Different Length, Different Needs: Qualitative Analysis of Threads in Online Health Communities

Abstract

Online health communities provide a knowledge exchange platform for a wide range of diseases and health conditions. Informational and emotional support helps forum participants orient around health issues beyond in-person doctor visits. So far, little is known about the relation between the level of participation and participants' contributions in online health communities. To gain insights on the issue, we analyzed 456 posts in 56 threads from the Dermatology sub-forum of an online health community. While low participation threads ('short threads') revolved around solving an individual's health issue through diagnosis suggestions and medical advice, participants in high participation threads ('long threads') built collective knowledge and a sense of community, typically discussing chronic and rare conditions that medical professionals were unfamiliar with or could not treat effectively. Our results suggest that in short threads an individual's health issue is addressed, while in long threads, sub-communities about specific rare and chronic diseases emerge. This has implications for the user interface design of health forums, which could be developed to better support community building elements, even in short threads. CCS CONCEPTS• Human-centered computing → Empirical studies in collaborative and social computing; HCI theory, concepts and models.

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“…Similar issues have been raised in the context of other social media platforms by social computing and HCI researchers [14]. The fact that non-experts can freely give advice on health to a potential large audience has additional ethical and health implications [27]. Finally, data protection regulations vary across different world regions, and the terms of use of social media platforms also change, sometimes rapidly.…”