2018
DOI: 10.1097/lgt.0000000000000361
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Development of the Adult Vulvar Lichen Sclerosus Severity Scale—A Delphi Consensus Exercise for Item Generation

Abstract: Through expert international consensus, 24 items are proposed for inclusion in a future validated adult vulvar lichen sclerosus severity scale.Supplemental digital content is available in the text.

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Cited by 25 publications
(24 citation statements)
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“…Also, the initially striking results of a reduction in impact of lichen sclerosus on patients' lives can be attributed to patient bias because this was not a double-blinded study and may have involved a desire to collaborate with the doctor. Additionally, histology could also benefit the confirmation of a clinical diagnosis, but its inclusion in an adult lichen sclerosus severity scale is questionable (Sheinis and Selk, 2017). Analyzing biopsy test result changes to treatment may be objective, but whether this outcome is important to patients is unclear and likely should be used as an adjunct to other measures (Sheinis and Selk, 2017).…”
Section: Discussionmentioning
confidence: 99%
“…Also, the initially striking results of a reduction in impact of lichen sclerosus on patients' lives can be attributed to patient bias because this was not a double-blinded study and may have involved a desire to collaborate with the doctor. Additionally, histology could also benefit the confirmation of a clinical diagnosis, but its inclusion in an adult lichen sclerosus severity scale is questionable (Sheinis and Selk, 2017). Analyzing biopsy test result changes to treatment may be objective, but whether this outcome is important to patients is unclear and likely should be used as an adjunct to other measures (Sheinis and Selk, 2017).…”
Section: Discussionmentioning
confidence: 99%
“…We adopted the 23 items which had been defined and classified into six items of “symptoms,” 11 items of “signs” and six items of “architectural changes” by the ISSVD consensus group 10 (Table 1). Following an in‐depth, nonsystematic research on other PubMed‐listed publications on severity scales (summarized in Table S1) and based on our clinical experience, we combined the three items “pain with intercourse,” “bleeding and pain with intercourse,” and “skin tearing with intercourse” to one item “dyspareunia.” We omitted the item “elasticity (or loss of elasticity)” which may be strongly biased by menopause 12 and added the items “petechia/ecchymosis” (which is an easily assessable item of activity) and “dysuria,” as the latter is a well‐known potent irritant perpetuating and aggravating VLS in many cases.…”
Section: Methodsmentioning
confidence: 99%
“…We adopted the 23 items which had been defined and classified into six items of "symptoms," 11 items of "signs" and six items of "architectural changes" by the ISSVD consensus group 10 (Table 1). Following an in-depth, nonsystematic research on other PubMed-listed publications on severity scales (summarized in Table S1) and based on our clinical experience, we combined the three items "pain with intercourse," "bleeding and pain with intercourse," and "skin tearing with intercourse" to one item "dyspareunia."…”
Section: Grading Of Symptoms Signs and Architectural Changesmentioning
confidence: 99%
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“…However, the method of measurement of the signs and symptoms was not reached. Hence, further research is advised on this severity scale [13].…”
Section: Clinical Characteristicsmentioning
confidence: 99%