2022
DOI: 10.1111/imj.15840
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Development of inflammatory bowel disease patient education and medical information sheets: serving an unmet need

Abstract: Inflammatory bowel disease is a chronic gastrointestinal condition that necessitates life‐long healthcare engagement and management. Empowering patients with knowledge is fundamental to enhance health literacy, improve health outcomes and facilitate complex decision‐making regarding medication and potential surgery. A working group was formed to develop concise, comprehensive patient information sheets to meet this unmet need in the Australian setting.

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Cited by 2 publications
(8 citation statements)
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“…The doubt if the patients are doing the correct treatment between the first consultation and the return was related for 30% of patients. This long waiting time and the limited health literacy in patients has been associated with depression, anxiety and discouragement, as observed in the fourth question [1]. Although not specifically explored in our study, patient education about their disease and symptom management plays a major role in treatment adherence and is directly linked to successful outcomes [1,4,19].…”
Section: Discussionmentioning
confidence: 86%
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“…The doubt if the patients are doing the correct treatment between the first consultation and the return was related for 30% of patients. This long waiting time and the limited health literacy in patients has been associated with depression, anxiety and discouragement, as observed in the fourth question [1]. Although not specifically explored in our study, patient education about their disease and symptom management plays a major role in treatment adherence and is directly linked to successful outcomes [1,4,19].…”
Section: Discussionmentioning
confidence: 86%
“…Combining the two answers, 56% of patients seek for a better understanding and information about their disease with friends, neighbors, and family (28%) besides the internet (28%). The lack of knowledge about the disease leads the patients to seek information from unreliable and biased sources [1]. Therefore, educational programs and materials with an evidence-based approach are critical to optimizing patient management of the disease [1].…”
Section: Discussionmentioning
confidence: 99%
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“…Al-Ani et al 2022). The doubt if the patients are doing the correct treatment between the rst consultation and the return was related for 30% of patients.…”
mentioning
confidence: 99%