Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: An exploratory comparative design

Caregiver attributes and socio-demographic determinants of caregiving burden in selected low-income communities in cape town, South Africa

“…The literature suggests that caregiving duties affect the level of income resulting from reduced hours of work or stopping work completely [31]. For activities of daily living, other studies show that greater impairment of care recipients is associated with a higher burden of caregiving [27,32].…”

A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being

“…With regard to adult-child caregivers, four (delusions, agitation, disinhibition, and appetite/eating change) of the eight behaviors reported by Conde-Sala et al (2010) as being significantly associated with burden were also found to be significantly associated with burden by Allegri et al (2006). Apathy and irritability were reported to be significantly associated with burden in the study conducted by Conde-Sala et al (2010), but no significant relationship was reported by Allegri et al (2006). Spousal caregivers only found appetite/eating change burdensome (CondeSala et al, 2010).…”

“…Table 1. Meta-analysis of mean distress scores correlated with behaviors using NPI total scores Predictive data between BPSD and well-being Conde-Sala et al (2010), Chappell and Penning (1996), Davis and Tremont (2007), and Slachevsky et al (2013) used the same burden measure, but used different measures of BPSD. Apathy significantly predicted burden across three studies, although it was less burdensome for adult-child caregivers and did not predict apathy in the study by Davis and Tremont (2007).…”

Severity of Dementia, Anosognosia, and Depression in Relation to the Quality of Life of Patients with Alzheimer Disease: Discrepancies Between Patients and Caregivers

“…Among caregivers, poorer ratings of QoLp have been shown to be associated with functional deficits (10,11) and behavioral disorders (3,9) in the patient and with burden (3) and depression (12,13) in the caregiver. Some authors have also reported that perceptions of QoLp are affected by sociodemographic and contextual factors such as the caregiver's gender (14), his or her relationship to the patient, (15)(16)(17)) the patient's place of residence (2,3) or the environmental conditions. (18) Although the assessment of QoLp may be a valid and reliable indicator at any stage of the disease there are certain aspects which require careful consideration.…”

“…(18) Although the assessment of QoLp may be a valid and reliable indicator at any stage of the disease there are certain aspects which require careful consideration. One of the most important in this regard concerns the large discrepancy between patient and caregiver reports of quality of life, (3,19) this being particularly notable as the severity of dementia increases; (12)(13)(14)(15)(16)(17)(18)(19)(20) other factors to consider in this regard are the influence of depression (21) and reduced awareness of deficits (anosognosia) in the patient. (22)(23)(24)(25)(26) In light of the above the aims of the present study were as follows: 1) to determine the influence of severity of dementia, depression and anosognosia as regards the discrepancies between patient and caregiver reports of QoLp; and 2) to identify specific groups of patients associated with these discrepancies.…”