Diffuse Malignant Pleural Mesothelioma: Part II. Symptom Management

Cordes, Mary Ellen; Brueggen, Carol

doi:10.1188/03.cjon.545-552

Cited by 12 publications

(9 citation statements)

References 63 publications

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“…Nevertheless, the differences in QoL between patients with MPM and controls were moderate in terms of both Psychological Health and Environmental Health (Cohen’s D = 0.53 [for Environmental Health] to 0.64 [for Psychological Health]), with MPM patients complaining of poorer health. We did not directly investigate the presence of affective symptomatology, mood disturbances, and chronic pain, or emotions such as sadness, grief, anger, and anxiety 18. Such emotions may not have been associated only with illness per se, but possibly also with the fact that most of them were exposed to asbestos prior to the implementation of occupational safety standards – thus, patients and families may have felt anger towards employers who did not inform them of these types of environmental and workplace hazards 18.…”

Section: Discussionmentioning

confidence: 99%

“…We did not directly investigate the presence of affective symptomatology, mood disturbances, and chronic pain, or emotions such as sadness, grief, anger, and anxiety 18. Such emotions may not have been associated only with illness per se, but possibly also with the fact that most of them were exposed to asbestos prior to the implementation of occupational safety standards – thus, patients and families may have felt anger towards employers who did not inform them of these types of environmental and workplace hazards 18. Finally, it has been seen that patients and families have distress linked to lengthy legal battles, as they seek financial compensation from their employers for having developed an occupationally associated illness 18.…”

Section: Discussionmentioning

confidence: 99%

“…Such emotions may not have been associated only with illness per se, but possibly also with the fact that most of them were exposed to asbestos prior to the implementation of occupational safety standards – thus, patients and families may have felt anger towards employers who did not inform them of these types of environmental and workplace hazards 18. Finally, it has been seen that patients and families have distress linked to lengthy legal battles, as they seek financial compensation from their employers for having developed an occupationally associated illness 18. In the BLF survey of MPM patients and their caregivers, approximately one out of two patients with MPM reported feeling depressed some or most of the time since diagnosis, 67% of them reported feeling anxiety some or most of the time, and 59% reported feeling fear 8…”

Section: Discussionmentioning

confidence: 99%

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Quality of life and personality traits in patients with malignant pleural mesothelioma and their first-degree caregivers

Granieri

Tamburello²,

Tamburello³

et al. 2013

NDT

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Asbestos exposure causes significant pleural diseases, including malignant pleural mesothelioma (MPM). Taking into account the impact of MPM on emotional functioning and wellbeing, this study aimed to evaluate the quality of life and personality traits in patients with MPM and their first-degree caregivers through the World Health Organization Quality of Life–BREF (WHOQOL-BREF) and the Minnesota Multiphasic Personality Inventory-2 Restructured Form (MMPI-2-RF). The sample was composed of 27 MPM patients, 55 first-degree relatives enrolled in Casale Monferrato and Monfalcone (Italy), and 40 healthy controls (HC). Patients and relatives reported poorer physical health than the HC. Patients had a higher overall sense of physical debilitation and poorer health than relatives and the HC, more numerous complaints of memory problems and difficulties in concentrating, and a greater belief that goals cannot be reached or problems solved, while often claiming that they were more indecisive and inefficacious than the HC. First-degree relatives reported lower opinions of others, a greater belief that goals cannot be reached or problems solved, support for the notion that they are indecisive and inefficacious, and were more likely to suffer from fear that significantly inhibited normal activities than were HC. In multinomial regression analyses, partial models indicated that sex, physical comorbidities, and the True Response Inconsistency (TRIN-r), Malaise (MLS), and Behavior-Restricting Fears (BRF) dimensions of the MMPI-2-RF had significant effects on group differences. In conclusion, health care providers should assess the ongoing adjustment and emotional wellbeing of people with MPM and their relatives, and provide support to reduce emotional distress.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Quality of life and personality traits in patients with malignant pleural mesothelioma and their first-degree caregivers

Granieri

Tamburello²,

Tamburello³

et al. 2013

NDT

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“… 12 There is a perception that the pain and breathlessness experienced by people with mesothelioma are sometimes difficult to palliate. 13 The British Thoracic Society and the European Respiratory Society highlight the importance of palliative care provision to manage the symptoms of mesothelioma and offer emotional, psychological and spiritual support. 14 , 15 …”

Section: Introductionmentioning

confidence: 99%

Understanding the palliative care needs and experiences of people with mesothelioma and their family carers: An integrative systematic review

et al. 2021

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Background: People with mesothelioma and their families have palliative care needs throughout the relatively short trajectory of their illness. Aim: To describe the palliative care needs and experiences of people with mesothelioma and their family carers. Design: Integrative systematic review with narrative synthesis (PROSPERO: CRD42020190115). Data sources: MEDLINE, CINAHL, PsycINFO and the Cochrane Library were searched for articles published between 01 January 2000 and 10 May 2020. Articles were included if they presented empirical studies or comprehensive reviews including information about the palliative care needs and experiences of people with mesothelioma and their family carers. Results: The search yielded 508 articles, 14 were included in the analysis. A cross cutting theme of ‘uncertainty’ was identified encompassing five themes: (1) organisation and co-ordination of services, (2) communication and information needs, (3) management of care needs and high symptom burden, (4) consideration of the impact of seeking compensation and (5) family carer needs. Our findings demonstrate that people with mesothelioma want a co-ordinated, team-based approach to palliative care with a named point of contact. Whilst carers value and benefit from early referral to specialist palliative care, this does not necessarily reflect the outcomes and views of patients. Conclusion: The evidence base around the palliative care needs and experiences of people with mesothelioma and their carers needs to be strengthened. The results of this review support the need to develop a greater understanding about the role non-specialist palliative care clinicians’ play in providing generalist palliative care for people with mesothelioma and their carers.

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“…The disease progresses rapidly, and death often comes as early as 9‐12 months after diagnosis for pleural forms of mesothelioma—even sooner for peritoneal forms of MM . Physical symptoms are generally very intense and debilitating for MM patients, including chest pain, breathlessness, and fatigue . Moreover, the severity of these medical conditions—together with the awareness of the occupational and “unnatural” origins of the disease have been linked to psychological distress among MM patients, as well as workers who have been exposed to asbestos in the workplace …”

Section: Introductionmentioning

confidence: 99%

The psychological distress and care needs of mesothelioma patients and asbestos‐exposed subjects: A systematic review of published studies

Bonafede

Ghelli

Corfiati

et al. 2018

American J Industrial Med

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This paper highlights the paucity of studies on the psychological distress and care needs of mesothelioma patients and asbestos-exposed subjects. It confirms that malignant mesothelioma is associated with the physical, emotional, and social functioning of patients, while also suggesting that the risk of developing asbestos-related diseases among asbestos-exposed subjects is associated with high levels of psychological distress, despair, and mental health difficulties.

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Diffuse Malignant Pleural Mesothelioma: Part II. Symptom Management

Cited by 12 publications

References 63 publications

Quality of life and personality traits in patients with malignant pleural mesothelioma and their first-degree caregivers

Quality of life and personality traits in patients with malignant pleural mesothelioma and their first-degree caregivers

Understanding the palliative care needs and experiences of people with mesothelioma and their family carers: An integrative systematic review

The psychological distress and care needs of mesothelioma patients and asbestos‐exposed subjects: A systematic review of published studies

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