Digital behavioural interventions for people with sickle cell disease

Abstract

This is a protocol for a Cochrane Review (intervention). The objectives are as follows:To identify and assess the effects of digital behavioural interventions focused on behavioural change in people with SCD on: •medication adherence or disease management (such as managing acute and chronic pain), or both, on health-and other-related outcomes;• specific subgroups defined by age (i.e. children, adolescents and adults) and type of modality or delivery (e.g. cell phone, the Internet). BACKGROUND Description of the conditionSickle cell disease (SCD) is an inherited haemoglobin disorder affecting more than five million individuals globally; and annually affecting 250,000 to 300,000 live births worldwide (Piel 2013; Piel 2017). It is important to note that both prevalence and incidence are estimates and given that newborn screening does not exist in many countries, these numbers are likely underestimating the global burden of SCD. In the USA, SCD is