Digital healthcare in cystic fibrosis. Learning from the pandemic to innovate future care (Commentary)

Elborn, J. Stuart

doi:10.1016/j.jcf.2021.09.003

Cited by 6 publications

(1 citation statement)

References 14 publications

(12 reference statements)

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“…The benefits of DHTs in CF care include reducing cross infection [ 39 ] and enabling interprofessional team management in areas with diverse geographic distances [ 7 ]. People with CF have responded positively to remote consultation, online exercise provision, and monitoring [ 8 12 13 ].…”

Section: The Use Of Dhts In the Physiotherapy Management Of Cfmentioning

confidence: 99%

Revolutionizing Care: Unleashing the Potential of Digital Health Technology in Physiotherapy Management for People With Cystic Fibrosis

Morrison,

Saynor,

Kirk

et al. 2024

JMIR Rehabil Assist Technol

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This viewpoint paper explores the dynamic intersection of physiotherapy and digital health technologies (DHTs) in enhancing the care of people with cystic fibrosis (pwCF), in the context of advancements such as highly effective modulator therapies (HEMTs) that are enhancing life expectancy and altering physiotherapy needs. The role of DHTs, including telehealth, surveillance, home monitoring, and activity promotion, has expanded, becoming crucial in overcoming geographical barriers and accelerated by the recent pandemic. Physiotherapy, integral to CF care since 1946, has shifted towards patient-centred approaches, emphasising exercise training and a physically active lifestyle. The reduction in inpatient admissions due to HEMTs has led to increased homecare and virtual consultations, and DHTs have revolutionised service delivery, offering flexibility, selfmanagement, and personalised care options, however there is a need to comprehensively understand user experiences from both people with CF (pwCF) and physiotherapists. The paper highlights the essential exploration of user experiences to facilitate clinician adaptation to the digital requirements of modern clinical management, ensuring equitable care in the "Future Hospitals" arena. Identifying research gaps, the paper emphasises the need for a thorough evaluation of DHT utilisation in CF physiotherapy education, training, and self-monitoring, as well as the experiences of pwCF with virtual consultations, self-monitoring and remote interventions. Online group exercise platforms address historical challenges relating to infection control, but necessitate comprehensive evaluations of user experiences and preferences. Future-proofing DHTs within the physiotherapy management of CF demands a shift towards full integration, considering stakeholder opinions and addressing barriers. While DHTs have the potential to extend physiotherapy beyond the hospital, the paper stresses the importance of understanding user experiences, addressing digital poverty, and working towards more equitable healthcare access. A flexible approach in the 'future hospital' is advocated, emphasising the need for a nuanced understanding of user preferences and experiences to optimise the integration of DHTs in CF care.

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Section: The Use Of Dhts In the Physiotherapy Management Of Cfmentioning

confidence: 99%

Revolutionizing Care: Unleashing the Potential of Digital Health Technology in Physiotherapy Management for People With Cystic Fibrosis

Morrison,

Saynor,

Kirk

et al. 2024

JMIR Rehabil Assist Technol

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Codevelopment of a model of care for adults living with cystic fibrosis‐related diabetes

Kumar,

Pallin,

Soldatos

2024

Pediatric Pulmonology

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BackgroundCystic fibrosis (CF) related diabetes affects up to half of all adults with CF and is associated with higher morbidity and mortality. Our aim is to codevelop an ideal model of care that integrates diabetes technology and better meets the needs of adults living with the condition to improve attendance, engagement, service satisfaction, and clinical outcomes.MethodsUsing qualitative research methods, we evaluated disease perceptions, barriers, and enablers to optimal CF‐related diabetes management and service delivery. Integration of continuous glucose monitoring (CGM) was also explored. An initial broad purposive consumer survey was followed by focus groups with end‐users. Grounded theory approach was utilized with major problem areas identified then explored, coded, and grouped into requisites for an “ideal model of care” for adults living with CF‐related diabetes.ResultsTwo key themes emerged (i) an ideal model of care consisted of a dual‐specialty service co‐led by endocrinology and CF physicians and supported by diabetes educator and CF dietitian with a goal to provide consistent and personalized diabetes management and (ii) CGM was acceptable for use in adults with CF‐related diabetes with many perceived benefits and should be integrated into the model of care. Barriers to optimizing glycemic control included diet, finger‐prick testing, reduced access to CGM, and pulmonary exacerbations. End‐user feedback on CGM was overwhelmingly positive with regard to operability. CGM was also identified as a tool that could be used to engage, educate, and empower adults living with CF‐related diabetes and facilitate constructive and personalized clinical decision‐making by healthcare providers.ConclusionFor adults living with CF, a diagnosis of diabetes is associated with increased treatment burden. Our findings suggest an “ideal model of care” for CF‐related diabetes would be co‐led by endocrinology services integrated within a pre‐existing CF service, incorporating CGM.

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The Impact of COVID-19 in Cystic Fibrosis

Flume

Saiman

Marshall

2022

Archivos de Bronconeumología

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Digital healthcare in cystic fibrosis. Learning from the pandemic to innovate future care (Commentary)

Cited by 6 publications

References 14 publications

Revolutionizing Care: Unleashing the Potential of Digital Health Technology in Physiotherapy Management for People With Cystic Fibrosis

Revolutionizing Care: Unleashing the Potential of Digital Health Technology in Physiotherapy Management for People With Cystic Fibrosis

Codevelopment of a model of care for adults living with cystic fibrosis‐related diabetes

The Impact of COVID-19 in Cystic Fibrosis

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