Development of psychopathology in adults with congenital heart disease: A 40–53 years follow-up study

Pelosi, C; Kauling, Robert M; Cuypers, Judith A.A.E.; Bosch, Annemien E. van den; Bogers, Ad J.J.C.; Helbing, Willem A.; Hesselink, Jolien W. Roos; Legerstee, Jeroen S.; Utens, Elisabeth M. W. J.

doi:10.1016/j.ijcchd.2022.100420

Cited by 3 publications

(3 citation statements)

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“…In contrast with the American literature which showed significant higher prevalence rates of psychological symptoms in patients with CHD, European studies suggested more favorable outcomes [35][36][37][38]. In fact, our previous studies showed comparable levels of psychopathology in CHD patients and the norm population [7,14]. Moreover, patients with CHD scored significantly better in terms of neuroticism, social inadequacy and hostility when compared to the norm.…”

Section: Discussioncontrasting

confidence: 88%

“…This cohort was invited for extensive in-hospital investigations every ten years. The current report concerns the fourth follow-up of this same cohort of patients, now up to 50 years after surgery [ 3 , 4 , 7 – 14 ]. The aims of the present study were: (1) to compare the biographical characteristics and psychosocial functioning of adults with CHD with the general population; (2) to make comparisons between the diagnostic groups (mild vs moderate/severe) in terms of psychopathology [ 15 ]; and (3) to assess the changes of biographical characteristics and emotional and social functioning over time [ 2 ].…”

Section: Introductionmentioning

confidence: 99%

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Daily life and psychosocial functioning of adults with congenital heart disease: a 40–53 years after surgery follow-up study

et al. 2022

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Introduction Nowadays, more than 90% of patients with congenital heart disease (CHD) reach adulthood. However, knowledge about their psychosocial functioning is limited. Methods Longitudinal cohort study of patients (n = 204, mean age: 50 years, 46.1% female) who were operated during childhood (< 15 years) between 1968 and 1980 for one of the following diagnoses: atrial septal defect, ventricular septal defect, pulmonary stenosis, tetralogy of Fallot or transposition of the great arteries. Psychosocial functioning was measured every 10 years, using standardized and validated questionnaires. Results were compared with the general Dutch population and over time. Results After a median follow-up of 45 [40–53] years adults with CHD had a significantly lower educational level, occupation level and employment rate, but better health-related quality of life and emotional functioning compared with normative data. Patients with moderate/severe defects reported significantly more self-perceived physical restrictions and lack of physical strength due to their CHD. Compared to 2011, in 2021 patients considered their CHD as more severe and they felt more often disadvantaged. Conclusions Overall, despite a lower education, occupation level and employment rate, our sample of patients with CHD had a positive perception of their life and their psychosocial functioning was even better than the norm. Although the quality of life was very good, their view on their disease was more pessimistic than 10 years ago, especially for patients with moderate/severe CHD. Graphic abstract

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Section: Discussioncontrasting

confidence: 88%

Section: Introductionmentioning

confidence: 99%

Daily life and psychosocial functioning of adults with congenital heart disease: a 40–53 years after surgery follow-up study

et al. 2022

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“…Nonetheless, the level of psychopathology in our cohort was similar to adults from the normal population. However, female patients had higher levels of somatic complaints [37].…”

Section: Discussionmentioning

confidence: 86%

Executive functioning of patients with congenital heart disease: 45 years after surgery

et al. 2023

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Background Nowadays, more than 90% of patients with congenital heart disease (CHD) reach adulthood. However, long-term impact on neurodevelopment and executive functioning in adults with CHD are not completely understood. Purpose To investigate the self- and informant-reported executive functioning in adults with CHD operated in childhood. Material and methods Longitudinal study of a cohort of patients (n = 194, median age: 49.9 [46.1–53.8]) who were operated in childhood (< 15 years old) between 1968 and 1980 (median follow-up time: 45 [40–53] years) for one of the following diagnoses: atrial septal defect (ASD), ventricular septal defect (VSD), pulmonary stenosis (PS), tetralogy of Fallot (ToF) or transposition of the great arteries (TGA). Behavior Rating Inventory of Executive Function-Adult version (BRIEF-A) questionnaire was used to assess self- and informant-reported executive functioning. Results 40–53 years after surgery, the CHD group did show significantly better executive functioning compared to the norm data. No significant difference was found between mild CHD (ASD, VSD and PS) and moderate/severe CHD (ToF and TGA). Higher education, NYHA class 1 and better exercise capacity were associated with better self-reported executive functioning, whereas females or patients taking psychiatric or cardiac medications reported worse executive functioning. Conclusions Our findings suggest favorable outcomes (comparable to normative data) regarding executive functioning in adults with CHD, both self- and informant-reported. However, further study is warranted to explore more in detail the different cognitive domains of executive functioning in these patients. Graphical abstract

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Sports participation and lifestyle in middle-aged adults with congenital heart disease

Pelosi,

Kauling,

Cuypers

et al. 2024

International Journal of Cardiology Congenital Heart Disease

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Development of psychopathology in adults with congenital heart disease: A 40–53 years follow-up study

Cited by 3 publications

References 29 publications

Daily life and psychosocial functioning of adults with congenital heart disease: a 40–53 years after surgery follow-up study

Daily life and psychosocial functioning of adults with congenital heart disease: a 40–53 years after surgery follow-up study

Executive functioning of patients with congenital heart disease: 45 years after surgery

Sports participation and lifestyle in middle-aged adults with congenital heart disease

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