Discrepancies in Educational Needs for Transition in Adolescents and Young Adults with Spina Bifida in South Korea: Use of the Borich Needs Assessment Model

Choi, Eun Kyoung; Bae, Eunjeong; Ji, Yoonhye; Jung, Eun‐Young; Yang, Seung-Hyeon

doi:10.1016/j.pedn.2021.08.018

Cited by 9 publications

(15 citation statements)

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“…To identify the problems related to transition, we conducted a systematic review [25], a need assessment [3], and a discussion with the multidisciplinary panel. First, for conducting a systematic review of transition programs for adolescents with SB [25], we performed a search on PubMed, Web of Science, CINAHL, and PsycINFO databases for studies published from January 2010 to June 2019.…”

Section: Step 1: Logic Model Of the Problemmentioning

confidence: 99%

“…Before 1960, the survival rate for patients with SB was about 10-12%; however, owing to recent advancements in health care, over 85% of the children with SB are expected to now survive to adulthood [2]. As SB is a common congenital malformation with high survival until adulthood, it must now be approached as a chronic condition [3,4]. Therefore, it is of great importance to improve life prospects for adolescents with SB and ensure that they live healthy and independent [3,5].…”

Section: Introductionmentioning

confidence: 99%

“…As SB is a common congenital malformation with high survival until adulthood, it must now be approached as a chronic condition [3,4]. Therefore, it is of great importance to improve life prospects for adolescents with SB and ensure that they live healthy and independent [3,5].…”

Section: Introductionmentioning

confidence: 99%

“…Adolescents with SB have experienced challenges in their transition to adulthood due to physical and psychological difficulties [3]. Those with SB often have hydrocephalus with a shunt, bladder and bowel dysfunction, urinary and fecal incontinence, orthopedic deformities, motor difficulties, and pressure sores [1,6,8].…”

Section: Introductionmentioning

confidence: 99%

“…Among the theoretical frameworks explaining the transition of adolescents with SB, the Life Course Model is considered as providing a useful basis [3,16,32]. The Life Course Model was laid out developmentally, from preschool and continuing through school-age, and adolescence and young adults.…”

Section: Introductionmentioning

confidence: 99%

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An Online-Based Transition Care Program for Adolescents with Spina Bifida Using Intervention Mapping: A Protocol for Program Development

Choi

Yun

Bae

2022

IJERPH

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Adolescents with spina bifida (SB) face challenges in their transition to adulthood due to intensive medical regimens and delayed development of independence. Despite an increasing interest in the transition of adolescents with SB to adulthood, the clinical evidence of transition care remains limited, and existing studies have focused on the effects of intervention programs. This study aims to describe the process of systematically developing an online-based transition care program for adolescents with SB using the intervention mapping (IM) protocol. IM consists of six steps: (1) logic model of the problem; (2) program objectives; (3) program design; (4) program production; (5) plan to implement the program; (6) plan for evaluation. At first, five problems faced during the transition were identified, based on which four program objectives and six program strategies were established. The online transition care program for adolescents with SB was developed as a six-week program. The main strength of this program is that it reflects the diverse perspectives of adults with SB and health care professionals and is easy to apply because it is online. We aim to further validate the feasibility of this transitional care program to evaluate its effect based on our evaluation plan.

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Section: Step 1: Logic Model Of the Problemmentioning

confidence: 99%