Diaspora and peer support working: benefits of and challenges for the Butabika–East London Link

Baillie, Dave; Aligawesa, Mariam; Birabwa-Oketcho, Harriet; Kyaligonza, David; Mpango, Richard; Mulimira, Moses Wasswa; Boardman, Jed

doi:10.1192/s2056474000000064

Cited by 8 publications

(6 citation statements)

References 3 publications

(2 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…We need to embrace experiential knowledge, grounded in doing peer support, to develop better understandings of what peer support can be in the context of mental health services (see for example, recent experiments in peer supported Open Dialogue; Stockmann et al, 2017). This is especially the case before we start exporting peer support to LMIC where cultural understandings of mental health and community might differ from our own (Davidson & Tse 2014;Stratford et al, 2017), with efforts being made to explore reciprocal learning across countries and cultures (Baillie et al, 2015). And researchers with lived experience of peer support should be conducting these trials, not just in research assistant roles, but as research leaders controlling the research process (Boevink, Kroon, van Vugt, Delespaul, & van Os, 2016).…”

Section: Editorialmentioning

confidence: 99%

Peer support in mental health services: where is the research taking us, and do we want to go there?

Gillard

2019

Journal of Mental Health

100

View full text Add to dashboard Cite

Section: Editorialmentioning

confidence: 99%

Peer support in mental health services: where is the research taking us, and do we want to go there?

Gillard

2019

Journal of Mental Health

100

View full text Add to dashboard Cite

“…In Uganda, the Brain Gain projects have developed a peer support programme currently based at Butabika National Referral Hospital and serving urban and semi-urban communities in and around Kampala [35]. A case study of the first Brain Gain project demonstrated the feasibility and acceptability of peer support for people living with SMI as a strategy to drastically increase contact coverage of community mental health services in low-resource urban areas [36].…”

Section: Introductionmentioning

confidence: 99%

Using Peer Support in Developing Empowering Mental Health Services (UPSIDES): Background, Rationale and Methodology

Puschner

Repper

Mahlke

et al. 2019

Annals of Global Health

Self Cite

View full text Add to dashboard Cite

Background: Peers are people with lived experience of mental illness. Peer support is an established intervention in which peers offer support to others with mental illness. A large proportion of people living with severe mental illness receive no care. The care gap is largest in low- and middle-income countries, with detrimental effects on individuals and societies. The global shortage of human resources for mental health is an important driver of the care gap. Peers are an under-used resource in global mental health. Objectives: To describe rationale and methodology of an international multicentre study which will scale-up peer support for people with severe mental illness in high-, middle-, and low-income countries through mixed-methods implementation research. Methods: UPSIDES is an international community of research and practice for peer support, including peer support workers, mental health researchers, and other relevant stakeholders in eight study sites across six countries in Europe, Africa, and Asia. During the first two years of UPSIDES, a series of qualitative studies and systematic reviews will explore stakeholders’ perceptions and the current state of peer support at each site. Findings will be incorporated into a conceptual framework to guide the development of a culturally appropriate peer support intervention to be piloted across all study sites. All intervention and study materials will be translated according to internationally recognised guidelines. Expected Impact: UPSIDES: will leverage the unique expertise of people with lived experience of mental illness to strengthen mental health systems in high-, middle- and low-income countries. UPSIDES will actively involve and empower service users and embed patient-centeredness, recovery orientation, human rights approaches, and community participation into services. The focus on capacity-building of peers may prove particularly valuable in low-resource settings in which shortages of human capital are most severe.

show abstract

“…11 Uganda is not unique here. In a study of the routes to psychiatric care centres in Nigeria, Oye Gureje and colleagues found that spiritual healers, traditional healers and general practitioners were the first to be consulted by 13,19, and 47% of patients, respectively. 12 Explanations of why psychiatry has been and remains a last resort for so many necessarily touch on questions of cost, distance and the perceived severity of symptoms.…”

mentioning

confidence: 99%

“…They have worked with mental health service users to bid for funding, facilitated international exchanges and are currently among those working with peer support workers at Butabika Hospital to provide recovery-oriented training and support in a new Recovery College. 13 Such alliances are connecting a select group of Ugandans to global bodies of knowledge and ways of talking about mental illness in ways that evoke the wider literature on 'global citizenship' in medicine and health. 14 As such, the nascent mental health movement raises important questions about the politics of intermediaries, knowledge and legitimacy, as well as who is included and who is left out.…”

mentioning

confidence: 99%

Conclusion

Pringle¹

2018

Psychiatry and Decolonisation in Uganda

View full text Add to dashboard Cite

The history of psychiatry haunts our present. Our people remain chained and shackled in institutions and by ideas which colonisers brought to our continent and many other parts of the world. Indeed, we do remain 'objects of treatment and charity' and some of the worst human rights violations do occur in the very institutions that claim to provide mental health care services. 1 Alambuya, who has lived with bipolar disorder for over twenty years, is one of the most passionate members of the mental health service user movement in Uganda. Although she has had many negative experiences in navigating the psychiatric system, she does not believe that psychiatry is incapable of offering relief to those suffering from mental illness. Rather, she cannot see why psychiatric services and disability legislation have failed to evolve to meet the needs of those they claim to help and protect. Parliamentary discussions over the reform of the Mental Health Treatment Act exemplify this lack of change. First enacted under colonial rule and last revised in 1964, the Act does not differentiate between different types of mental disorder, largely neglects community care, CHAPTER 8 Conclusion

show abstract

Diaspora and peer support working: benefits of and challenges for the Butabika–East London Link

Abstract: In our experience, international clinical and research exchange can make a significant contribution to mutual learning and the consolidation of expertise. It represents a bi-directional transfer of the knowledge and experience between the North and the South.

Cited by 8 publications

References 3 publications

Peer support in mental health services: where is the research taking us, and do we want to go there?

Peer support in mental health services: where is the research taking us, and do we want to go there?

Using Peer Support in Developing Empowering Mental Health Services (UPSIDES): Background, Rationale and Methodology

Conclusion

Contact Info

Product

Resources

About