Disability, affect theory, and the politics of breathing: the case of muscular dystrophy

Abrams, Thomas; Thille, Patricia; Gibson, Barbara E.

doi:10.1057/s41286-021-00125-0

Subjectivity

2021

DOI: 10.1057/s41286-021-00125-0

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Disability, affect theory, and the politics of breathing: the case of muscular dystrophy

Thomas Abrams

Patricia Thille

Barbara E. Gibson

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2024

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“No-one’s contribution is more valid than another’s”: Committing to inclusive democratic methodologies

Liddiard,

Atkinson,

Evans

et al. 2024

Research in Education

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In this article, we explore the power and potential of democratic research methodologies in and beyond Critical Disability Studies research contexts. We centre two funded co-produced, participatory and arts-informed projects that have been co-designed and co-led with disabled young people and people living with chronic (respiratory) illness. We critically explore some key processes, which we suggest can mitigate forms of disablism and ableism inherent to research processes which traditionally make them undemocratic spaces of inequity. Our paper offers original analyses into the very notion of democratic research which have significant applications; driven as they are by the presence of disability. These include (i) Crip time - the recognition of (disabled) people’s need for flexible forms of time; (ii) virtual methods and intimacies as routes to equity in research leadership; and (iii) flexible and slow/er research approaches. We also draw upon the ways in which the Covid-19 global pandemic has reshaped methodologies and approaches to inquiry. We advocate that, as research communities, we must come together to keep hold of these new inclusive and hybridised ways of relating and engaging in what are problematically framed as “post-Covid” times. We conclude by emphasising the importance of always committing to disrupting power dynamics through centring flexibility, accessibility and inclusivity across our inquiry with marginalised others.

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“No-one’s contribution is more valid than another’s”: Committing to inclusive democratic methodologies

Liddiard,

Atkinson,

Evans

et al. 2024

Research in Education

View full text Add to dashboard Cite

show abstract

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Disability, affect theory, and the politics of breathing: the case of muscular dystrophy

Cited by 1 publication

References 25 publications

“No-one’s contribution is more valid than another’s”: Committing to inclusive democratic methodologies

“No-one’s contribution is more valid than another’s”: Committing to inclusive democratic methodologies

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