Dignity-preserving dementia care

Tranvåg, Oscar; Petersen, Karin Anna; Nåden, Dagfinn

doi:10.1177/0969733013485110

Cited by 62 publications

(70 citation statements)

References 46 publications

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“…The persons' communication capabilities might have been questioned by the nurses, for example by not addressing them as adults, or asking them whether what they said was true. This can be interpreted as the persons' communication being devalued by the nurses and might make persons with DD feel a lack of respect and dignity .…”

Section: Discussionmentioning

confidence: 99%

Conversations between persons with dementia disease living in nursing homes and nurses – qualitative evaluation of an intervention with the validation method

Söderlund

Cronqvist

Ternestedt

et al. 2015

Scandinavian Caring Sciences

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Living with dementia disease (DD) can include difficulties describing experiences of everyday lives, which can lead to withdrawal, social isolation or existential homelessness. Persons with DD living in nursing homes are mainly dependent on the nurses for establishing and maintaining relationships with those around them. It can be challenging for nurses to understand what a person with DD is trying to express and to make themselves understood in turn. The validation method is intended to facilitate communication with persons with DD, but to our knowledge, there have been no qualitative studies of how this influences persons' communication. This study aimed to illuminate the actions and reactions of persons with DD living in nursing homes in one-to-one conversations with nurses during 1 year of validation method training, as observed in videotapes. Four persons with DD were involved in videotaped conversations with four nurses who were participating in a validation method training programme. Videotapes with at least 5 months between the first and last recording were analysed and compared qualitatively. The findings are presented in four categories that were identified to various degrees in conversations at the beginning and at the end of the programme: being uninterested in or unable to answer questions, talking about more than one topic of conversation at the same time, trying to talk about what is on one's mind and speaking more freely about what is on one's mind. In the videotaped conversations at the end of the programme, the persons had the opportunity to use their remaining communication abilities. This may have been related to the development of the nurses' communication skills during the training programme, and so it is possible that persons with DD could benefit from communicating with nurses trained in the validation method.

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Section: Discussionmentioning

confidence: 99%

Conversations between persons with dementia disease living in nursing homes and nurses – qualitative evaluation of an intervention with the validation method

Söderlund

Cronqvist

Ternestedt

et al. 2015

Scandinavian Caring Sciences

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“…The results showed how healthcare professionals found advocating personal autonomy and integrity, a crucial foundation for dignity-preserving dementia care. However, among persons no longer able to make sound decisions, balancing individual choices and the duty of making choices on their behalf was perceived as dignifying, despite representing a paradoxical and ethical dilemma (Tranva˚g, Petersen, & Na˚den, 2013). Still, an understanding of crucial dignity-preserving aspects should include the perspectives of those experiencing dementia as well.…”

Section: On Dignity and Dementiamentioning

confidence: 99%

Crucial dimensions constituting dignity experience in persons living with dementia

2014

Self Cite

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Dignity is seen as an essential need, fundamental right, and inherent quality of each human being. There is however, a need for increased knowledge on crucial dimensions constituting dignity experience in persons living with dementia. This study explored personal dimensions of life which persons with dementia perceived crucial for experiencing dignity in their daily lives. Based on the findings of eight empirical sub-dimensions, three main dimensions crucial for constituting dignity experience, were identified through hermeneutical interpretation: A historical dignity-dimension, acknowledging one's own life-projects and life-history; an intrapersonal dignity-dimension, recognizing one's own human worth, and living according to internal values; and an interpersonal dignity-dimension, experiencing being part of a caring and confirming communion. Knowledge of dignity preservation should be a crucial foundation for future dementia care.

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“…Dignity is considered a component of quality of life (Tranvåg, Petersen, & Nåden, 2013). Nursing aims to improve the quality of life for people within the context of palliative care, which has the same goals as nursing (WHO, 2002) and is strongly tied to the concept of dignity (Burnier, 2017).…”

Section: Introductionmentioning

confidence: 99%

Concept analysis of dignity‐centered care for people with chronic progressive disease

Igai

2019

Japan Journal Nursing Sci

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Aim This concept analysis describes attributes, antecedents, and consequences of dignity‐centered care for people with chronic progressive disease. Methods Rodgers' method of concept analysis was used to clarify the concept's defining attributes. Databases searched were PubMed, MEDLINE, EMBASE, CINAHL, and Ichushi‐Web by NPO Japan Medical Abstracts Society, in English and Japanese, from 1976 to 2017. The combination of MESH and keywords used were (dignity), and (care), and (chronic disease) or (chronic illness). Results Three antecedents were identified: loss of physical function and reduced psychological capacity, independence and role; living with uncertainty of illness; and multi‐faceted distress. There were four attributes identified: bolstering self‐esteem, reducing multi‐faceted distress, continued relationship, and protecting individual's rights. Four consequences were identified: improved self‐esteem, relief from multi‐faceted distress, deepening the purpose and meaning of life, and maintaining and/or improving the quality of life. Conclusion Dignity‐centered care is defined as: care that results in improvement of self‐esteem, deepens purpose and meaning of life, maintains and improves quality of life and provides relief from multi‐faceted distress. This happens through protecting the individual's rights, bolstering self‐esteem and reducing multi‐faceted distress through continued relationships with family, friends, and providers. There is a need for continued involvement with those individuals who have lost physical function, psychological capacity, autonomy, and role. They live with uncertainty of illness and exhibit multi‐faceted distress. This concept is a fulcrum for patient and nurse reciprocity enabling both to realize greater integrity and respect, and is useful for nursing practice and research.

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Dignity-preserving dementia care

Cited by 62 publications

References 46 publications

Conversations between persons with dementia disease living in nursing homes and nurses – qualitative evaluation of an intervention with the validation method

Conversations between persons with dementia disease living in nursing homes and nurses – qualitative evaluation of an intervention with the validation method

Crucial dimensions constituting dignity experience in persons living with dementia

Concept analysis of dignity‐centered care for people with chronic progressive disease

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