Difficulty in returning to school among adolescent leukemia survivors: A qualitative descriptive study

An, Hyeran; Lee, Sunhee

doi:10.1016/j.ejon.2018.12.008

Cited by 16 publications

(25 citation statements)

References 20 publications

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“…Among the 33 qualitative studies, 33,96–127 all findings were expressed as themes or categories. The number of themes ranged from 2 to 12, and at least one theme focused on body image.…”

Section: Resultsmentioning

confidence: 99%

Body image among adolescents and young adults diagnosed with cancer: A scoping review

et al. 2021

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Objective Cancer and treatment can produce temporary or permanent body changes, which may affect the body image (BI) of adolescents and young adults diagnosed with cancer (AYAs). This evidence has not been comprehensively summarized. A scoping review was conducted to explore the available evidence on BI among AYAs and identify the definitions, theories, models, frameworks, measures, and methods used to assess BI. Methods Databases MEDLINE, EMBASE, PsycINFO (via Ovid) and CINAHL and Gender Studies (via EBSCO) were searched to identify published studies from 1 January 2000 to 25 November 2019. Inclusion criteria were: qualitative, quantitative, or mixed methodology; at least one BI‐related measure or theme; published in English; and majority of the sample between 13 and 39 years at diagnosis and a mean age at diagnosis between 13 and 39 years. Two authors screened the titles, abstracts, and full‐text articles and data were extracted and summarized. Results The search yielded 11,347 articles and 82 met inclusion criteria. Articles included 45 quantitative, 33 qualitative, and four mixed‐methods studies. The majority of studies used cross‐sectional designs, while BI definitions, theories, models, frameworks, and measures were varied. Studies explored descriptive, psychological, physical, coping, and social factors, with BI being described most often as an outcome rather than a predictor. Conclusions Theory‐based research that employs a holistic BI definition and uses longitudinal or intervention study designs or a qualitative methodology is needed to better understand the BI experience of AYAs and inform the development of strategies and programs to reduce BI concerns and increase positive body experiences.

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“…Among the 33 qualitative studies, 33,96–127 all findings were expressed as themes or categories. The number of themes ranged from 2 to 12, and at least one theme focused on body image.…”

Section: Resultsmentioning

confidence: 99%

Body image among adolescents and young adults diagnosed with cancer: A scoping review

et al. 2021

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“…Sağ kalanlar okula geri dönüşte uyum sağlama konusunda kaygılanabilir. Okula dönüş konusunda yaşanan güçlükler arasında "arkadaş ilişkileriarkadaşlardan yabancılaşma duyguları", "akademik performans-ders çalışma konusunda güçlük" (16,17), "akranlarından farklı olmak", "gelecek konusunda belirsizlik duyguları" bildirilmiştir (17). Sağ kalanlarda kaygı ve sosyal geri çekilme de görülen sorunlar arasındadır.…”

Section: Sağ Kalanların Sosyal Yaşama Uyumlarının Desteklenmesiunclassified

Long-Term Follow-Up of Childhood Cancer Survivors and Nurse’s Role

Arpaci

Altay

2021

Dokuz Eylül Üniversitesi Hemşirelik Fakültesi Elektronik Dergisi

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Tuba ARPACİ*, Naime ALTAY ** Öz Çocukluk çağı kanserlerinde 5 yıllık sağkalım oranları önemli ölçüde artmış ve sağ kalanların fiziksel ve psikososyal sağlığının sürdürülmesi ön plana çıkmıştır. Sağ kalan çocuk ve adölesanlar uzun dönemde kanserin kendisi ve tedavi maruziyetine bağlı birçok sorunla karşılaşmaktadır. Tedavinin tamamlanmasından yıllar sonra dahi ortaya çıkabilen kardiyak, endokrin, nörolojik, bilişsel, psikolojik ve sosyal geç etkiler sağ kalanların yaşamında önemli kısıtlılıklara neden olabilmektedir. Uzun süreli izlemler ile geç etkilerin önlenmesi ve erken dönemde saptanması, çocuğun fiziksel ve psikososyal gereksinimlerinin karşılanması, çocuk ve ailenin sosyal yaşama uyumu ve çocuğun ikincil risklerden korunması için sağlıklı yaşam tarzının kazandırılması amaçlanmaktadır. İzlemlerin etkin bir şekilde sürdürülmesi için kanıt temelli yaklaşımlara dayandırılması ve multidisipliner ekip tarafından yürütülmesi gerekmektedir. Sağ kalanlara uzun dönemde bütüncül ve aile merkezli bakımın sunulmasında pediatri hemşiresi önemli role sahiptir. Hemşire standart rehberler ışığında oluşturduğu bireyselleştirilmiş bakım planlarıyla sağ kalanların gereksinimlerinin karşılanmasını sağlamaktadır. Bu makalede çocukluk çağı kanserlerinden sağ kalanlarda izlemin önemi, kapsamı ve izlemlerde hemşirenin rolü ele alınmıştır.

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“…Support received during the transplant admission is directly related to psychosocial outcomes post-transplant [ 24 , 25 , 26 , 27 , 28 , 29 ]. In children, psychological effects from a transplant may be long lasting, and can make it difficult for children to emotionally re-integrate back into their normal life and return to school [ 4 , 14 , 30 , 31 ]. However, evidence indicates children can adapt and return to their pre-transplant quality of life within 2 years, given the right psychosocial and palliative care [ 32 ] support during transplantation [ 8 , 22 , 33 ].…”

Section: Introductionmentioning

confidence: 99%

Audit of Psychosocial and Palliative Care Support for Children Having Allogeneic Stem Cell Transplants at the New Zealand National Allogeneic Transplant Centre

et al. 2021

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Psychosocial and palliative care support during stem cell transplants (SCT) is known to improve outcomes. Aim: evaluate the support provided to children and families at the New Zealand National Allogeneic Stem Cell Transplant unit (NATC). Method: the psychosocial and palliative care support for children who received SCT between December 2012 and April 2018 was audited. Results: of the 101 children who received SCT, 97% were reviewed by the social work team (SW) and 82% by the psychiatric consult liaison team (CLT) at least once during their illness. However, pre-transplant psychological assessment only occurred in 16%, and during the SCT admission, only 55% received SW support, and 67% received CLT support. Eight out of eighty-five families (9%) were offered support for siblings. Eight of the sixteen children who died were referred for pediatric palliative care (PPC) with all supported and half the families who experienced a death (n = 8; 50%) received bereavement follow up. Conclusion: although the majority received some social work and psychological support, auditing against the standards suggests the consistency of involvement could be improved. Referrals for PPC were inadequate and largely for end-of-life phase. Sibling support, in particular donor siblings, had insufficient psychological assessment and support. Key recommendations are provided to address this underperformance.

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Difficulty in returning to school among adolescent leukemia survivors: A qualitative descriptive study

Cited by 16 publications

References 20 publications

Body image among adolescents and young adults diagnosed with cancer: A scoping review

Body image among adolescents and young adults diagnosed with cancer: A scoping review

Long-Term Follow-Up of Childhood Cancer Survivors and Nurse’s Role

Audit of Psychosocial and Palliative Care Support for Children Having Allogeneic Stem Cell Transplants at the New Zealand National Allogeneic Transplant Centre

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