Direct-to-consumer genetic testing and advertising: past, present, and future

Pirzadeh, Sara; Pritzlaff, Mary

doi:10.1016/s1548-5315(11)70404-1

Cited by 1 publication

(1 citation statement)

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“…DTC genetic testing and the companies offering the tests have not been regulated by a central authority (Gollust et al 2002), although individual states began crafting regulations in mid 2008 (Pirzadeh and Pritzlaff 2010). Furthermore, the advertising is not regulated, opening the possibility that unfounded claims are being made (Williams-Jones 2006).…”

Section: Introductionmentioning

confidence: 99%

Media Coverage of Direct‐to‐Consumer Genetic Testing

Lynch¹,

Parrott

Hopkin

et al. 2011

Journal of Genetic Counseling

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Media coverage of Direct-to-Consumer (DTC) genetic testing shapes public perception of such testing. The purpose of this study was to determine and assess the themes presented by U.S. news media regarding DTC genetic testing. We performed a Lexis-Nexis search with the keywords "Direct-to-Consumer" and "genetic test" for news stories published from 2006-2009. The sample was coded on themes of genetic determinism, privacy, discrimination, validity, regulation, the Genetic Information Nondiscrimination Act (GINA), utility, and cost. Ninety-two news stories were included. Stories displayed moderate genetic determinism and were neutral about validity and utility. Stories indicated that insurance and employers were the most likely sources of discrimination, yet identified the physicians and DTC companies as groups most likely to violate privacy. Stories claimed lack of regulation would harm consumers, but most post-GINA stories did not discuss the law. The costs of tests were frequently included. The results of this study show a broad range of views toward DTC genetic testing and its potential impacts. The genetics community should be aware that the public has been exposed to multiple views of DTC genetic testing when discussing these tests.

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Section: Introductionmentioning

confidence: 99%