Disability Research by Disabled and Non‐Disabled People: Towards a Relational Methodology of Research Production

Tregaskis, Claire; Goodley, Dan

doi:10.1080/13645570500402439

Cited by 38 publications

(29 citation statements)

References 12 publications

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“…Discussions around the role and experiences of visibly disabled researchers have largely been confined to the context of disability research, whereby the disabled body is regarded as having symbolic value establishing authenticity, insider status, commitment to empancipatory research and the 'right' to research disability issues (Seymour 2007;Tregaskis and Goodley 2005). However, as Barnes highlights, '*h+aving an impairment does not automatically give someone an affinity with disabled people, nor an inclination to do disability research' (Barnes 1992:.121).…”

Section: Empirical Workmentioning

confidence: 99%

“…Highlighting disability in this way does not imply it is a problem or a negative experience, but rather a characteristic that should not be neglected or denied as it often impacts on the research process. Such accounts have included discussions of access issues (Barnes 1992;Andrews 2007), impairment effects (Seymour 2007), the visibility of disability during fieldwork (Ellingson 2006), the sensitivity of funding bodies to the needs of disabled researchers (Mercer 2002)and the confidence and self-perception of disabled researchers vis-à-vis their non-disabled counterparts (Tregaskis and Goodley 2005). However, few focus primarily on how these various effects are negotiated, nor the dilemmas contained within negotiations.…”

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confidence: 99%

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Accessing the field: Disability and the research process

Brown

Boardman

2011

Social Science & Medicine

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Acknowledgements:Thanks to Rona Campbell, Karen Throsby and two anonymous referees for comments on this paper. We would also like to thank those who participated in our research projects. AbstractDisability is as much a factor in interactional dynamics as ethnicity, age, gender or sexuality, and therefore its impact on the processes around qualitative research warrants much more systematic attention. Disabled researchers are not confined to disability studies research, although most accounts of the impact of disability on the research process have, thus far, been undertaken within this field. This paper moves beyond this narrow focus to consider the impact of disabled identities and the embodied experiences of impairment on studies involving, primarily, non-disabled people. By reflecting on our experiences as visibly disabled researchers, we highlight some of the practical, ethical and conceptual dilemmas we encountered. Impairments may assist rapport building with participants, but also introduce complex dilemmas concerning whether, when and how to disclose them, and the consequences of doing so. We highlight the centrality of the visibility of the disabled body in mediating these 2 dilemmas, and its part in constraining our responses to them. While we value our commitment to positive readings of disability, we demonstrate that disabled researchers nevertheless undertake research in contexts where disability is assigned meanings disabled people may not share. We argue that all researchers should attend to their own 'body signifiers' (whether in relation to ethnicity, wealth, gender, age etc.) and embodied experiences of research processes, as these are integral to research outcomes, the ethics of research, and are a means by which to address power differentials between researcher and participant. This paper addresses a gap in the literature, using our experiences of research to highlight the negotiations and dilemmas faced by visibly disabled researchers. Negotiations of identity prompted by the disabled body in the research process require consideration and should not be ignored.

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Section: Empirical Workmentioning

confidence: 99%

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confidence: 99%

Accessing the field: Disability and the research process

Brown

Boardman

2011

Social Science & Medicine

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“…When researchers research topics she or he has personal experience with, it is always relevant to consider the risk of 'going native': that is, losing one's critical or professional distance as a researcher (Kvale, Brinkmann 2008, Tregaskis, Goodley 2005. In some research traditions, biases are seen as a problem because they can affect the possibility of being 'objective' that is, being neutral and 'free from bias'.…”

Section: Challenges In Involving People With Disabilities In Apa Resementioning

confidence: 99%

Ethical Aspects in Research in Adapted Physical Activity

Bredahl¹

2008

Sport, Ethics and Philosophy

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Abstract:This paper discusses some of the ethical aspects in research in Adapted Physical Activity. It indicates some of the ethical challenges related to the choice of research problem to be investigated, and the treatment of participants, not least when working with people who are in some ways in a more vulnerable life situation.Drawing also on experiences as a researcher with a disability, the challenges and potential benefits of involving people with disabilities in APA research is critically discussed.

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“…Last but not least, a research institution engaging in the comprehensive study of functioning and disability should also make considerable efforts to recruit, train and retain researchers with an experience of disability of their own in relation to a health condition [94]. The SPF, for example, is committed to recruit and train researchers with SCI.…”

Section: Career Buildingmentioning

confidence: 99%

Developing swiss paraplegic research: Building a research institution from the comprehensive perspective

Stucki

Reinhardt

Cieza

et al. 2008

Disability and Rehabilitation

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Purpose. To illustrate the conceptualization and development of a research institution from the comprehensive perspective based on the integrative model of functioning provided by the World Health Organization's (WHO) International Classification of Functioning, Disability and Health (ICF). The newly founded research institution Swiss Paraplegic Research which focuses on the comprehensive study of spinal cord injury (SCI) serves as an example. Method. Description of organizational development and structure. Results. The creation of specialized research institutions which develop their core competence from the comprehensive perspective poses unique challenges. It is depicted how these challenges can be met through several approaches. These encompass the identification and specification of a common mission and research goals, the organization of research along distinct scientific fields, the set-up of a respective core competence, and the design of research structures suited to conduct studies of high methodological and organizational complexity. Finally, they comprise the development of a transdisciplinary workforce and the integration into a research landscape which is organized along scientific disciplines and not along interdisciplinary themes. Conclusion. The ideas and approaches described in this paper may serve as an example for creating integrative research institutions dedicated to human functioning and rehabilitation research from the comprehensive perspective.

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Disability Research by Disabled and Non‐Disabled People: Towards a Relational Methodology of Research Production

Cited by 38 publications

References 12 publications

Accessing the field: Disability and the research process

Accessing the field: Disability and the research process

Ethical Aspects in Research in Adapted Physical Activity

Developing swiss paraplegic research: Building a research institution from the comprehensive perspective

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