, the majority of CVD patients would like to use the Internet to communicate directly with their health care providers (15,50). Indeed, patients prefer to obtain health care information from their physicians (9) and may only seek information on the Internet when they cannot contact their health care professional.…”

Section: Discussionmentioning

confidence: 99%

Prevalence and characteristics of home Internet access in patients with cardiovascular disease from diverse geographical locations

Lear

Araki

Maric

et al. 2009

Canadian Journal of Cardiology

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Disease related use of the internet in chronically ill adults: current and expected use

Cited by 20 publications

References 9 publications

Experiences and Preferences of Patients with Rheumatic Diseases Regarding an Interactive Health Communication Application

Experiences and Preferences of Patients with Rheumatic Diseases Regarding an Interactive Health Communication Application

Usage of support services in primary lateral sclerosis

Prevalence and characteristics of home Internet access in patients with cardiovascular disease from diverse geographical locations

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