Differences in the experiences and perceptions of men and women with congenital heart defects: A call for gender-sensitive, specialized, and integrative care

Freilinger, Sebastian; Andonian, Caroline; Beckmann, Jürgen; Ewert, Peter; Kaemmerer, Harald; Lang, Nora; Nagdyman, Nicole; Oberhoffer‐Fritz, Renate; Pieper, Lars; Schelling, Jörg; Scheidt, Fabian von; Neidenbach, Rhoia

doi:10.1016/j.ijcchd.2021.100185

Cited by 3 publications

(5 citation statements)

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“…Notably, the study confirmed that hopelessness is more prevalent among male patients, a revelation that challenges stereotypes about emotional expression and coping mechanisms across genders (31). This could have profound implications for the psychological support structures designed for cardiac patients, emphasizing the need for gender-sensitive approaches (32).…”

Section: Discussionmentioning

confidence: 51%

Treatment Motivation and Hopelessness among Cardiac Patients

Ijaz,

Kanwal,

Javed

et al. 2024

JHRR

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Background: Cardiac patients' adherence to treatment regimens is crucial for their recovery and well-being. The role of psychological factors, including treatment motivation and hopelessness, in influencing treatment outcomes has gained increasing attention. Gender differences in these psychological aspects may have implications for tailoring patient care strategies. Objective: This study aimed to explore the differences in treatment motivation and hopelessness between male and female cardiac patients and to examine how these factors are related to demographic variables such as age, gender, education, and income. Methods: A total of 150 cardiac patients from the C-P-E Institute of Cardiology Multan were selected through purposive sampling for this cross-sectional study. The Treatment Motivation Questionnaire (TMQ) and the Beck Hopelessness Scale (BHS) were administered to assess treatment motivation and hopelessness, respectively. Data on demographic variables were also collected. Statistical analysis included mean, standard deviation, and t-tests. Results: The study found no significant difference in external motivation between females (mean=2.09, SD=0.35) and males (mean=2.02, SD=0.32, p=0.158). Internal motivation was significantly higher in males (mean=2.33, SD=0.27) compared to females (mean=2.23, SD=0.25, p=0.023). Help-seeking behavior was more prevalent in males (mean=2.45, SD=0.45) than in females (mean=2.28, SD=0.45, p=0.04). No significant difference was observed in confidence and overall treatment motivation between genders. Hopelessness was significantly higher in males (mean=12.05, SD=1.91) than in females (mean=11.43, SD=1.94, p=0.047). Conclusion: The study underscored significant gender differences in internal motivation and help-seeking behavior among cardiac patients, with males displaying higher levels of both. Additionally, males exhibited greater hopelessness than females. These findings suggest the need for gender-specific interventions to enhance treatment motivation and address hopelessness in cardiac patients.

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Section: Discussionmentioning

confidence: 51%

Treatment Motivation and Hopelessness among Cardiac Patients

Ijaz,

Kanwal,

Javed

et al. 2024

JHRR

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“…More comprehensive and realistic explanatory models could benefit researchers, clinicians, and CHD patients. The prevalence of CHD is estimated at 0.3% in the global population of approximately 4.4 billion adults, which translates to approximately 13 million adult CHD survivors worldwide [ 37 , 38 ]. Based on these figures, we can expect approximately 25,000 adults with CHD in Portugal.…”

Section: Discussionmentioning

confidence: 99%

From Illness to Resilience: Mediating Factors of Quality of Life in Patients with Congenital Heart Disease

Moedas,

Nunes,

Brito

et al. 2023

Rev. Cardiovasc. Med.

