Development of a Mixed Methods Investigation of Process and Outcomes of Community-Based Participatory Research

Lucero, Julie; Wallerstein, Nina; Duran, Bonnie; Alegrı́a, Margarita; Greene-Moton, Ella; Israel, Barbara A.; Kastelic, Sarah; Magarati, Maya; Oetzel, John; Pearson, Cynthia; Schulz, Amy J.; Villegas, Malia

doi:10.1177/1558689816633309

Cited by 134 publications

(160 citation statements)

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“…Relationships, group processes and group functioning influence how members of community-academic research partnerships describe the value of partnerships; however, aside from notable exceptions (Chang et al 2013;Duran et al 2013;Hicks et al 2012;Israel et al 1995;Lucero et al 2016;Schulz, Israel & Lantz 2003;Udoh et al 2013;), they may not be explicitly discussed within partnerships. Members report that they rely on intuitive, unintentional and unspoken methods of determining partnership success, particularly in the early phases of research that precede the availability of long-term communitylevel health and social outcome data.…”

Section: Resultsmentioning

confidence: 99%

“…The academic participant described the impact on the reach of the research and relationships within the partnership: Hicks et al 2012;Israel et al 1995;Israel et al 2013;Lucero et al 2016;Schulz, Israel & Lantz 2003;Udoh et al 2013;). This especially means that the unique contexts and needs of individual partnerships should be considered (Chang et al 2013).…”

Section: And the Communication The Fact That We Were In Touch That mentioning

confidence: 99%

“…Although partnership processes such as relationshipbuilding, trust, communication, decision-making, capacitybuilding and knowledge generation are considered key components of participatory research models (Roman Isler & Corbie-Smith 2012;, researchers are still identifying how partnership processes impact long-term population-level outcomes or other unintended outcomes (Jagosh et al 2015;Lucero et al 2016;Roman Isler & Corbie-Smith 2012). Some researchers have referred to these processes as 'intermediate outcomes' because they are critical influencers of long-term outcomes (Jagosh et al 2015;Roman Isler & Corbie-Smith 2012;Schulz, Israel & Lantz 2003), whereas others have referred to them as 'secondary outcomes' (Malone et al 2013).…”

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confidence: 99%

“…Some researchers have referred to these processes as 'intermediate outcomes' because they are critical influencers of long-term outcomes (Jagosh et al 2015;Roman Isler & Corbie-Smith 2012;Schulz, Israel & Lantz 2003), whereas others have referred to them as 'secondary outcomes' (Malone et al 2013). Regardless, efforts to continue the advancement of community-academic research approaches necessitate further examination of the interaction between partnership processes and outcomes (Brugge et al 2010;Hicks et al 2012;Lucero et al 2016;. Furthermore, the complexity of outcomes in partnered research warrants the use of qualitative methods in addition to quantitative methods (El Ansari & Weiss 2006;Lucero et al 2016;Sandoval et al 2012).…”

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confidence: 99%

“…Regardless, efforts to continue the advancement of community-academic research approaches necessitate further examination of the interaction between partnership processes and outcomes (Brugge et al 2010;Hicks et al 2012;Lucero et al 2016;. Furthermore, the complexity of outcomes in partnered research warrants the use of qualitative methods in addition to quantitative methods (El Ansari & Weiss 2006;Lucero et al 2016;Sandoval et al 2012). …”

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confidence: 99%

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The journey and destination need to be intentional: Perceptions of success in community-academic research partnerships

Lindquist-Grantz

Vaughn

2016

Gateways

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Research partnerships between community members and academics are dynamic microsystems that aim to increase community wellbeing within complex environments. Efforts to improve health and social outcomes in communities are challenging in their own right, but even the most experienced researchers or engaged community members can have difficulty navigating the collaborative terrain of community-academic research partnerships. Proponents of participatory research models that engage community members as co-researchers are still examining how the collaborative process interacts with, and impacts, both short- and long-term outcomes. As a result, there has been a call for additional studies that employ qualitative and quantitative methods to contribute to a holistic understanding of this approach to research. This pilot study utilized the participatory tenets of co-researcher models to explore how members of community-academic research partnerships think about partnership processes and outcomes, including how they delineate between the two. Web-based concept mapping methodology was combined with individual interviews in an innovative mixed methods research study to further the field’s understanding of how community and academic members define partnership success and evaluate the impact of their work. Our findings suggest that in the early stages of a partnership members rely on informal and intuitive evaluation of success based on how the partnership is functioning. These partnership processes, which serve as intermediate outcomes, largely influence member engagement in the work, but partnerships are ultimately deemed successful if intended community-based research outcomes are achieved.Keywords: community-academic research partnerships, participatory research, concept mapping methodology, mixed methods, partnership process, outcomes

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Section: Resultsmentioning

confidence: 99%

Section: And the Communication The Fact That We Were In Touch That mentioning

confidence: 99%

mentioning

confidence: 99%

mentioning

confidence: 99%

mentioning

confidence: 99%

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The journey and destination need to be intentional: Perceptions of success in community-academic research partnerships

