Development of the Help Overcoming Pain Early (HOPE) Programme Built on a Person-Centred Approach to Support School Nurses in the Care of Adolescents with Chronic Pain—A Feasibility Study

Nilsson, Stefan; Wallbing, Ulrika; Alfvén, Gösta; Dalenius, Kristina; Fors, Andreas; Golsäter, Marie; Rosvall, Per‐Åke; Wigert, Helena; Lundberg, Mari

doi:10.3390/children6090095

Cited by 4 publications

(7 citation statements)

References 58 publications

(80 reference statements)

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“…This is especially true for programs addressing insomnia and sleep deficits in adolescents (Cassoff et al, 2013 ), which may indirectly also prevent chronic pain. However, emerging evidence suggests that also school-based pain-prevention programs may be effective (Nilsson et al, 2019 ). Hybrid school-based interventions, combining elements from sleep- and pain-focused prevention programs, might be a viable method to prevent insomnia and chronic pain from developing in adolescents.…”

Section: Discussionmentioning

confidence: 99%

Prevention is better than cure: why early interventions for insomnia and chronic pain during adolescence should be a priority

Arnison

2023

Front. Psychol.

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Section: Discussionmentioning

confidence: 99%

Prevention is better than cure: why early interventions for insomnia and chronic pain during adolescence should be a priority

Arnison

2023

Front. Psychol.

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“…Pain impact was assessed with the question: “How does all the pain affect you?”. The question was rated on a 4-point scale including the options: 0 = not at all; 1 = a little; 2 = quite a lot; and 3 = a lot ( 13 ). To assess depression, we used the Center for Epidemiological Studies Depression Scale for Children (CES-DC) ( 24 ).…”

Section: Methodsmentioning

confidence: 99%

“…Taking the above into account, we see the development and evaluation of early interventions for adolescents affected by pain and related difficulties such as insomnia as a prioritized area. Thus, Help Overcoming Pain Early (HOPE) was developed, an intervention that could be provided by school nurses to support adolescents who seek support for their chronic pain ( 13 ). HOPE comprised four sessions provided in the schools by the school nurses.…”

Section: Introductionmentioning

confidence: 99%

“…HOPE comprised four sessions provided in the schools by the school nurses. Based on a person-centred approach and a co-created health plan, the relationship between stress, pain and associated problems were discussed and strategies to manage pain, stress and sleep problems were explored ( 13 ). In a previously conducted randomized controlled trial (RCT), we evaluated the efficacy of HOPE, in comparison with a wait list condition, but found no effect on the primary outcome self-efficacy in daily activities ( 15 ).…”

Section: Introductionmentioning

confidence: 99%

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Help overcoming pain early, a brief person-centred intervention for adolescents with chronic pain in a school setting, may improve symptoms of insomnia

Wallbing,

Nilsson,

Lundberg

et al. 2023

Front. Pain Res.

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Introduction and aimsChronic pain and symptoms of insomnia affect large numbers of adolescents and early interventions are prioritized. The aim of the current study was to evaluate potential secondary effects of the intervention, Help Overcoming Pain Early (HOPE), on symptoms of insomnia and self-rated health.MethodsThe study included non-randomized aggregated data from the active and control conditions in a previously conducted randomized controlled trial evaluating the efficacy of HOPE, after the participants in the control condition also had received the intervention. Symptoms of insomnia were assessed with the Minimal Insomnia Symptom Scale and self-rated health was assessed with one item, at the start of the intervention, post intervention, and at a six-month follow-up. Baseline variables included age, gender, pain localization, pain impact, school absence and symptoms of depression (assessed with the Center for Epidemiological Studies Depression Scale for Children). Inferential analyzes were performed using Linear Mixed Models (LMM). Effect sizes were evaluated by calculating Cohen's d.ResultsThere were statistically significant improvements in symptoms of insomnia at the six-month follow-up, and statistically significant improvements in self-rated health at the end of the intervention and at the six-month follow-up. Effect sizes were small across outcomes and assessments.Discussion and conclusionResults illustrated significant but small improvements in symptoms of insomnia and self-rated health in adolescents with chronic pain following the HOPE intervention. Although caution is needed when assessing the findings, results illustrate the potential utility of an accessible brief early intervention in a school context.

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“…15 As a response to the gaps identified above, we designed the Help Overcoming Pain Early (HOPE) intervention, a 5-week pain management program with a PCC approach, as an add-on to standard school healthcare. 16 HOPE was based on the PCC framework developed by the University of Gothenburg Centre for Person-Centred Care (GPCC) containing ethical principles in which the perspectives of patients and healthcare professionals are equally important. 17 HOPE was evaluated in an RCT design in Sweden and was found to have a significant effect on self-efficacy in the sub-group of adolescents at secondary school.…”

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confidence: 99%

Adolescents' experiences of Help Overcoming Pain Early—A school based person‐centred intervention for adolescents with chronic pain

Wallbing

Nilsson

Wigert

et al. 2023

Paediatric and Neonatal Pain

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To illuminate adolescents' experiences of Help Overcoming Pain Early (HOPE), a person‐centred intervention delivered in a school setting by school nurses. Twenty‐one adolescents with chronic pain recruited from secondary school, who had completed the HOPE intervention, were included in the interview study. The HOPE intervention was built on person‐centred ethics and consisted of four meetings between school nurses and adolescents on the subject of stress and pain management. A qualitative method using content analysis with an inductive approach was employed. In the interviews, the adolescents describe how they reclaim their lives with the help of HOPE. They use different strategies and parts of the intervention to move on with their lives. A trustful relationship, as that with the school nurse, was essential to dare to change. The overarching theme summarizes in Becoming myself again and is built up by three sub‐themes: Trust a pillar for growth, Making sense of my life with pain, and Putting myself into the world again. A person‐centred intervention such as HOPE applied in a school context is promising for promoting confidence in adolescents with chronic pain. A trust‐building process emerged, in terms of both the adolescents' trust in the healthcare staff they meet and their confidence in their own ability to handle and influence their situation, which in the long term can promote trust in themselves as a person.

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Development of the Help Overcoming Pain Early (HOPE) Programme Built on a Person-Centred Approach to Support School Nurses in the Care of Adolescents with Chronic Pain—A Feasibility Study

Cited by 4 publications

References 58 publications

Prevention is better than cure: why early interventions for insomnia and chronic pain during adolescence should be a priority

Prevention is better than cure: why early interventions for insomnia and chronic pain during adolescence should be a priority

Help overcoming pain early, a brief person-centred intervention for adolescents with chronic pain in a school setting, may improve symptoms of insomnia

Adolescents' experiences of Help Overcoming Pain Early—A school based person‐centred intervention for adolescents with chronic pain

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