Development of an item bank for computerized adaptive test (CAT) measurement of pain

Petersen, Morten Aa.; Aaronson, Neil K.; Chie, Wei‐Chu; Conroy, Thierry; Costantini, Anna; Hjermstad, Marianne Jensen; Kaasa, Stein; Loge, Jon Håvard; Velikova, Galina; Young, Teresa; Grøenvold, Mogens

doi:10.1007/s11136-015-1069-5

Cited by 24 publications

(18 citation statements)

References 31 publications

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“…In agreement with findings of the current study, several studies reported no significant association between severity of dementia and caregivers' depression [ 24 , 25 ]. Välimäki et al [ 26 ] explained the insignificant correlation between the AD patients' disease severity and their caregivers' degree of depression by the fact that caregivers of patients with dementia are already at the lowest level of health-related quality of life compared with the general population.…”

Section: Discussionmentioning

confidence: 99%

Prevalence and Risk Factors for Depression among Caregivers of Alzheimer’s Disease Patients in Saudi Arabia

Alqahtani

Alshbriqe

Awwadh

et al. 2018

Neurology Research International

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Objectives To identify prevalence and risk factors of depression among caregivers of Alzheimer' disease (AD) patients. Methods In a cross-sectional study, 110 caregivers of AD patients participated in this study (51 males and 59 females). Patients data were obtained from patients' records at Aseer Central Hospital. Depression among caregivers was assessed by using the Hamilton Rating Scale for Depression. Results The age of caregivers ranged from 17 to 85 years (Mean±SD: 41.1±14.0 years). Prevalence of depression among caregivers was 70%. Caregivers were mainly sons/daughters (69.1%) or spouses (11.8%). A total of 33 caregivers (30%) had mild depression while 44 (40%) had moderate depression. Prevalence of depression was significantly higher among caregivers of AD patients who were exposed to repeated falling down (p=0.003), but did not differ significantly among caregivers who were exposed to repeated pneumonia or getting lost. Caregivers' scores of depression positively correlated with duration of caregivers' daily stay with AD patients (r=0.272, p=0.004), but did not correlate significantly with either caregivers' age or patients' age. Moreover, caregivers' depression did not differ significantly according to their marital status, educational status, employment status, or monthly income. Conclusions Prevalence of depression among AD caregiver is high. Risk factors for depression include patients' exposure to repeated falls and prolonged stay with patients. Therefore, psychiatric care should be provided to caregivers, home safety should be maintained to avoid falls, and several persons should interchangeably provide care to AD patients.

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Section: Discussionmentioning

confidence: 99%

Prevalence and Risk Factors for Depression among Caregivers of Alzheimer’s Disease Patients in Saudi Arabia

Alqahtani

Alshbriqe

Awwadh

et al. 2018

Neurology Research International

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“…Chronic illness experiences are also threaded through with characteristics of temporality (Jowsey 2015), including permanency, permeation, and fluctuation. Chronic illness is permanent, meaning it endures long-term and often forecasts a trajectory of health decline.…”

Section: Space Time Chronic Illness and Leisurementioning

confidence: 99%

“…Health status might also shape a person’s leisure-scape in terms of where, when, and how they can enjoy leisure given the unique spatial and temporal characteristics of chronic illness symptoms and management (Jowsey 2015, Crooks 2007). Chronic kidney disease (CKD), a term used to describe loss of kidney function over time, for example, can fundamentally restructure a person’s life.…”

Section: Introductionmentioning

confidence: 99%

Finding joy in poor health: The leisure-scapes of chronic illness

McQuoid

2017

Social Science & Medicine

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Globally, increasing numbers of people face the challenge of enjoying life while living with long-term illness. Little research addresses leisure participation for people with chronic illness despite its links with mental and physical health and self-rated quality of life. I use a space-time geographical approach to explore experiences with leisure in everyday life for 26 individuals with chronic kidney disease (CKD) in Australia. I examine ways in which the spatial and temporal characteristics of illness management and symptoms shape where, when, and how participants can enjoy leisure, focusing on: 1) logistical conflicts between illness and leisure; 2) rhythmic interferences with the force of habit in skilful leisure performance; and 3) absorbing experiences of encounter with self and place through leisure. Data were collected from 2013 to 2014. Participants kept diaries over two sample days and then participated in semi-structured interviews. Findings show that the voluntary nature of leisure offered participants important benefits in coping with and managing illness over the long-term, including opportunities to experience greater sense of control, an alternative experience of one’s body to the ‘sick body’, and knowledge creation that supports adaptation to the uncertainties of illness trajectories. The ability to engage in meaningful leisure was constrained by the shaping forces of illness symptoms and management on participants’ leisure-scapes. Illness treatment regimens should therefore be adapted to better accommodate leisure participation for chronically ill patients, and leisure should be explicitly incorporated into illness management plans negotiated between patients and health practitioners. Finally, greater understanding of the transformative capacity of habit in activities of experimentation and play may have wider-reaching implications for leisure’s potential applications in public health. Leisure should be taken seriously as a vehicle for enhancing wellbeing and adaptation to life with long-term illness.

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“…With enhanced computer technology, screening questions can lead to a battery of more detailed measures as indicated by the patients' initial responses. Computer-adaptive test [43,44] allows for adaptation of the questionnaire to the individual patient, thereby minimizing questionnaire burden yet optimizing measurement precision and achieving a more detailed level of HR-QoL outcomes. Wider use of mathematical modeling such as Rasch analysis will serve to underpin refinements in questionnaires and the data outputs.…”

Section: Five-year Viewmentioning

confidence: 99%

Improving quality-of-life questionnaires in head and neck cancer

Rogers

2016

Expert Review of Quality of Life in Cancer Care

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Questionnaires are an established means of quantifying health-related quality of life (HRQOL) following head and neck cancer. Questionnaires have evolved over many decades. Validated measures are now readily available to assess the physical/functional, emotional, and social impact of cancer and its treatment. The purpose of this article is to briefly reflect upon the current position and potential future improvements in questionnaire design and clinical utility. The basis for the observations stem from the literature between 1982 and 2014 as contained at the 'Handle on QOL' website. Advances over the next five years will relate to the how, when, where and frequency of questionnaire completion, in addition to improved sophistication of analysis and data presentation, underpinned by the improved use of information technology.

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Development of an item bank for computerized adaptive test (CAT) measurement of pain

Cited by 24 publications

References 31 publications

Prevalence and Risk Factors for Depression among Caregivers of Alzheimer’s Disease Patients in Saudi Arabia

Prevalence and Risk Factors for Depression among Caregivers of Alzheimer’s Disease Patients in Saudi Arabia

Finding joy in poor health: The leisure-scapes of chronic illness

Improving quality-of-life questionnaires in head and neck cancer

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