Lindquist-Grantz

Vaughn

2016

Gateways

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Holding Space for All of Us

Lucero

Roubideaux

2020

AMA Journal of Ethics

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Negative experiences and misunderstanding are common in tribalacademic research partnerships. The Holding Space: A Guide for Partners in Tribal Research draws on the concepts of governance, trust, and culture to strengthen relationships, honor tribal sovereignty, counter histories of opportunistic research, and recognize all ways of knowing. We apply the Holding Space toolkit concepts to the All of Us Research Program and call on all research studies funded by the federal government to honor governance, trust, and culture in research partnerships with tribal nations. Need for Tribal-Academic Partnerships While social and health research has addressed some health challenges in American Indian and Alaska Native (AI/AN) communities, 1,2 health disparities persist 3 and are not easily resolved. 2,4 For example, diabetes prevention and control require strategy implementation at the individual, family, and community level. 5 Additionally, many AI/ANs and tribal nations have long-standing mistrust of research and research policies shaped by interactions with opportunistic academic researchers doing federally funded work without tribal input or benefit sharing. 4,6,7 Participatory or community-engaged research is one approach to reducing mistrust and ensuring tribal communities' equal partnership in research. 8,9 Strong tribal-academic research partnerships that adhere to principles of participatory research can play a key role in developing the multilevel and contextualized solutions required to achieve health equity for AI/ANs. 9,10 The National Institutes of Health (NIH) and Patient-Centered Outcomes Research Institute acknowledge the scientific value of inclusive, partnered research, 11,12 and the Common Rule requires federally funded researchers to comply with state, local, and tribal laws. 13 However, theory-practice gaps-manifest in discounting tribal sovereignty, paying little attention to cultural protocols, or minimizing community concerns raised by research-can cause or reintroduce mistrust and exacerbate disparities. For example, one recent research incident with the Havasupai Tribe demonstrates the need for meaningful tribal-academic partnerships in genetics research. 14

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Disaster Exposure and Mental Health Among Puerto Rican Youths After Hurricane Maria

et al. 2019

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Importance Quantifying the magnitude of disaster exposure and trauma-related symptoms among youths is critical for deployment of psychological services in underresourced settings. Hurricane Maria made landfall in Puerto Rico on September 20, 2017, resulting in massive destruction and unprecedented mortality. Objective To determine the magnitude of disaster exposure and mental health outcomes among Puerto Rican youths after Hurricane Maria. Design, Setting, and Participants Survey study in which a school-based survey was administered to each public school student at all schools in Puerto Rico between February 1 and June 29, 2018 (5-9 months after Hurricane Maria). Of the 226 808 students eligible to participate, 96 108 students completed the survey. Main Outcomes and Measures Participants were assessed for exposure to hurricane-related stressors, posttraumatic stress disorder (PTSD), and depressive symptoms, using standardized self-report measures administered in Spanish. Descriptive statistics were compiled for all outcome variables, as was the frequency of individuals reporting clinically elevated symptoms of PTSD or depression. Differences in these statistics across sexes were also examined via t tests. Correlations between demographic, geographic, and main outcome variables were also calculated, and regressions were conducted to examine their association with symptoms of PTSD. Results A total of 96 108 students participated in the study (42.4% response rate; 50.3% female), representative of grades 3 to 12 across all 7 educational regions of Puerto Rico. As a result of the hurricane, 83.9% of youths saw houses damaged, 57.8% had a friend or family member leave the island, 45.7% reported damage to their own homes, 32.3% experienced shortages of food or water, 29.9% perceived their lives to be at risk, and 16.7% still had no electricity 5 to 9 months after the hurricane. Overall, 7.2% of youths (n = 6900) reported clinically significant symptoms of PTSD; comparison of the frequency of reporting clinically elevated symptoms of PTSD across sex yielded a significant difference ( t = 12.77; 95% CI of the difference, 0.018-0.025; P < .001), with girls (8.2%) exceeding the clinical cutoff score more often than boys (6.1%). Finally, similar analysis of differences in depression between sexes was also significant ( t = 17.56; 95% CI of the difference, 0.31-0.39; P < .001), with girls displaying higher mean (SD) scores (2.72 [3.14]) than boys (2.37 [2.93]). Demographic and risk variables accounted for approximately 20% of variance in symptoms of PTSD ( r 2 = 0.195; 95% CI, 0.190-0.200). Conclusions and Relevance Survey results indicate that Hurricane Maria exposed Puerto Rican youths to hig...

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Development of a Mixed Methods Investigation of Process and Outcomes of Community-Based Participatory Research

Cited by 134 publications

References 59 publications

The journey and destination need to be intentional: Perceptions of success in community-academic research partnerships

The journey and destination need to be intentional: Perceptions of success in community-academic research partnerships

Holding Space for All of Us

Disaster Exposure and Mental Health Among Puerto Rican Youths After Hurricane Maria

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