Digital Health Interventions for Adolescent and Young Adult Cancer Survivors

Devine, Katie A.; Viola, Adrienne; Coups, Elliot J.; Wu, Yelena P.

doi:10.1200/cci.17.00138

Cited by 125 publications

(107 citation statements)

References 78 publications

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“…The current review found high levels of positive attitudes and perceptions and few concerns regarding the use of digital health interventions among youth and young adults, consistent with previous investigations that demonstrated acceptability, feasibility, and satisfaction with these approaches across a broad range of outcomes . Similarly, these findings are congruent with a recent review of digital health interventions for AYA cancer survivors, which demonstrated feasibility and acceptability across a broad array of modalities to improve health behaviors and enhance emotional well‐being . Nevertheless, the findings should be considered tentative as they were exploratory in nature.…”

Section: Discussionsupporting

confidence: 88%

“…While previous narrative and systematic reviews have reported on digital interventions in AYA cancer patients and survivors, there has not been a systematic review of mHealth and eHealth interventions that spans the continuum of childhood cancer treatment and survivorship, including both youth undergoing cancer treatment and childhood, adolescent, and young adult survivors of childhood cancer. More specifically, a previous narrative review conducted by Devine et al examined digital health interventions targeting AYA cancer survivors . McCann et al conducted a systematic review focused on digital health interventions developed specifically for adolescents and young adults living with or beyond a cancer diagnosis .…”

Section: Introductionmentioning

confidence: 99%

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eHealth and mHealth interventions in pediatric cancer: A systematic review of interventions across the cancer continuum

et al. 2019

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Objectives: The primary objectives were to (a) identify current published research in electronic health (eHealth) and mobile health (mHealth) interventions for youth undergoing cancer treatment and child, adolescent, and young adult survivors of childhood cancer and (b) critically appraise the current scientific evidence on their effectiveness and efficacy. As an exploratory aim, we identified pediatric cancer patients' and survivors' perceptions, attitudes, and concerns related to eHealth and mHealth interventions. Methods: A comprehensive search of the literature was performed to identify peerreviewed journal articles that included the use of mHealth and eHealth interventions among youth receiving active cancer treatment and survivors of childhood cancer through the age range of childhood to young adulthood (mean age 21 years or younger at the time of diagnosis; mean age 39 years or younger at the time of intervention). The search was conducted via six electronic databases: PubMed, CINAHL, EMBASE, PsycINFO, IEEEXplore and the Cochrane Library.Results: Of the 1879 potential records examined, 21 met criteria for inclusion for a total of 1506 participants. Of the investigations included, 13 were randomized controlled trials, and eight were nonrandomized studies. Findings demonstrated feasibility as well as acceptability with these approaches. Evidence of efficacy for interventions targeting emotional distress, health behaviors, health outcomes, and neurocognitive functioning was mixed. Conclusions:Given the growing evidence of efficacy, coupled with increasing access to digital technologies, eHealth and mHealth may serve an important role in improving mental and physical health outcomes of youth undergoing cancer treatment and child, adolescent, and young adult survivors of childhood cancer. K E Y W O R D Sadolescent, cancer, childhood, eHealth, emotional distress, mHealth, neurocognitive functioning, oncology, patient-reported outcomes, young adult

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Section: Discussionsupporting

confidence: 88%

Section: Introductionmentioning

confidence: 99%

eHealth and mHealth interventions in pediatric cancer: A systematic review of interventions across the cancer continuum

et al. 2019

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“…Technologies were categorised using a previously reported typology 51 : internet (eg, websites, forums, chat rooms and e-tools) (n=9) 13 16 23 26 33–35 37 46 ; social media (dedicated platforms, eg, YouTube, Twitter, Facebook and Instagram) (n=3) 47–49 ; mHealth (eg, mobile phone apps and text messaging) (n=14) 18 19 22 24 28 29 31 39–45 ; telehealth (eg, video conferencing and telephone consultations) (n=1) 17 ; interactive online treatment programmes (n=3) 14 15 50 ; and devices (eg, wearables and other devices/hardware) 25 30 32 (n=3). Five studies involved combinations of technologies.…”

Section: Resultsmentioning

confidence: 99%

Children and young people’s concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review

et al. 2020

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BackgroundThe use of patient-facing health technologies to manage long-term conditions is increasing; however, children and young people may have particular concerns or needs before deciding to use different health technologies.AimsTo identify children and young people’s reported concerns or needs in relation to using health technologies to self-manage long-term conditions.MethodsA scoping review was conducted. We searched MEDLINE, PsycINFO and CINAHL in February 2019. Searches were limited to papers published between January 2008 and February 2019. We included any health technology used to manage long-term conditions. A thematic synthesis of the data from the included studies was undertaken. We engaged children with long-term conditions (and parents) to support review design, interpretation of findings and development of recommendations.ResultsThirty-eight journal articles were included, describing concerns or needs expressed by n=970 children and/or young people aged 5–18 years. Most included studies were undertaken in high-income countries with children aged 11 years and older. Studies examined concerns with mobile applications (n=14), internet (n=9), social media (n=3), interactive online treatment programmes (n=3), telehealth (n=1), devices (n=3) or a combination (n=5). Children and young people’s main concerns were labelling and identity; accessibility; privacy and reliability; and trustworthiness of information.DiscussionThis review highlights important concerns that children and young people may have before using technology to self-manage their long-term condition. In future, research should involve children and young people throughout the development of technology, from identifying their unmet needs through to design and evaluation of interventions.

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“…8 Therefore, it is important for providers to employ appropriate methods of sharing health information, with special attention to the different needs of AYAs treated at pediatric versus adult care facilities, differentiated information needs between AYA patients and caregivers, differing levels of literacy, and preferred type of information. 21,42,43 AYAs can benefit from being educated about the fact that they need to be well informed to provide optimal self-care and management. This in itself is an important developmental goal of older adolescence and emerging adulthood.…”

Section: Evaluating and Sharing Digital Health Informationmentioning

confidence: 99%

Evaluating and providing quality health information for adolescents and young adults with cancer

Grace

Schweers

Anazodo

et al. 2019

Pediatric Blood & Cancer

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Adolescents and young adults (AYAs, 15-39 years old) are an ideal population to benefit from the ever-expanding number and variety of cancer information and health resources available via the Internet and other digital platforms. However, the ability of individual AYAs to fully utilize such resources depends on their degree of health literacy. Across the trajectory of cancer care, an important role for the oncology clinician is assisting AYAs and caregivers in accessing quality health information consistent with their level of health literacy. Working from the premise that all AYAs with cancer and their caregivers deserve to be empowered with maximal knowledge about their condition, this review provides information to assist oncology clinicians in (1) understanding the variety of contemporary online resources that are currently available, including their strengths and limitations; (2) evaluating the quality of health information; and (3) recommending specific health information resources to their AYA patients. K E Y W O R D S adolescent and young adult, health communication, health education, health information, health literacy, health promotion, patient education

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Digital Health Interventions for Adolescent and Young Adult Cancer Survivors

Cited by 125 publications

References 78 publications

eHealth and mHealth interventions in pediatric cancer: A systematic review of interventions across the cancer continuum

eHealth and mHealth interventions in pediatric cancer: A systematic review of interventions across the cancer continuum

Children and young people’s concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review

Evaluating and providing quality health information for adolescents and young adults with cancer

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