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Background: Congenital heart disease (CHD) is a leading cause of childhood morbidity, with an estimated prevalence of 0.8-1%. However, advances in diagnosis and treatment now allow 90% of childhood CHD patients to survive to adulthood, leading to increased interest in their quality of life (QoL). In this study, we examine the impact of clinical and psychosocial variables, including the number of surgical interventions (NSI), age at surgery, school achievement, and social support, as mediating factors of QoL in CHD patients. Methods: The study included 233 CHD patients (132 males) with an average age of 15.2 ± 2.07 years, including 80 with cyanotic CHD and 153 with acyanotic CHD. The severity of illness ranged from mild to severe, with 30 patients having a severe illness, 119 having a moderate illness, and 84 having a mild illness. One-hundred-sixty-three patients underwent surgery. Clinical data on diagnosis, the severity of CHD, the type of CHD, and surgical interventions were collected from patient records, and a semi-structured interview was conducted to explore the relationship between CHD diagnosis and various aspects of life. QoL was assessed using the Abbreviated World Health Organization Quality of Life questionnaire (WHOQOL-Bref) questionnaire. Results: Ten mediation models were analyzed, each with three hypotheses (paths). In all models the first hypothesis was supported. Analyses of the second and third hypotheses revealed three feasible models of mediation through the effect of NSI on QoL in CHD patients. Conclusions: Our findings indicate that patients with more severe and cyanotic CHD generally require more surgical interventions, which may increase the risk of negative outcomes and affect patients' perception of QoL. These results have important implications for healthcare providers and psychologists who work with childhood CHD patients.

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“…Dabei spielt für die weibliche Dominanz der PAH auch die geschlechterspezifische Häufigkeit der AHF eine wichtige Rolle. Männer haben tendenziell komplexere AHF [38,39] und eine höhere Prävalenz für Erkrankungen mit Aortenbeteiligung [35,40]. Bei Frauen konnte demgegenüber in den letzten Jahren eine höhere Inzidenz (Verhältnis Männer/Frauen = 0,75) [41] einfacher Shuntvitien (Vorhofseptumdefekt, Ventrikelseptumdefekt und atrioventrikulärer Septumdefekt) beobachtet werden, welche wiederum häufiger mit einer PAH assoziiert sind [42].…”

Section: Geschlechterspezifische Aspekteunclassified

“…Künftiger Forschungsbedarf besteht insbesondere hinsichtlich geschlechterspezifischen Behandlungsstrategien unter Berücksichtigung des soziokulturellen Geschlechtes („Gender“) 39 43 , da sich dieses ebenfalls relevant auf Manifestation, Epidemiologie und Pathophysiologie auswirken kann 44 . Da es sich bei geschlechterspezifischen Unterschieden um einen nicht modifizierbaren Risikofaktor handelt, scheint eine explizite Aufnahme in die Leitlinie unabdingbar.…”

Section: Geschlechterspezifische Aspekteunclassified

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Pulmonale arterielle Hypertonie bei Erwachsenen mit angeborenen Herzfehlern – Teil I

Kaemmerer,

Diller,

Dähnert

et al. 2023

Pneumologie

Self Cite

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ZusammenfassungDie Zahl der Erwachsenen mit angeborenen Herzfehlern (AHF) steigt ständig und liegt in Deutschland aktuell bei etwa 360.000. AHF sind häufig mit einer pulmonalarteriellen Hypertonie (PAH) assoziiert, die sich bei unbehandelten AHF teils schon frühzeitig entwickelt. Trotz einer zeitgerechten Behandlung des AHF persistiert eine PAH nicht selten bzw. entwickelt sich im höheren Lebensalter neu und ist mit erheblicher Morbidität und Letalität behaftet.Die überarbeiteten Leitlinien der European Society of Cardiology/European Respiratory Society 2022 für die Diagnose und Behandlung der PAH stellen einen wesentlichen Beitrag zur optimierten Versorgung der Betroffenen dar. Im vorliegenden Artikel soll der Abschnitt zur PAH assoziiert mit AHF aus den Leitlinien zusammengefasst und kommentiert werden.

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Differences in the experiences and perceptions of men and women with congenital heart defects: A call for gender-sensitive, specialized, and integrative care

Cited by 3 publications

References 21 publications

Treatment Motivation and Hopelessness among Cardiac Patients

Treatment Motivation and Hopelessness among Cardiac Patients

From Illness to Resilience: Mediating Factors of Quality of Life in Patients with Congenital Heart Disease

Pulmonale arterielle Hypertonie bei Erwachsenen mit angeborenen Herzfehlern – Teil I

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