Dietary change for macular health of older people: Eating for Eye Health, a pilot community kitchens intervention

Gilbert, Rose; Rawlings, Ann; Dixon, Michael R.; Irving, Susana Couto; Sivaprasad, Sobha

doi:10.1016/s0140-6736(18)32186-x

Cited by 4 publications

(3 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Azərbaycan Respublikasında ixtisaslaşmış monoprofil mərkəzdə oftalmoloji xəstələrin profilaktikası, müalicəsi və reabilitasiyası sisteminin konseptual modelinin təkmilləşdirilməsi üçün prioritet istiqamətlərin daha əvvəl elmi cəhətdən əsaslandırılmasına baxmayaraq, ümumi göz patologiyasının dinamikasını öyrənmək üçün dövri monitorinqinin aparılması məqsədəuyğundur [6]. Bütün ölkədə və inzibati ərazilərdə yaşlı əhalinin strukturunda uzun müddət ərzində görmə orqanı xəstəliklərinin yeni aşkarlanmış hallarının və yayılmasının vəziyyətinin dövri monitorinqi profilaktik tədbirlərin, erkən diaqnostikanın və göz xəstəliklərinin ağırlaşmalarının qarşısının alınmasında səhiyyə orqanları üçün hər zaman məlumat bazası rolunu oynayır [7,8].…”

Section: Abstract: General Ophthalmopathology Glaucoma Cataract Myopi...unclassified

Azərbaycanda Yaşli Əhali̇ Arasinda Ümumi̇ Oftalmopatologi̇yanin Di̇nami̇kasinin Öyrəni̇lməsi̇nə Və Onun Azaldilmasi Yollarinin Axtarişina Dai̇r

2024

Azerbaijan Journal of Ophthalmology

View full text Add to dashboard Cite

Section: Abstract: General Ophthalmopathology Glaucoma Cataract Myopi...unclassified

Azərbaycanda Yaşli Əhali̇ Arasinda Ümumi̇ Oftalmopatologi̇yanin Di̇nami̇kasinin Öyrəni̇lməsi̇nə Və Onun Azaldilmasi Yollarinin Axtarişina Dai̇r

2024

Azerbaijan Journal of Ophthalmology

View full text Add to dashboard Cite

“…There is a high expectation among patients regarding the quality of communication between health care providers and themselves [28,29], and this is consistent with the shift in medicine toward patient-centered care. Thus, it has become the accepted best practice to engage patients in the design process of eye care interventions [30][31][32][33][34][35]. A study involving patients with retinitis pigmentosa, a relatively common phenotype within IRD, showed that engagement strategies significantly affected the vision-related quality of life and emotional health, with disengagement having a particularly negative effect [36].…”

Section: The Myeyesite Project: Patient Engagement Study Design and O...mentioning

confidence: 99%

Collaborative Research and Development of a Novel, Patient-Centered Digital Platform (MyEyeSite) for Rare Inherited Retinal Disease Data: Acceptability and Feasibility Study (Preprint)

Gilbert¹,

Sumodhee²,

Pontikos³

et al. 2020

Preprint

Self Cite

View full text Add to dashboard Cite

UNSTRUCTURED Background and aims: MyEyeSite is an early stage research collaboration between Moorfields Eye Hospital NHS Trust, Loft Digital, and UCL Institute of Ophthalmology, aiming to design and develop a digital platform for people with rare inherited retinal diseases (IRD), allowing patients, doctors and scientists to share specialist eye health data. The proposed infrastructure will greatly augment research by pooling this highly specific data, from consented patients, thereby quantifying patients’ conditions and accelerating research, by facilitating the planning of disease-specific trials to develop cost-effective treatments, such as gene therapies. Methods: Pilot feasibility study, informed by qualitative (focus groups and workshops) and quantitive data (survey) from IRD patient engagement activities involving fifty, and eight-two, participants, respectively. Results: 82% of participants with IRD were motivated to have a more active role in their eyecare, and share their data for research purposes using a secure technology, such as an app. Our IRD focus group sample, highlighted themes of “frustration with the current system” regarding data sharing within the NHS and positive “expectations” of the potential benefits of the MyEyeSite app and ability to access data via the app, whilst also voicing concerns about data security and potentially unethical use of data by people, outside the NHS, with commercial interests. Conclusions: MyEyeSite has the potential to connect groups of patients with similar conditions and uniquely valuable datasets, to commercial research projects and clinical trials which have potential to restore sight and transform lives. This strategy will allow a centralised database of genetic variants contributing to rare disease research.

show abstract

“…In contrast to social cognition models, which focus on individual social cognitions, the COM-B model considers individuals within an environmental system, involving the interacting model components of capability, opportunity, motivation and behaviour. The overall approach emphasized the importance of building a community through facilitating a conversation about mutual need and purpose, which would allow co-design of an effective and sustainable intervention for eye health, and subsequent implementation through a social prescribing policy framework (Gilbert et al, 2018).…”

Section: Co-design Of a Pilot Community Cookery Interventionmentioning

confidence: 99%

Eating for Eye Health: Engaging patients with dry age-related macular degeneration in community cookery to support lifestyle change and positive health

Gilbert¹,

Rawlings²,

Dixon³

et al. 2019

Research for All

Self Cite

View full text Add to dashboard Cite

There are limited treatment options available upon diagnosis of dry age-related macular degeneration (AMD), a leading cause of blindness in older people, which progressively threatens central vision and quality of life. Community engagement has the potential to support 'positive health' of individuals with untreatable eye conditions. Eating for Eye Health is an award-winning public-engagement project that aims to raise awareness of research suggesting that nutrition might help protect against progression of AMD and to encourage patients to cook and eat antioxidant-rich food in a community environment. The project engaged patients who had a diagnosis of dry AMD through a focus group and a community cookery day organized in partnership with the healthy food outlet, Pod, and the Manor Gardens Community Kitchen Project, Islington, London. A focus group highlighted participants' potential barriers to engagement with research about lifestyle modification and identified that a co-designed community cookery project could help to address unmet needs for support. Individuals with dry AMD reported increased levels of confidence in cooking skills after participating in the community cookery day. The combination of these methods within the context of AMD highlights how a focus on patient needs and expectations can establish and grow mutually beneficial relationships. There is potential for Eating for Eye Health, or similar community kitchen approaches, to be implemented within the community setting through NHS 'social prescribing' initiatives. In conclusion, Eating for Eye Health is unique in its combination of elements of community consultative and collaborative forms of engagement. These methods could be adopted as part of Sustainability and Transformation Plans (STPs) in local health policy development in the community.

show abstract

Dietary change for macular health of older people: Eating for Eye Health, a pilot community kitchens intervention

Cited by 4 publications

References 0 publications

Azərbaycanda Yaşli Əhali̇ Arasinda Ümumi̇ Oftalmopatologi̇yanin Di̇nami̇kasinin Öyrəni̇lməsi̇nə Və Onun Azaldilmasi Yollarinin Axtarişina Dai̇r

Azərbaycanda Yaşli Əhali̇ Arasinda Ümumi̇ Oftalmopatologi̇yanin Di̇nami̇kasinin Öyrəni̇lməsi̇nə Və Onun Azaldilmasi Yollarinin Axtarişina Dai̇r

Collaborative Research and Development of a Novel, Patient-Centered Digital Platform (MyEyeSite) for Rare Inherited Retinal Disease Data: Acceptability and Feasibility Study (Preprint)

Eating for Eye Health: Engaging patients with dry age-related macular degeneration in community cookery to support lifestyle change and positive health

Contact Info

Product

Resources

About