Disabled young people’s participation in end-of-life decisions

Picton-Howell, Zoe

doi:10.51952/9781447351214.ch002

Cited by 1 publication

(6 citation statements)

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“…Neurologists expressed concern that their medical colleagues often underestimated the cognitive and communication abilities of children with neurodisabilities. 3 General Comment 12 (Table 2) explains how best to ensure a child's right to be heard. 27 Like General Comment 14, it is detailed and wide-ranging.…”

Section: A Rticl E 12: Chi L D's R Ight To E X Pr E Ss Th Eir V Iewsmentioning

confidence: 99%

“…In the study of paediatricians' decision‐making cited earlier, only 15 per cent of paediatricians in the study believed children with disabilities capable of expressing their views. Neurologists expressed concern that their medical colleagues often underestimated the cognitive and communication abilities of children with neurodisabilities 3 …”

Section: Article 12: Child's Right To Express Their Viewsmentioning

confidence: 99%

“…Their parents will also most likely have fewer resources in terms of money, 16 time, and their own health, 17 to enforce their children's rights than parents of children without disabilities and may be unwilling to challenge a service provider upon whom their child depends for their health and survival. 3 There are other mechanisms by which UNCRC rights in theory are fulfilled. State Parties periodically report to the Committee on how they are meeting their UNCRC duties.…”

Section: Mon Itor I Ng a N D E N Force M E N Tmentioning

confidence: 99%

“…Reasons include discrimination, lack of information and resources, and the absence of health care services to meet specific needs 2 . Medical professionals can contribute to rather than help avoid these rights abuses 3 . Indeed, the United Nations Committee on the Rights of the Child (hereafter referred to as the Committee), a committee of internationally recognized independent experts, repeatedly raise the need for professionals to receive systematic training in children's rights.…”

mentioning

confidence: 99%

“…2 Medical professionals can contribute to rather than help avoid these rights abuses. 3 Indeed, the United Nations Committee on the Rights of the Child (hereafter referred to as the Committee), a committee of internationally recognized independent experts, repeatedly raise the need for professionals to receive systematic training in children's rights. Australia 4 and Mexico 5 are among the nations to receive this recommendation in the Committee's most recent periodic reports, called Concluding Observations, on how and if the relevant nation is meeting its United Nations Convention on the Rights of the Child (UNCRC) 6 obligations.…”

mentioning

confidence: 99%

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The human rights of children with disabilities: How can medical professionals better fulfil rather than breach them?

Picton-Howell

2023

Develop Med Child Neuro

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The vulnerability of children with disabilities to human rights abuses, including in health care, is well documented. Medical professionals can too often breach rather than fulfil the rights of children with disabilities, often through misunderstandings about the law, an inevitable consequence of, as identified by the United Nation's Committee for the Rights of the Child, medical professionals too often not receiving systematic and effective training in children's rights. This paper explores some key rights vital to the health and well‐being of children with disabilities and shows how the guidance known as General Comments published by the United Nation's Committee on the Rights of the Child can assist medical professionals in ensuring the rights of children with disabilities in their care are fulfilled. It will also outline the human rights model of disability and explain how adopting this model in day‐to‐day practice, as required by international law, will empower medical professionals to help fulfil the human rights of children with disabilities. Suggestions are also made as to how training in human rights for medical professionals might be facilitated.

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Section: A Rticl E 12: Chi L D's R Ight To E X Pr E Ss Th Eir V Iewsmentioning

confidence: 99%

Section: Article 12: Child's Right To Express Their Viewsmentioning

confidence: 99%