Development of the Functional Vision Questionnaire for Children and Young People with Visual Impairment

Tadić, Valerija; Cooper, Andrew; Cumberland, Phillippa; Lewando-Hundt, Gillian; Rahi, Jugnoo S

doi:10.1016/j.ophtha.2013.07.055

Cited by 61 publications

(95 citation statements)

References 17 publications

(24 reference statements)

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“…12 Each family received a study pack containing an invitation letter, information sheets for children and parents, consent and assent forms, large print and electronic (CD) versions of the child and parental instrument versions, described below, and a prepaid postage reply envelope.…”

Section: Methodsmentioning

confidence: 99%

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Do visually impaired children and their parents agree on the child's vision-related quality of life and functional vision?

et al. 2016

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AimsTo investigate agreement between children with visual impairment (VI) and their parents on their ratings of the child's vision-related quality of life (VQoL) and functional vision (FV) using two novel self-report patient-reported outcome measures developed for this population.Methods99 children aged 10–15 years (mean age=12.2, SD=1.9) with VI (best corrected acuity (logarithm of the minimum angle of resolution) 0.50 or worse in better eye) and their parents participated in a national postal survey, completing the child and proxy versions of our novel instruments assessing VQoL and FV of children with VI—the vision-related quality of life instrument for children and young people (VQoL_CYP) and the functional vision questionnaire for children and young people (FVQ_CYP), respectively. Parent-child agreement was investigated using the Bland-Altman (BA) method. Variation across key sociodemographic and clinical characteristics was examined using the Intraclass Correlation Coefficient.ResultsAverage parental ratings of their child's VQoL and FV were significantly lower than the children's own ratings, but the range of disagreement was wide, with parents both overestimating and underestimating their child's VQoL (mean score difference=5.7, BA limits of agreement (LOA): lower −22.10 (CI 95% −24.61 to 19.59) and upper 33.50 (CI 95% 30.99 to 36.01)), but more consistently underestimating the child's FV (mean score difference=−11.8, BA LOA: lower −39.60 (CI 95% −42.12 to 37.08) and upper 16 (CI 95% 13.48 to 18.52)). There was variation in agreement by some child characteristics, including vision level, time of onset and course of VI progression.ConclusionsVisually impaired children and their parents perceive the broader impact of living with VI very differently. There is value in routine capture of information independently from children and their parents for comprehensively gauging the impact of childhood VI and tailoring appropriate interventions.

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Section: Methodsmentioning

confidence: 99%

“…One assesses vision-related quality of life (VQoL) 11 and the other functional vision (FV), 12 each uniquely capturing the impact of living with VI in children.…”

Section: Introductionmentioning

confidence: 99%

Do visually impaired children and their parents agree on the child's vision-related quality of life and functional vision?

et al. 2016

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“…For example, the Impact of Vision Impairment for Children (IVI-C) instrument 13 can be used to assess the impact of visual impairment on VR-QoL, and the Cardiff Visual Ability Questionnaire for Children (CVAQC) 14 and the Functional vision questionnaire for children and young people with visual impairment 15 , to assess the impact on activities of daily living (functional visual ability).…”

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confidence: 99%

Quality of life and functional vision in children treated for cataract—a cross-sectional study

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Abou-Rayyah

Brookes

et al. 2017

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“…Interestingly, the CVAQC-CN showed better psychometric properties compared with the original and Turkish versions. In addition, the CVAQC-CN had better Rasch-based psychometric properties in terms of discrimination ability, fit statistics and dimensionality than the other existing instruments 2 10 12 14. Moreover, the TIC of the CVAQC-CN showed that the instrument provides visual ability scores with a high-level accuracy over the entire range of measures, irrespective of respondent's level of visual disability (figure 2).…”

Section: Discussionmentioning

confidence: 98%

“…There are a few validated instruments in this targeted demographics; although developed in other countries, they demonstrated promising content coverage and psychometric properties 2 9–12 14. We chose the CVAQC for this study because it has a content that primarily focuses on school activities, and possesses excellent psychometric properties 7.…”

Section: Discussionmentioning

confidence: 99%

Validation of an instrument to assess visual ability in children with visual impairment in China

et al. 2016

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Development of the Functional Vision Questionnaire for Children and Young People with Visual Impairment

Cited by 61 publications

References 17 publications

Do visually impaired children and their parents agree on the child's vision-related quality of life and functional vision?

Do visually impaired children and their parents agree on the child's vision-related quality of life and functional vision?

Quality of life and functional vision in children treated for cataract—a cross-sectional study

Validation of an instrument to assess visual ability in children with visual impairment in China

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