Digital technology for early identification of exacerbations in people with cystic fibrosis

Wong, Chu-Hai; Smith, Sherie; Kansra, Sonal

doi:10.1002/14651858.cd014606.pub2

Cited by 8 publications

(6 citation statements)

References 62 publications

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“…134 The COVID-19 pandemic accelerated this focus with increasing data demonstrating the success of the approach in several domains specific to CF. [135][136][137] Recent UK data also highlight the shift in delivery of care from less inpatient to more outpatient care. 9 Although this flux is in place, hybrid models may commonly be used.…”

Section: Changing Setting For Delivery Of Carefrom Hospital To Homementioning

confidence: 99%

Evolution of nutritional management in children with cystic fibrosis – a narrative review

Smith,

Lowdon,

Noordhoek

et al. 2024

J Human Nutrition Diet

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Nutrition has played a central role in the management and outcomes of people with cystic fibrosis (pwCF) since the 1970s. Advances in therapies and practices in recent decades have led to a significant change in the patient landscape with dramatic improvements in life expectancy, as well as quality of life, bringing with it new issues. Historically, cystic fibrosis was a condition associated with childhood and malnutrition; however, changes in patient demographics, nutritional assessment and fundamental nutritional management have evolved, and it has become an increasingly prevalent adult disease with new nutritional challenges, including obesity. This paper aims to describe these changes and the impact and challenges they bring for those working in this field. Nutritional professionals will need to evolve, adapt and remain agile to the wider range of situations and support required for a new generation of pwCF. Specialised nutrition support will continue to be required, and it will be additionally important to improve and optimise quality of life and long‐term health.

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Section: Changing Setting For Delivery Of Carefrom Hospital To Homementioning

confidence: 99%

Evolution of nutritional management in children with cystic fibrosis – a narrative review

Smith,

Lowdon,

Noordhoek

et al. 2024

J Human Nutrition Diet

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Section: The Changing Role Of Physiotherapy Within Cf Carementioning

confidence: 99%

“…Self-monitoring, particularly spirometry, has been explored, with physiological data and symptom recognition proposing earlier identification of pulmonary exacerbation [ 9 23-25 undefined undefined ]. Self-monitoring, however, may be less accurate, leading to undetected worsening of health status [ 23 24 ]. Despite suggestions that self-monitoring is well used [ 24 26 ], uploading of digital data is poorly adhered to, and collecting data should be optimized based upon clinical usefulness [ 23 ].…”

Section: The Changing Role Of Physiotherapy Within Cf Carementioning

confidence: 99%

“…Self-monitoring, however, may be less accurate, leading to undetected worsening of health status [ 23 24 ]. Despite suggestions that self-monitoring is well used [ 24 26 ], uploading of digital data is poorly adhered to, and collecting data should be optimized based upon clinical usefulness [ 23 ]. Cox et al [ 27 ] highlighted in a systematic review that >50% of participants were noncompliant with data entry, with data upload considered burdensome, potentially intrusive, and a barrier to maintainability.…”

Section: The Changing Role Of Physiotherapy Within Cf Carementioning

confidence: 99%

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Revolutionizing Care: Unleashing the Potential of Digital Health Technology in Physiotherapy Management for People With Cystic Fibrosis

Morrison,

Saynor,

Kirk

et al. 2024

JMIR Rehabil Assist Technol

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This viewpoint paper explores the dynamic intersection of physiotherapy and digital health technologies (DHTs) in enhancing the care of people with cystic fibrosis (pwCF), in the context of advancements such as highly effective modulator therapies (HEMTs) that are enhancing life expectancy and altering physiotherapy needs. The role of DHTs, including telehealth, surveillance, home monitoring, and activity promotion, has expanded, becoming crucial in overcoming geographical barriers and accelerated by the recent pandemic. Physiotherapy, integral to CF care since 1946, has shifted towards patient-centred approaches, emphasising exercise training and a physically active lifestyle. The reduction in inpatient admissions due to HEMTs has led to increased homecare and virtual consultations, and DHTs have revolutionised service delivery, offering flexibility, selfmanagement, and personalised care options, however there is a need to comprehensively understand user experiences from both people with CF (pwCF) and physiotherapists. The paper highlights the essential exploration of user experiences to facilitate clinician adaptation to the digital requirements of modern clinical management, ensuring equitable care in the "Future Hospitals" arena. Identifying research gaps, the paper emphasises the need for a thorough evaluation of DHT utilisation in CF physiotherapy education, training, and self-monitoring, as well as the experiences of pwCF with virtual consultations, self-monitoring and remote interventions. Online group exercise platforms address historical challenges relating to infection control, but necessitate comprehensive evaluations of user experiences and preferences. Future-proofing DHTs within the physiotherapy management of CF demands a shift towards full integration, considering stakeholder opinions and addressing barriers. While DHTs have the potential to extend physiotherapy beyond the hospital, the paper stresses the importance of understanding user experiences, addressing digital poverty, and working towards more equitable healthcare access. A flexible approach in the 'future hospital' is advocated, emphasising the need for a nuanced understanding of user preferences and experiences to optimise the integration of DHTs in CF care.

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“…[12]. Dies hatte jedoch keine Auswirkungen auf den Bedarf an intravenösen Antibiotika-Gaben, die Entwicklung der Lungenfunktion oder die Lebensqualität.…”

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Smart-Technologies in der Kinderpneumologie und -allergologie

Knopek,

Lex

2024

Kinder- und Jugendmedizin

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ZUSAMMENFASSUNGIn der Medizin werden immer mehr digitale Anwendungen genutzt. Insbesondere der internationale Markt für medizinische Smart-Technologies wächst stetig und umfasst vielfältige Angebote, die von Apps bis zu mobilen Messgeräten reichen – sucht man jedoch deutschsprachige, für Kinder und Jugendliche geeignete Angebote, so ist die Auswahl deutlich geringer. Für die pädiatrische Pneumologie zeigen Studien erste vielversprechende Ergebnisse für den Einsatz von elektronischen Symptomtagebüchern, Smartphone-Spirometern und digitalen Inhalationshilfen. Digitale Hilfsmittel erhöhen die Therapieadhärenz bei Kindern mit Asthma. Im Bereich der pädiatrischen Allergologie sind vor allem Apps zur Pollenflugvorhersage weit verbreitet. Die Anwendung von Smart-Technologies könnte den Therapieerfolg bei verschiedenen Erkrankungen verbessern und die Versorgung in der pädiatrischen Pneumologie und Allergologie erleichtern. Aktuell steckt die Anwendung digitaler Anwendungen in diesem Bereich jedoch noch in ihren Anfängen, weshalb eine differenzierte Auswahl geeigneter Apps und Geräte nötig ist.

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Digital technology for early identification of exacerbations in people with cystic fibrosis

Cited by 8 publications

References 62 publications

Evolution of nutritional management in children with cystic fibrosis – a narrative review

Evolution of nutritional management in children with cystic fibrosis – a narrative review

Revolutionizing Care: Unleashing the Potential of Digital Health Technology in Physiotherapy Management for People With Cystic Fibrosis

Smart-Technologies in der Kinderpneumologie und -allergologie

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