Directing citizens to create advance directives

Haesen, Sophie; Shaw, David

doi:10.4414/smw.2018.14628

Cited by 6 publications

(5 citation statements)

References 20 publications

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“…As a general matter, a significant segment of the population is not prepared to tackle EoL care issues, as exemplified by the low rates of execution of advance directives [69]. Indeed, Haesen and Shaw [70] reported reasons for not executing advance directives which are similar to the ones given in our study by those who declined to participate. In this sense, the high prevalence of either denial concerning future death, or inability to confront one's mortality may pose impediments to improving EoL care, and may warrant a separate investigation as to the meaning and implications of such feelings.…”

Section: Study Limitations and Future Researchsupporting

confidence: 74%

After providing end of life care to relatives, what care options do family caregivers prefer for themselves?

Cohen‐Mansfield

Brill

2020

PLoS ONE

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Section: Study Limitations and Future Researchsupporting

confidence: 74%

After providing end of life care to relatives, what care options do family caregivers prefer for themselves?

Cohen‐Mansfield

Brill

2020

PLoS ONE

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“…After that, in all 3 countries, continuous advancements were made concerning the financing, education, and implementation strategies for palliative care. Legal regulations about end-of-life decisions and advance health care declarations were first passed in 2006 in Austria [ 36 ], followed by Germany in 2009 [ 37 ] and Switzerland in 2013 [ 38 ]. The provision granted patients a higher degree of autonomy in their health care decisions.…”

Section: Resultsmentioning

confidence: 99%

Trends and Patterns in the Public Awareness of Palliative Care, Euthanasia, and End-of-Life Decisions in 3 Central European Countries Using Big Data Analysis From Google: Retrospective Analysis

Huemer¹,

Jahn-Kuch²,

Hofmann³

et al. 2021

J Med Internet Res

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Background End-of-life decisions, specifically the provision of euthanasia and assisted suicide services, challenge traditional medical and ethical principles. Austria and Germany have decided to liberalize their laws restricting assisted suicide, thus reigniting the debate about a meaningful framework in which the practice should be embedded. Evidence of the relevance of assisted suicide and euthanasia for the general population in Germany and Austria is limited. Objective The aim of this study is to examine whether the public awareness documented by search activities in the most frequently used search engine, Google, on the topics of palliative care, euthanasia, and advance health care directives changed with the implementation of palliative care services and new governmental regulations concerning end-of-life decisions. Methods We searched for policies, laws, and regulations promulgated or amended in Austria, Germany, and Switzerland between 2004 and 2020 and extracted data on the search volume for each search term topic from Google Trends as a surrogate of public awareness and interest. Annual averages were analyzed using the Joinpoint Regression Program. Results Important policy changes yielded significant changes in search trends for the investigated topics. The enactment of laws regulating advance health care directives coincided with a significant drop in the volume of searches for the topic of euthanasia in all 3 countries (Austria: −24.48%, P=.02; Germany: −14.95%, P<.001; Switzerland: −11.75%, P=.049). Interest in palliative care increased with the availability of care services and the implementation of laws and policies to promote palliative care (Austria: 22.69%, P=.01; Germany: 14.39, P<.001; Switzerland: 17.59%, P<.001). The search trends for advance health care directives showed mixed results. While interest remained steady in Austria within the study period, it increased by 3.66% (P<.001) in Switzerland and decreased by 2.85% (P<.001) in Germany. Conclusions Our results demonstrate that legal measures securing patients’ autonomy at the end of life may lower the search activities for topics related to euthanasia and assisted suicide. Palliative care may be a meaningful way to raise awareness of the different options for end-of-life care and to guide patients in their decision-making process regarding the same.

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“…Normalising the culture of engaging in organ donation conversations includes understanding the potential challenges surrounding end-of-life care and how they are associated with organ donation. The UK framework is based on the belief that organ donation "should be viewed as part of end-of-life care" (Murphy and Smith 2012), which entails integrating organ donation conversations into longer term advance care planning (ACP) conversations (Haesen and Shaw 2018;Matesanz et al 2017Matesanz et al , 1451. ACP generally provides the opportunity for people to express their treatment preferences that would apply in times of future incapacity according to their beliefs and values.…”

Section: Implications For Law and Clinical Practicementioning

confidence: 99%

Remapping the organ donation ethical climate: a care ethics consideration

Chan

2019

Med Health Care and Philos

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Organ donation has gained much attention as the need for transplant exceeds the supply of organs. Various proposals have been put forward to address the organ shortage challenge, ranging from offering incentives to donors, addressing family refusals to donations and instituting presumed consent laws. Presumed consent as the favoured approach has not been universally effective in increasing actual transplants despite its appeal. Few considerations have been given to the broader ethical climate influencing the organ donation debate. This paper examines the ethical climate surrounding organ donation and identifies the challenges existing within such environments. It explores care ethics and its application to the donation system, demonstrating how it can influence the organ donation phases. The conclusion drawn from the analysis is that a caring ethical climate in the pre, during and post-transplant system respects donor autonomy, addresses family reluctance to agree to donation, facilitates the needs of the donee and creates an environment that promotes non-maleficence for all stakeholders.

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Directing citizens to create advance directives

Cited by 6 publications

References 20 publications

After providing end of life care to relatives, what care options do family caregivers prefer for themselves?

After providing end of life care to relatives, what care options do family caregivers prefer for themselves?

Trends and Patterns in the Public Awareness of Palliative Care, Euthanasia, and End-of-Life Decisions in 3 Central European Countries Using Big Data Analysis From Google: Retrospective Analysis

Remapping the organ donation ethical climate: a care ethics consideration

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