Disability, Dependency and Indebtedness?

Vorhaus, John

doi:10.1111/j.1467-9752.2007.00537.x

Cited by 11 publications

(9 citation statements)

References 11 publications

(9 reference statements)

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“…The young adults’ choice and preference for relying on sighted assistance, coupled with their perceived lack of motivation to improve their level of independent functioning, appeared to be a source of constant tension and conflict between the parents and the young adults. This finding supports the view that independence as a quality of life outcome is one element of the primordial and dynamic nexus between dependence, independence, and interdependence, which operates between people within families, communities, and cultures (Vorhaus, 2007). As such, independence cannot be fully understood as an individual quest, in isolation from dependence, and interdependence (S.…”

Section: Discussionsupporting

confidence: 86%

Exploring the lived experience of acquiring life skills with congenital total blindness: An interpretative phenomenological analysis

Ingram¹,

Dorsett

Macfarlane

2019

British Journal of Visual Impairment

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This phenomenological study explored how individual young adults understood their lived experience of acquiring life skills with congenital total blindness (CTB). Four young adults with CTB, and five parents of the young adults, participated in the study. In depth, semi-structured interviews were used to gather information from the research participants. The interviews were analysed using interpretative phenomenological analysis (IPA). Five superordinate themes emerged from the IPA: (1) life skills acquisition as ‘a means to an end’, (2) appraising life skills acquisition, (3) acquiring disability-specific skills, (4) reaching adulthood with life skill gaps, and (5) making sense of independence. The findings revealed that the young adults had reached adulthood with significant gaps in their acquisition of basic life skills. This indicates that more needs to be done, to improve the efficacy and meaning of life skill acquisition programmes provided in childhood and adolescence, to young people living with CTB.

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Section: Discussionsupporting

confidence: 86%

Exploring the lived experience of acquiring life skills with congenital total blindness: An interpretative phenomenological analysis

Ingram¹,

Dorsett

Macfarlane

2019

British Journal of Visual Impairment

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“…DSPs play an important role in the lives of many individuals with intellectual disability and related developmental disabilities. However, their presence in the home may at times unintentionally promote dependence more than independence of adults with intellectual disability and related developmental disabilities (McKenzie & Macleod, ; Vorhaus, ). There is some evidence that the use of remote support services may reduce the reliance on DSP workers in the home (CERRIIDD, ).…”

Section: Discussionmentioning

confidence: 99%

Using technology and remote support services to promote independent living of adults with intellectual disability and related developmental disabilities

Tassé

Wagner

Kim

2020

Research Intellect Disabil

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Background The use of remote support technologies is a newer form of service that can contribute to increased independence while giving adults with intellectual and developmental disabilities a sense of home safety. This research reviewed the use of remote support services, which is a waiver service that includes smart home technologies and remote support staff that can be called upon, when needed. Method Using focus groups and telephone interviews, the present authors asked users of remote support services about their experience, including what they liked most and least about their experience with these technologies. Results Overall, increased independence and a sense of security and home safety were identified as the two principal benefits. Remote support technologies may be a part of the solution to addressing the lack of direct support professionals available to provide in‐home care. Conclusions The present authors discuss the benefits of remote support technologies and offer recommendations for future research regarding remote support technologies and the potential benefits of this newer form of support service.

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“…There is not space here to explore the distinctions between 'participation', 'sharing' and 'reciprocal exchange' (for more on this seeVorhaus 2007). How any one of these is conceived will have a bearing on how we conceive the others: so, for example, conceptions of reciprocity will inform conceptions of sharing and participation, and conceptions of reciprocity and participation will help determine whether and how other persons are viewed as potential contributors.…”

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confidence: 95%

Sharing in a Common Life: People with Profound and Multiple Learning Difficulties

Vorhaus¹

2016

Res Publica

Self Cite

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There is a view that what we owe to other people is explained by the fact that they are human beings who share in a common human life. There are many ways of construing this explanatory idea, and I explore a few of these here; the aim is to look for constructions that contribute to an understanding of what we owe to people with profound and multiple learning difficulties and disabilities (PMLD). In exploring the idea of sharing in a common life I construe 'sharing' as 'participating in', and 'common life' as the social life characteristic of the environment that someone lives in. My principal purpose is to render the idea of sharing in a common life in terms that help explain its eligibility as a ground for establishing the moral status of people with PMLD. The participatory options I examine each make some call on agency, if only as something hoped for in the future, including when hope flies in the face of expectation. Accordingly I look at conceptions of actual and potential participation in social life, and at the idea of treating people as if they have the potential to participate, even when the existence of any such potential is unlikely. I conclude with some thoughts on the relation between participation and the moral status of profoundly disabled people, and about how much, and how little, the argument has achieved.

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Disability, Dependency and Indebtedness?

Cited by 11 publications

References 11 publications

Exploring the lived experience of acquiring life skills with congenital total blindness: An interpretative phenomenological analysis

Exploring the lived experience of acquiring life skills with congenital total blindness: An interpretative phenomenological analysis

Using technology and remote support services to promote independent living of adults with intellectual disability and related developmental disabilities

Sharing in a Common Life: People with Profound and Multiple Learning Difficulties

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