Development of a novel, short, self-completed questionnaire on empowerment for patients with type 2 diabetes mellitus and an analysis of factors affecting patient empowerment

Hara, Yoriko; Iwashita, Sanae; Okada, Akira; Tajiri, Yuji; Nakayama, Hitomi; Kato, Tomoko; Nakao, Motoyuki; Tsuboi, Koji; Breugelmans, Raoul; Ishihara, Yoko

doi:10.1186/1751-0759-8-19

Cited by 14 publications

(23 citation statements)

References 15 publications

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“…Previous studies have found that men evidence higher empowerment levels than women [26]. A study of empowerment in diabetes patients also found a significant effect of gender where female patients may be struggling with greater psychological or family communication problems than males [27]. We also found that with increasing age, empowerment scores increased on both factors.…”

Section: Discussionsupporting

confidence: 74%

Factors in Patient Empowerment: A Survey of an Online Patient Research Network

Chiauzzi

DasMahapatra

Cochin

et al. 2016

Patient

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BackgroundProviders and healthcare organizations have begun recognizing the importance of patient empowerment as a driver of patient-centered care. Unfortunately, most studies have investigated empowerment with single diseases. Identifying factors of empowerment across conditions and populations would enable a greater understanding of this construct.ObjectiveThe purpose of this study was to understand empowerment in relation to health information-seeking, interactions with providers and peers, and healthcare access in chronic disease patients. This study also sought to identify key empowerment factors and their association with patient characteristics.MethodsParticipants were recruited through PatientsLikeMe, an online research platform where patients share their personal and medical history data. Patients completed an online survey that assessed self-reported health behavior (e.g. knowledge-seeking, experiences with healthcare providers, and peer interactions) and healthcare access. An exploratory factor analysis identified key empowerment domains. Domain level sum scores and sum of all domains (total score) were compared across patient characteristics and diseases.ResultsOverall, 3988 participants were included in the study, with the majority actively involved in their healthcare, but many cited difficulties with matching their treatment goals with those of their physician (34 %) and spending sufficient time with the physician (36 %). Factor analysis identified two domains—Positive Patient–Provider Interaction, and Knowledge and Personal Control—that explained >60 % of the overall variance in the observed variables. Mean total empowerment scores for patients with a primary complaint of Parkinson’s disease (61.8) and multiple sclerosis (60.3) were significantly greater than fibromyalgia (55.3) and chronic fatigue syndrome (54.8). Patients who were older, male, more educated, and insured also reported significantly greater levels of empowerment.ConclusionsThe two domains of empowerment identified in this study are consistent with previous studies, but the differences in empowerment levels across diseases suggest a need for further studies on disease-related attributes of empowerment. Future research should examine the pathways for empowerment, as well as the relationship between empowerment domains and clinical outcomes.Electronic supplementary materialThe online version of this article (doi:10.1007/s40271-016-0171-2) contains supplementary material, which is available to authorized users.

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Section: Discussionsupporting

confidence: 74%

Factors in Patient Empowerment: A Survey of an Online Patient Research Network

Chiauzzi

DasMahapatra

Cochin

et al. 2016

Patient

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“…The associated factors of self‐management in our study differ from those of Alrahbi (), Hara et al (), D'Souza et al () and Lin et al (). We found no significant relationship between diabetes self‐management and glycaemic control, similar to the study of Alrahbi ().…”

Section: Discussioncontrasting

confidence: 99%

“…The associated factors of self‐management in this study are the same as those of Alrahbi () and Hara et al (), who noted that gender was related to self‐management. In addition, male self‐efficacy is better than that of females, and males have better health behaviours (Burner, Menchine, Taylor, & Arora, ).…”

Section: Discussionsupporting

confidence: 82%

“…Compared with other studies, the gender proportion in our study varied. Regarding diabetes history, the average in previous studies was 7.1–18 years (Abu et al, ; Pérez‐Manchón, Redondo‐Pico, & Ramos‐Quirós, ; Edward et al, ; Hara et al, ; Huang et al, ; Ishak, Mohd Yusoff, Rahman, & Kadir, ), and the mean HbA1c value ranged from 7.3% to 9.21% (Abu et al, ; Ballotari et al, ; Hara et al, ; Ishak et al, ). Patients who received an elementary school/junior high school education accounted for 65% to 72.6% of the participants, while the education level was lower in our study (Ishak et al, ; Pérez‐Manchón et al, ; Thojampa & Mawn, ).…”

