Development of “down the road”: An interactive toolkit about driving cessation for dementia caregivers

Jouk, Alexandra; Tuokko, Holly

doi:10.1080/03601277.2017.1355669

Cited by 6 publications

(17 citation statements)

References 10 publications

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“…One study had a combination of older adults (drivers and former drivers) and healthcare professionals ( Friedland & Rudman, 2009 ), two studies included older adults, healthcare professionals, and family caregivers ( Perkinson et al, 2005 ; Sinnott et al, 2019 ), and one study included older adults and family caregivers ( Byszewski et al, 2010 ). The three remaining studies included healthcare professionals and family caregivers ( Jouk & Tuokko, 2017 ; Stasiulis et al, 2020 ) and one study involved healthcare professionals with input from an older adult representative organization ( Byszewski et al, 2013 ).…”

Section: Resultsmentioning

confidence: 99%

A Systematic Review of Effective Interventions and Strategies to Support the Transition of Older Adults From Driving to Driving Retirement/Cessation

Dickerson,

Stapleton,

Bloss

et al. 2024

Innovation in Aging

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Background and Objectives In most western countries, older adults depend on private cars for transportation and do not proactively plan for driving cessation. The objective of this review was to examine current research studies outlining effective interventions and strategies to assist older adults during their transition from driver to driving retirement or cessation. Research Design and Methods A search was completed across nine data bases using key words and MeSH terms for drivers, cessation of driving, and older adult drivers. Eligibility screening of 9,807 titles and abstracts, followed by a detailed screening of 206 papers was completed using the Covidence platform. Twelve papers were selected for full text screen and data extraction, comprising three papers with evidence-based intervention programs and nine papers with evidenced-informed strategies. Results Three papers met the research criteria of a controlled study for programs that support and facilitate driving cessation for older adults. Nine additional studies were exploratory or descriptive, which outlined strategies that could support older drivers, their families, and/or healthcare professionals during this transition. Driving retirement programs/toolkits are also presented. Discussion and Implications The driver retirement programs had promising results, but there were methodological weaknesses within the studies. Strategies extracted contributed to six themes: Reluctance and avoidance of the topic, multiple stakeholder involvement is important, taking proactive approach is critical, re-focus the process away from assessment to proactive planning, collaborative approach to enable “ownership” of the decision is needed, and engage in planning alternative transportation should be the end result. Meeting the transportation needs of older adults will be essential to support aging in place, out-of-home mobility and participation, particularly in developed countries where there is such a high dependency on private motor vehicles.

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Section: Resultsmentioning

confidence: 99%

A Systematic Review of Effective Interventions and Strategies to Support the Transition of Older Adults From Driving to Driving Retirement/Cessation

Dickerson,

Stapleton,

Bloss

et al. 2024

Innovation in Aging

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“…One of the principal clinical processes of CFM™-D is to offer psychosocial support during the driving retirement transition. This coaching element of CFM™-D is critically missing from self-guided resources ( Byszewski et al, 2017 ; Jouk & Tuokko, 2017 ) and decision-making tools ( Carmody et al, 2015 ; Chang et al, 2021 ; Polzer et al, 2020 ). Regular, ongoing engagement with CFM™-D coaches may reduce perceptions of care partner strain related to isolation and may have also facilitated greater understanding, communication skills, and a sense of partnership between care partners and persons with dementia (i.e., the retiring drivers).…”

Section: Discussionmentioning

confidence: 99%

“… Stasiulis and colleagues (2023) recently profiled a range of tools designed to support driving retirement and created the Driving and Dementia Roadmap repository. Most interventions are self-guided resources (e.g., Byszewski et al, 2017 ; Jouk & Tuokko, 2017 ) or decision-making tools (e.g., Carmody et al, 2015 ; Chang et al, 2021 ; Polzer et al, 2020 ). They specifically noted a lack of tools that target the emotional aspects of driving retirement, which is critical to initiating and adjusting to driving retirement ( Musselwhite, 2023 ).…”

Section: Interventions To Support Driving Retirementmentioning

confidence: 99%

CarFreeMe™-Dementia: Potential Benefits of a Driving Retirement Intervention Supporting Persons With Dementia and Their Families

