Disability as Vulnerability: Redistributing Precariousness in Democratic Ways

Knight, Amber

doi:10.1017/s0022381613001266

Cited by 25 publications

(17 citation statements)

References 8 publications

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“…Although precarity has been widely used in other fields, in particular with regards to changes in the labour market (Standing 2010), its application to ageing and late life is relatively new. To date the concept has been applied in discussions around ageing and employment (Bohle et al 2010), financial insecurity and/or exclusion of older people (Craciun and Flick 2014), disability and citizenship (Knight 2014), and trends towards inequality in the G20 countries (Biggs 2014). In all cases, the use of precarity in gerontology and allied disciplines echo the broad application to issues of exploitation and insecurity in the labour market.…”

Section: Precarity As a Means To Reconsider Experiences Of Dementiamentioning

confidence: 99%

Precarity in late life: rethinking dementia as a ‘frailed’ old age

Grenier

Lloyd

Phillipson

2017

Sociology Health & Illness

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Approaches to ageing that are organised around productivity, success, and active late life have contributed to views of dementia as an unsuccessful, failed or ‘frailed’ old age. Operating through dominant frameworks, socio‐cultural constructs and organisational practices, the ‘frailties’ of the body and mind are often used to mark the boundaries of health and illness in late life, and shape responses accordingly. Our concern is that both the taken for granted and the ‘imagined’ can further marginalise persons who occupy the locations of dementia and disablement. This article analyses the extent to which frailty and dementia are better understood in the context of new forms of insecurity affecting the life course. Drawing on the concept of ‘precarity’, this article shifts debates on the ‘fourth age’ away from age or stage‐based thinking, into a recognition of the shared vulnerability and responsibilities for care. The argument of this article is that ‘precarity’ represents a ‘new form of ageing’, notably as regards its impact on the upper extremes of the life course. The article concludes with a call for a response that is grounded in an acknowledgement of the fragility and limitations which affect human lives, this requiring grounding in inclusive forms of citizenship.

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Section: Precarity As a Means To Reconsider Experiences Of Dementiamentioning

confidence: 99%

Precarity in late life: rethinking dementia as a ‘frailed’ old age

Grenier

Lloyd

Phillipson

2017

Sociology Health & Illness

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“…19 Disability rights activists must therefore continue to strategize how to convince a broader coalition of citizens to support the legislation and invest in long-term care as a vital public good. One way to do so is to emphasize the reality that anyone can become disabled at any time (see Knight 2013). The experience of disability is not unique to a specific group of people since everyone is vulnerable to impairment at varying degrees at different points along the life cycle.…”

Section: Discussionmentioning

confidence: 99%

Unfinished business: deinstitutionalization and Medicaid policy

Knight

2020

Politics, Groups, and Identities

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Deinstitutionalization heavily implicates Medicaid policy since waivers for home and community-based services have provided the means to realize the community integration mandate of the Americans with Disabilities Act (1990) and the Supreme Court's Olmstead (1999) decision. Despite tremendous advances toward community living, several components of Medicaid's design and implementation continue to create barriers for people with disabilities who want to live independently in the community. This article draws on knowledge produced from the lived experience of disability to identify five issues with Medicaid policy that prevent it from living up to the promise of the ADA and the Olmstead ruling: (1) institutional bias, (2) federalist structure, (3) work disincentives, (4) red tape and administrative burden, and (5) low reimbursement rates for personal care attendants. The wider implication of the analysis is that deinstitutionalization involves more simply closing institutions. Active measures to promote community integration are also vital.

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“…Although precarity has been widely used in other fields, in particular with regards to the workforce (Standing 2010), its application to ageing and late life is relatively new. To date the concept has been used to discuss ageing and employment (Bohle et al 2010), financial insecurity and/or exclusion of older people (Cracium and Flick 2014), disability and citizenship (Knight 2014), and to critique international trends in the G20 (Biggs 2014). In all cases, the use of precarity in gerontology and allied disciplines echo the broad application to issues of exploitation and insecurity in the labour market.…”

Section: Section Ii: Precarity As a Means To Reconsider Experiences Omentioning

confidence: 99%

Precarity in late life: rethinking dementia as a ‘frailed’ old age

Grenier

Lloyd

Phillipson

2017

Ageing, Dementia and the Social Mind

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"This is the pre-peer reviewed version of the following article: Grenier, A., Lloyd, L., and Phillipson, C. (2017 AbstractUnderstandings and approaches to ageing that are organized around productivity, success, and active late life have contributed to views of dementia as an unsuccessful, failed or 'frailed' old age. Operating through dominant frameworks, socio-cultural constructs and organizational practices, the 'frailties' of the body and mind are often used to mark the boundaries of health and illness in late life, and shape responses accordingly. Our concern is that both the taken for granted and the 'imagined' can further marginalize persons who occupy the locations of dementia and disablement. This paper analyses the extent to which frailty and dementia are better understood in the context of new forms of insecurity affecting the life course. Drawing on understandings of 'precarity', we shift debates on the 'fourth age' away from age-or stage-based thinking, into a recognition of shared vulnerability and a responsibility for care. We argue that 'precarity' represents 'new ageing'-in particular as one progresses to the upper extremes of the life course. Pairing our analysis with a consideration of inclusive forms of citizenship, we 2 conclude with a call for a response that is grounded in an acknowledgement of fragility and limitation, and not the denial or distinction from it. Abstract Word count: 198Article Word count: 7503

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Disability as Vulnerability: Redistributing Precariousness in Democratic Ways

Cited by 25 publications

References 8 publications

Precarity in late life: rethinking dementia as a ‘frailed’ old age

Precarity in late life: rethinking dementia as a ‘frailed’ old age

Unfinished business: deinstitutionalization and Medicaid policy

Precarity in late life: rethinking dementia as a ‘frailed’ old age

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