Development of a preliminary questionnaire to assess parental response to children's food allergies

LeBovidge, Jennifer; Stone, Kelly D.; Twarog, Frank J.; Raiselis, Susan Warren; Kalish, Leslie A.; Bailey, Evan; Schneider, Lynda C.

doi:10.1016/s1081-1206(10)60916-7

Cited by 57 publications

(59 citation statements)

References 11 publications

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“…It may be that peanut allergy does not have a large impact on generic (as opposed to peanut-allergy specific) quality of life in parents. Families with a child with food allergy have been found to have greater family cohesion (7,28) and have reported receiving significant support from spouses and the extended family (29), which may also partially account for the better QoL scores.…”

Section: Discussionmentioning

confidence: 99%

“…Two scales in particular (which were unavailable when this study began) would be extremely useful to use in a replication of this study: the Food Allergy Quality of Life -Parental Burden Questionnaire (FAQOL-PB) (45) and the Food Allergy Parent Questionnaire (FAPQ) (29). Finally, the clinic-based nature of this patient group King 20 means that only a relatively small number of families were recruited and the findings may not be generalisable to the non clinic-based population of allergic families.…”

Section: King 16mentioning

confidence: 99%

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Impact of peanut allergy on quality of life, stress and anxiety in the family

King¹,

Knibb²,

Hourihane³

2009

Allergy

291

297

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Section: Discussionmentioning

confidence: 99%

Section: King 16mentioning

confidence: 99%

Impact of peanut allergy on quality of life, stress and anxiety in the family

King¹,

Knibb²,

Hourihane³

2009

Allergy

291

297

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“…The only proven therapy is careful avoidance of the causal food(s) and provision of medication for emergency treatment [3]. Consequently, patients often fear an allergic reaction and are continuously faced with dietary and social restrictions in their daily lives, which can have a negative impact on quality of life [4][5][6][7][8][9][10][11].…”

Section: Introductionmentioning

confidence: 99%

Test–retest reliability of the Food Allergy Quality of Life Questionnaires (FAQLQ) for children, adolescents and adults

et al. 2009

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Objective The self-administered Food Allergy Quality of Life Questionnaire-Child Form (FAQLQ-CF), -Teenager Form (FAQLQ-TF) and -Adult Form (FAQLQ-AF) were recently developed within EuroPrevall, a multi-centred study of food allergy in Europe. The primary aim of this study was to evaluate the test-retest reliability of the FA-QLQ-CF, -TF and -AF. Methods One hundred and one Dutch patients (31 children, 34 adolescents and 36 adults) completed the FAQLQ twice with a 10-14 day interval. The intraclass correlation coefficient (ICC), Lin's concordance correlation coefficient (CCC) and Bland-Altman plots were used to assess testretest reliability. Results Test-retest reliability was excellent with ICCs and CCCs above 0.907, 0.975 and 0.951 for the FAQLQ-CF, -TF and -AF, respectively. Bland-Altman plots showed that the mean differences of the test and re-test were all close to zero for the FAQLQs. Conclusions The FAQLQs are reliable over a short time interval. The FAQLQs are not only excellent tools for group comparison studies, but also for monitoring individual patients.

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“…However, 3 limitations arise when interpreting these studies. First, no distinction was made between adolescents and younger children, [8][9][10][11][12][13] whereas HRQL in adolescents needs to be addressed separately because HRQL can be influenced by the stage of neurocognitive and emotional development of an individual. 14,15 Second, HRQL questionnaires were administered to parents, thus measuring parents' perceptions.…”

mentioning

confidence: 99%