Dimensions of stress in parents of children with autistic spectrum disorder

Bakri, Amirah Hazwani; Rosli, Noor Aishah; Kasirun, Zarinah Mohd; Nasir, Mohd Hairul Nizam Md; Othman, Fazidah; Kasim, Tengku Sarina Aini Tengku

doi:10.7454/msk.v23i3.1146

Cited by 6 publications

(5 citation statements)

References 15 publications

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“…This study sought to explore the mothers' concerns and challenges regarding the life they experienced with their autistic children. As mentioned earlier, the interview involved three mothers with the following demographic information to provide the readers with some mental images about the participants: ), there are also challenges which emerge from the autistic traits that are present within the child as found in other studies (e.g., Dabrowska & Pisula, 2010;Bello-Mojeed et al, 2016;Bakri et al, 2019). Acknowledging autistic traits in children is vital because of the possible educational as well as mental health implications it can have and these must be addressed for their better school adaptation (Haraguchi et al, 2019).…”

Section: Findings and Discussionmentioning

confidence: 99%

“…A quantitative study by Bakri et al (2019) was conducted to evaluate the dimensions of stress in 52 parents of children with ASD using the Parenting Stress Index 4th Edition (PSI-4) covering two domains -child domain and parent domain. It was found that the respondents scored the highest for the distractibility/hyperactivity subscale in the child domain and highest for the depression subscale in the parent domain.…”

Section: Past Studiesmentioning

confidence: 99%

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‘Oh No, I have an Autistic Child?!’: Challenges of Mothers Regarding the Autistic Traits of their Children

Abdullah¹,

Baharudin²,

Wahab³

et al. 2022

IJARBSS

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Autism spectrum disorder (ASD) is defined as a complex developmental disorder which involves persistent challenges in social interaction, verbal/non-verbal communication, and restricted/repetitive behaviours. At present, the prevalence of ASD appears to be increasing globally, including in Malaysia. Parents of children with autism can find it difficult to cope and struggle with the demanding situations. This paper describes a case study that explores the perspectives of three mothers of ASD child. Face-to-face semi structured interviews were used to obtain their insights. Data were transcribed and analysed using the thematic analysis method. The interview revealed some challenges in relation to autistic traits which include: (i) one-way communication, (ii) alone, aloof and participate in silence, (iii) sensory issue such as super sensitive hearing, (iv) aggressive behaviour, (v) unique views, (vi) routine based, (vii) attention to details, (viii) obsessions, and (ix) moody and tantrum. The case study also unfolded that there is a need to promote the family capacity to assist mothers in raising their ASD child. Therefore, an appropriate treatment programmes in techniques for managing behavioural problems for mothers as the prime caregiver must be offered so that they are better placed to help their autistic child.

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Section: Findings and Discussionmentioning

confidence: 99%

Section: Past Studiesmentioning

confidence: 99%

‘Oh No, I have an Autistic Child?!’: Challenges of Mothers Regarding the Autistic Traits of their Children

Abdullah¹,

Baharudin²,

Wahab³

et al. 2022

IJARBSS

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“…For example, Lee [19] in their research on 30 parents of ASD children and 36 parents of typical children, discovered that the former group of parents recorded significantly higher parenting stress levels compared to the latter group. Furthermore, Bakri et al [20] evaluated the dimensions of stress in 52 parents of children with ASD using the Parenting Stress Index 4th Edition (PSI-4) and found that the respondents scored the highest for the distractibility/hyperactivity subscale in the child domain and highest for the depression subscale in the parent domain, suggesting that both child and parent characteristics contribute to parental stress.…”

Section: Literature Reviewmentioning

confidence: 99%

“…However, having an autistic child had forced them to view the academic route aspect of their child's development rather unconventionally. During the early stage of diagnosis, most of the mothers did not place high expectations on their child's academic abilities, but channeled their concerns towards their social traits, as research has found that autistic children have social complexities [20]. Because of this, the mothers placed more stress on building their child's social skills as they had observed that their children could not get along with their peers-they were not able to communicate and ended up playing alone.…”

Section: " Right Now I Would Like To Teach Her the Academic Aspect … ...mentioning

confidence: 99%

The challenges in raising autistic children: The voices of mothers

Abdullah

Mohd-Asraf

Ali

et al. 2022

IJERE

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<span>Autism spectrum disorder (ASD) is defined as a lifetime developmental disorder usually identified by social interaction impairment, communication deficits, and repetitive behavior. The cases of children detected with ASD are rising globally, including Malaysia. Parents, as the prime caregiver to these children, face numerous challenges due to what is entailed in taking care of their children. This paper describes a case study where we examined the views and experience of three mothers, each of whom has an ASD child. Data were gathered through face-to-face semi-structured interviews, after which they were transcribed and analyzed using the thematic analysis method. The mothers narrated that the challenges they encountered include the difficulty they had in initially accepting their child’s diagnosis; labelling and discrimination; phase-based temporal challenges; endless physical, emotional, and mental sacrifices; finding the strength and patience to deal with the situation; academic vs. non-academic struggles, as well as their own coping mechanisms. This paper concludes with the need to provide support for parents-especially mothers-to enable them to overcome their challenges and focus on the development of their autistic children.</span>

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“…For instance, some people avoid interacting with those children. Bakri et al (2019) aimed to explore the challenges faced by the parents of autistic children in Malaysia. Data was collected from 52 parents.…”

Section: Review Of Empirical Studiesmentioning

confidence: 99%

The Challenges Faced by the Parents of Autistic Children in Jordan

2020

JEP

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The present study aimed to explore the challenges faced by the parents of autistic children in Jordan. The researcher adopted a descriptive analytical approach. He selected a purposive sample that consists from 8 mothers and 6 fathers who have autistic children. Those parents were selected from a private centre for autism in Amman, Jordan. They were contacted and interviewed via the phone. Their answers were analysed. It was found that the parents of autistic children in Jordan face financial, social, marital and psychological challenges. For instance, some respondents suggested that providing special education is costly. Some respondents suggested that it's difficult for them to engage in social events and make visits to their friends and relatives. Some respondents suffer from stress. Some respondents reported that their children were misdiagnosed. The researcher recommends conducting studies about the impact of having an autistic child on siblings in Jordan.

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Dimensions of stress in parents of children with autistic spectrum disorder

Cited by 6 publications

References 15 publications

‘Oh No, I have an Autistic Child?!’: Challenges of Mothers Regarding the Autistic Traits of their Children

‘Oh No, I have an Autistic Child?!’: Challenges of Mothers Regarding the Autistic Traits of their Children

The challenges in raising autistic children: The voices of mothers

The Challenges Faced by the Parents of Autistic Children in Jordan

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