Development of the International Cardiac Rehabilitation Registry Including Variable Selection and Definition Process

Chowdhury, Mohiul I.; Turk-Adawi, Karam; Babu, Abraham Samuel; Ghisi, Gabriela Lime De Melo; Serón, Pamela; Yeo, Tee Joo; Uddin, Jamal; Heine, Martin; Saldivia, M Garcia; Kouidi, Evangelia; Sadeghi, Masoumeh; Aljehani, Raghdah; Grace, Sherry L.

doi:10.5334/gh.1091

Cited by 15 publications

(17 citation statements)

References 48 publications

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“…ICCPR recently undertook a Delphi process to develop a standard outcome measure set for their new international registry. 52 It is hoped this publicly-available and internationally-agreed resource will promote the more consistent collection of outcomes to enable future assessment of CR impact in LMICs.…”

Section: Discussionmentioning

confidence: 99%

Effects of Cardiac Rehabilitation in Low- and Middle-Income Countries: A systematic Review and Meta-Analysis of Randomised Controlled Trials

Mamataz

Uddin

Alam³

et al. 2022

Progress in Cardiovascular Diseases

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Section: Discussionmentioning

confidence: 99%

Effects of Cardiac Rehabilitation in Low- and Middle-Income Countries: A systematic Review and Meta-Analysis of Randomised Controlled Trials

Mamataz

Uddin

Alam³

et al. 2022

Progress in Cardiovascular Diseases

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“…Details on the development of the ICRR and the data dictionary are reported elsewhere. 17 The process has been user-centred and iterative, and the current usability test is the next stage of preplanned evaluation. 18 In brief, interested programmes complete a programme survey detailing the structural aspects of their programme such as number of prescribed sessions and duration, on which registry post-test assessment timing is based.…”

Section: Methodsmentioning

confidence: 99%

“…26 Participants CR staff working at a CR programme meeting inclusion criterion for ICRR participation were sought. 17 In brief, programmes had to be offering phase II (ie, post acute, outpatient), in a low-income or middle-income country (based on World Bank), 27 or be in a high-income country but be considered 'low-resource' in relation to CR on the basis of limited financial and/or healthcare resources, lack of patient and healthcare provider awareness and/ or patient disadvantage. 28 Exclusion criteria were: (1) inability to read and communicate in English and (2) residing in a country that already has a CR registry, or where one is in development.…”

Section: Design and Proceduresmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

“…Unfortunately however, there are few CR registries, with a recent systematic review revealing only seven worldwide,16 most of which are not applicable to LMICs. Therefore, the ICCPR recently developed one specific to low-resource settings 17. The purpose of this study was to test the perceived usability of the International Cardiac Rehabilitation Registry (ICRR) in such settings,18 to ensure applicability and optimal utility, and hence ultimate uptake to achieve its goals (https://globalcardiacrehab.com/ICRR-Governance).…”

Section: Introductionmentioning

confidence: 99%

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Qualitative study measuring the usability of the International Cardiac Rehabilitation Registry

et al. 2022

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ObjectiveCardiac rehabilitation (CR) is a comprehensive model of secondary preventive care. There is a wide variety in implementation characteristics globally, and hence quality control is paramount. Thus, the International Council of Cardiovascular Prevention and Rehabilitation was urged to develop a CR registry. The purpose of this study was to test the perceived usability of the International Cardiac Rehabilitation Registry (ICRR) to optimise it.DesignThis was a qualitative study, comprising virtual usability tests using a think-aloud method to elicit feedback on the ICRR, while end-users were entering patient data, followed by semistructured interviews.SettingUltimately, 12 tests were conducted with CR staff (67% female) in low-resource settings from a variety of disciplines in all regions of the world but Europe before saturation was achieved.Primary outcome measureParticipants completed the System Usability Scale. Interviews were transcribed verbatim except to preserve anonymity, and coded using NVIVO by two researchers independently. The Unified Theory of Acceptance and Use of Technology 2 informed analysis.ResultsThe ICRR was established as easy to use, relevant, efficient, with easy learnability, operability, perceived usefulness, positive perceptions of output quality and high end-user satisfaction. System usability was 83.75, or ‘excellent’ and rated ‘A’. Four major themes were deduced from the interviews: (1) ease of approvals, adoption and implementation; (2) benefits for programmes, (3) variables and their definitions, as well as (4) patient report and follow-up assessment. Based on participant observation and utterances, suggestions for changes to the ICRR were implemented, including to the programme survey, on-boarding processes, navigational instructions, inclusion of programme logos, direction on handling unavailable data and optimising data completeness, as well as policies for authorship and programme certification.ConclusionsWith usability of the ICRR optimised, pilot testing shall ensue.

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Technology‐based Comprehensive Cardiac Rehabilitation Therapy (TaCT) for women with cardiovascular disease in a middle‐income setting: A randomized controlled trial protocol

Menezes

D’Souza

Ramachandran

et al. 2022

Research in Nursing & Health

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Women are underrepresented in cardiac rehabilitation (CR) despite the benefits, and this is exacerbated in lower-resource settings where CR is insufficiently available. In this randomized controlled trial, the effectiveness of the Technology-based Comprehensive Cardiac Rehabilitation Therapy (TaCT) electronic cardiac rehabilitation (eCR) intervention on functional capacity, risk factors, quality of life, heart-health behaviors, symptoms, and morbidity will be tested among women with CVD in a middle-income country. Following a pilot study, a single-center, single-blinded, 2 parallel-arm (1:1 SNOSE) superiority trial comparing an eCR intervention (TaCT) to usual care, with assessments preintervention and at 3 and 6 months will be undertaken. One hundred adult women will be recruited. Permuted block (size 10) randomization will be applied.The 6-month intervention comprises an app, website, SMS texts with generic heart-health management advice, and bi-weekly 1:1 telephone calls with a nurse trainee. Individualized exercise prescriptions will be developed based on an Incremental Shuttle Walk Test (primary outcome) and dietary plans based on 24 h dietary recall. A yoga/relaxation video will be provided via WhatsApp, along with tobacco cessation support and a moderated group chat. At 3 months, intervention engagement and acceptability will be assessed. Analyses will be conducted based on intent-to-treat. If results of this novel trial of womenfocused eCR in a middle-income country demonstrate clinically-significant increases in functional capacity, this could represent an important development for the field considering this would be an important outcome for women and would translate to lower mortality.

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Development of the International Cardiac Rehabilitation Registry Including Variable Selection and Definition Process

Cited by 15 publications

References 48 publications

Effects of Cardiac Rehabilitation in Low- and Middle-Income Countries: A systematic Review and Meta-Analysis of Randomised Controlled Trials

Effects of Cardiac Rehabilitation in Low- and Middle-Income Countries: A systematic Review and Meta-Analysis of Randomised Controlled Trials

Qualitative study measuring the usability of the International Cardiac Rehabilitation Registry

Technology‐based Comprehensive Cardiac Rehabilitation Therapy (TaCT) for women with cardiovascular disease in a middle‐income setting: A randomized controlled trial protocol

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