Differences in specific concerns perceived by parents of children with cleft lip and/or palate based on the types of cleft

Abstract

With a worldwide prevalence of approximately 9.92 per 10,000 newborn births, 1 cleft lip and/or cleft palate (CL/P), which includes cleft lip only (CL), cleft lip and palate (CLP), and cleft palate only (CP), is one of the most common congenital orofacial anomalies in humans. 2 Japan reports the highest prevalence worldwide (20.4 per 10,000 births). 1 Children with CL/P experience effects on their speech, hearing, appearance, and cognition that can lead to long-lasting adverse outcomes for their health and social integration. 3 Recent research into the psychological influence of these adversities, such as behavioural problems,

Development and validation of the Brazilian Version of Lay Persons’ Social Judgements about Cleft-lip Scale (B-LSojCleft-S)

“…The scientific literature has reported that the greater the orofacial dysfunction, the greater the impairment of the quality of life of individuals with orofacial clefts. 26,27 Of the limitations found in this study, the response system adopted can be considered. This may have resulted in the ceiling and floor effects, however, it opens up the possibility of future studies to confirm or refute this hypothesis.…”