Section: Discussionmentioning

confidence: 97%

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Predictors for self‐management in older adults with type 2 diabetic nephropathy

Lee

Tung²,

Tsay

et al. 2020

Journal of Clinical Nursing

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Aim and Objectives To investigate factors related to self‐management and predictors of self‐management in older adult patients with type 2 diabetic nephropathy. Background Diabetic patients suffer many comorbidities during their lifetime, and the process of self‐management is complex. Self‐management and an integrated care experience are extremely important for older adults with diabetic nephropathy. Design A cross‐sectional correlation design was adopted. Methods A total of 123 older patients were enrolled in the study from June 2016 to November 2017. Data collection involved a demographic questionnaire, the Patients' Experience of Integrated Care Questionnaire and the Partners in Health Scale to measure the integrated care experience and self‐management. Data analysis included descriptive statistics, independent t tests, Pearson product‐moment correlation and multiple linear regression. The methods are consistent with the STROBE criteria (Data S1). Results The results showed that the majority of the sample was female (56.9%). The average age was 77 years old. Stepwise regression analysis showed that re‐admission during the past year (p < .001), physical function (p < .001) and integrated care experience (p < .001) are predictors of self‐management in older adult patients with type 2 diabetic nephropathy and explained 42.8% of the variation in self‐management behaviour. Conclusion The results can be used to enhance the awareness of clinicians of the importance of an integrated care experience and self‐management among older patients with type 2 diabetic nephropathy. Clinicians also should pay attention to physical function and the integrated care experience to promote self‐management. Relevance to Clinical Practice Studies on the integrated care experience and self‐management of diabetic neuropathy in older adults are limited in Taiwan. The results of this study provide valuable information to support the importance of integrated care among this specific population.

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“…The Diabetes Empowerment Scale (DES) has shown sufficient internal consistency, construct validity, reproducibility, factorial construct validity, and concurrent validity among patients with type 2 diabetes [9]. The results of the DES correlate with age, level of education, disease duration, educational program of diabetes applied, and metabolic control [10, 11].…”

Section: Methodology Of Empowerment Therapymentioning

confidence: 99%

Empowerment in the Treatment of Diabetes and Obesity

Łuczyński

Głowińska-Olszewska

Bossowski

2016

Journal of Diabetes Research

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As the available therapies for diabetes and obesity are not effective enough, diabetologists and educators search for new methods to collaborate with patients in order to support their health behaviors. The aim of this review is to discuss perspectives for the development of new empowerment-type therapies in the treatment of diabetes/obesity. Empowerment is a process whereby patients gain the necessary knowledge to influence their own behavior to improve the quality of their lives. It is carried out in five stages: (1) identify the problem, (2) explain the feelings and meanings, (3) build a plan, (4) act, and (5) experience and assess the execution. Although many years have passed since the advent and popularization of the concept of empowerment, the area remains controversial, mainly with regard to the methodology of therapy. Some previous studies have confirmed the positive effect of empowerment on body weight, metabolic control, and quality of life of patients with type 2 diabetes; however, few studies have been conducted in patients with type 1 diabetes. There is still a need to confirm the effectiveness of empowerment in accordance with Evidence Based Medicine by performing long-term observational studies in a large group of patients. In future, empowerment may become part of the standard of care for patients with diabetes and/or obesity.

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Development of a novel, short, self-completed questionnaire on empowerment for patients with type 2 diabetes mellitus and an analysis of factors affecting patient empowerment

Cited by 14 publications

References 15 publications

Factors in Patient Empowerment: A Survey of an Online Patient Research Network

Factors in Patient Empowerment: A Survey of an Online Patient Research Network

Predictors for self‐management in older adults with type 2 diabetic nephropathy

Empowerment in the Treatment of Diabetes and Obesity

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