Peterson,

Ingvalson,

Birkeland

et al. 2024

Innovation in Aging

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Background and Objectives Driving retirement can be a necessary but challenging and emotionally complex transition, especially for people living with dementia. This pilot study evaluated the utility of CarFreeMe™-Dementia (CFM™-D), a telehealth intervention providing tailored education and social support to those living with dementia and their care partners, as they prepare for or adjust to driving retirement. Delivered by empathetic health professionals, CFM™-D is a person-centric, flexible program tailored to address challenges specific to the participants’ driving retirement stage and individualized contexts. Research Design and Methods A single-arm, mixed methods design was used to follow participants over a 6-month period. Participants received CFM™-D, a seven to eight module semi-structured intervention, including education and planning support for driving retirement (impact of dementia, transportation options) and emotional adjustment (grief and loss, stress management). Surveys evaluated perceived utility of intervention components as well as changes in well-being and readiness for driving retirement over time. An open-ended survey item and semi-structured interviews provided additional feedback and contextual understanding of the empirical data. Results Fifty families enrolled (17 care partners, 16 retiring/retired drivers with memory loss, and 17 care partner-retiring/retired driver dyads). Nearly all participants would recommend the intervention. Care partners reported significantly reduced (p<.05) isolation and relationship strain, and retiring drivers reported significant reductions in depressive symptoms. Driving retirement preparedness scores improved. Driving retirement phase, enrolling as a dyad, and retiring driver cognitive/functional impairment were associated with these outcomes. Participants also engaged in more driving retirement activities outside of the intervention (e.g., talking with health professionals). Discussion and Implications CFM™-D is a useful intervention for retiring drivers with dementia and their family members, with preliminary data suggesting it supports improved well-being and driving retirement preparedness. A randomized controlled trial is needed to determine the efficacy of the CFM™-D intervention and future translation needs.

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“…In addition, various materials are available to support older drivers that could be incorporated into psychological practice. These may include materials from U.S. and Canadian sources such as At the Crossroads: Family Conversations and Alzheimer’s Disease, Dementia & Driving (The Hartford, 2010a), When You Are Concerned (LePore, 2011), We Need to Talk: Family Conversations with Older Drivers (The Hartford, 2010b), Down the Road : An Interactive Toolkit for Caregivers about Driving , (Jouk, 2014), and No Particular Place to Go: A Theatre Production that Explores Issues Concerning Older Driver Safety (BC Psychogeriatric Association, 2009). It has even been proposed that “Advance Driving Directives” be constructed to facilitate conversations between health providers and older drivers (or any medically at-risk group) focused on prevention and planning for driving cessation (Betz, Jones, Petroff, & Schwartz, 2013).…”

Section: Discussionmentioning

confidence: 99%

Older Driver Safety: A Survey of Psychologists’ Attitudes, Knowledge, and Practices

Love

Tuokko

2016

Can. J. Aging

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Using an online survey, we examined the knowledge, attitudes, and practices with respect to older driver safety concerns of clinical psychologists from across Canada who self-identified as working with at least some drivers over 60 years of age. Eighty-four psychologists completed the survey, and many were aware of the issues relevant to older driver safety, although only about half reported that assessing fitness to drive was an important issue in their practice. The majority (75%) reported that they would benefit from education concerning evaluation of fitness to drive. The primary recommendation emerging from this investigation is to increase efforts to inform and educate psychologists about driving-related assessment and regulatory issues in general, and specifically with respect to older adults. As the population ages, it is of growing importance for all health care providers to understand the influence of mental health conditions-including cognitive impairment and dementia-on driving skills.

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Development of “down the road”: An interactive toolkit about driving cessation for dementia caregivers

Cited by 6 publications

References 10 publications

A Systematic Review of Effective Interventions and Strategies to Support the Transition of Older Adults From Driving to Driving Retirement/Cessation

A Systematic Review of Effective Interventions and Strategies to Support the Transition of Older Adults From Driving to Driving Retirement/Cessation

CarFreeMe™-Dementia: Potential Benefits of a Driving Retirement Intervention Supporting Persons With Dementia and Their Families

Older Driver Safety: A Survey of Psychologists’ Attitudes, Knowledge, and Practices

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