Development of a Peer Support Model Using Experience-Based Co-Design to Improve Critical Care Recovery

Abstract

Objectives: To use experience-based co-design to identify the key design requirements of a peer support model for critical care survivors; understand the use of the experience-based co-design method from clinician, patients, and family perspectives. Design: Using experience-based co-design, qualitative data about participants’ preferences for a peer support model were generated via workshops. Participants’ perspectives of experience-based co-design were evaluated with focus groups. Setting: University-affiliated hospital in Melbourne, Australia. Subjects: Snowball sampling was used to recruit clinicians from across the care spectrum (ICU-community); critical care survivors and nominated family members were recruited using convenience sampling. Measurements and Main Results: Consensus on a peer support model was reached through the experience-based co-design process, with the following key themes: 1) socialization and group cohesion; 2) management of potential risks; and 3) individualized needs of patients and families. Evaluation of participants’ perspectives of the experience-based co-design method identified five key themes: 1) participation as a positive experience; 2) emotional engagement in the process; 3) learning from patients and family members; 4) feeling heard; and 5) practical challenges of experience-based co-design and readiness to participate. Conclusions: Experience-based co-design was a feasible approach to developing a peer support model for use with critical care survivors and was well received by participants. Future testing of the co-designed peer support model in a pilot randomized controlled trial will enhance understanding of peer support in critical care and the use of experience-based co-design as a design methodology.

A qualitative evaluation of participants' experiences of using co‐design to develop a collective leadership educational intervention for health‐care teams

“…Maher et al 16 experience of a participatory health service design process and found that the methods applied during the process, such as story-sharing and emotional mapping, were effective in establishing working relationships among the participants involved. More recently, Haines et al 18 evaluated participants' experience of co-designing a peer support model and found that patients and families appreciated feeling valued and heard and that clinicians found the approach beneficial.…”

“…Bowen et al evaluated participants’ experience of a participatory health service design process and found that the methods applied during the process, such as story‐sharing and emotional mapping, were effective in establishing working relationships among the participants involved. More recently, Haines et al evaluated participants’ experience of co‐designing a peer support model and found that patients and families appreciated feeling valued and heard and that clinicians found the approach beneficial. Previous studies of co‐design experiences have applied the NHS experience‐based co‐design (EBCD) framework, a structured, stepwise approach that uses storytelling to gather patient and staff experiences to identify opportunities for improvements and inform co‐design groups working on the identified areas…”

Understanding and Enhancing Sepsis Survivorship. Priorities for Research and Practice

“…(2) developing and disseminating educational materials to clinicians working in postacute care facilities and the outpatient setting, such as this recent perspective on sepsis survivorship geared towards physical therapists 53 ; and (3) incorporating education on sepsis sequelae into medical school curriculum, professional society conferences, and continuing medical education opportunities. 67 ; and (4) co-design of critical illness follow-up clinics by patients and clinicians 68,69 .…”

Prediction Models for Physical, Cognitive, and Mental Health Impairments After Critical Illness: A Systematic Review and Critical Appraisal

“…Second, there is growing interest in the critical care community to improve ICU survivorship and address post-ICU impairments. Despite the lack of supporting evidence ( 24 , 26 ), one key intervention has been the establishment of post-ICU recovery programs globally ( 27 , 28 , 34 ). This review, along with the international consensus conference recommendations ( 32 ), can be used to inform the identification of patients who are more likely to encounter new problems or worsening of pre-existing problems following ICU discharge who may benefit from structured recovery programs.…”