Development of a health education programme for elderly with age-related macular degeneration: a focus group study

Dahlin‐Ivanoff, Synneve; Klepp, Knut‐Inge; Sjöstrand, Johan

doi:10.1016/s0738-3991(98)00041-x

Cited by 52 publications

(30 citation statements)

References 29 publications

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“…As expected, all participants reported that they had received information from organisations such as the Macular Society. In contrast, not all the participants reported getting information from their ophthalmologist, which is consistent with previous studies (Dahlin-Ivanoff, Sjöstrand, & Klepp, 1998;RNIB, 2013). The data reported here show that there are clear gaps in the knowledge patients have of AMD risk factors (Kandela, Lamkin, Albanese, & Edward, 2010).…”

Section: Informationsupporting

confidence: 90%

Age-related macular degeneration patients’ awareness of nutritional factors

Stevens

Bartlett

Walsh

et al. 2014

British Journal of Visual Impairment

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Age-related macular degeneration (AMD) is the leading cause of visual impairment in older adults in the United Kingdom. This study sought to characterise AMD patients who seek the services of the Macular Society, and determine the level and source of their dietary knowledge. A questionnaire was designed, validated, and administered to 158 participants. The questions covered demographic data and knowledge of nutrition and supplementation. The mean age of participants was 79 years; 61% of them were female, and 27% were registered visually impaired. Only 55% of the participants thought diet was important for eye health, 63% felt that they had not received enough information about AMD. The participants reported that their information mainly came from non-professional support groups. Most participants identified healthy food, but could not say why, and were not able to identify carotenoid rich foods. The results of the study will inform design of education and dissemination methods regarding dietary information.

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Section: Informationsupporting

confidence: 90%

Age-related macular degeneration patients’ awareness of nutritional factors

Stevens

Bartlett

Walsh

et al. 2014

British Journal of Visual Impairment

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“…In this sense, this study confirms those few studies that have analysed the processes for this type of group intervention (Dahlin-Ivanoff et al, 1998;McCallion & Toseland, 1995;Schultz et al, 1993). However, it is evident that these processes are sometimes intermingled and there is Understanding outcomes of a psycho-educational group 31 a strong possibility that they mutually reinforce each other.…”

Section: Discussionsupporting

confidence: 87%

“…Two studies, however, had a more inductive approach to the process evaluation of educational groups (Dahlin-Ivanoff, Klepp & Sjö strand, 1998;Schultz, Smyrnios, Grbich & Schultz, 1993). DahlinIvanoff et al (1998), reporting on a psycho-educational group program for older persons with macular degeneration, found that participants appreciated the information and skills training they received.…”

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confidence: 99%

“…However, Schultz et al (1993) made only a general link between the identified group processes and the outcomes, which consisted of a significant reduction in participants' situational anxiety and an improvement in their affect balance. Dahlin-Ivanoff et al (1998) was the only study that attempted to associate processes with identified outcomes, albeit briefly. These studies thus have not allowed a clear link to be made between the processes and potential outcomes of this type of intervention.…”

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confidence: 99%

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Understanding the outcomes of a psycho-educational group intervention for caregivers of persons with dementia living at home: A process evaluation

Lavoie

Ducharme

Lévesque

et al. 2005

Aging & Mental Health

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This qualitative process evaluation study aimed to identify the primary processes of a psycho-educational group for caregivers of persons with dementia, in order to better understand intervention outcomes. Semi-structured interviews were conducted with 30 participants recruited from the experimental group of a randomised controlled trial. At pre-test, participants reported their expectations of the group. At post-test, they described their group experience, the most/least helpful aspects of the intervention, their most useful learning and their responses during a recent episode of disturbing behaviour by their relative. Results showed that the group delivered both educational and support processes. Support processes complemented educational processes. Participants learned coping strategies, with reframing playing a more important role than problem-solving or seeking social support. Daughters benefited more than spouses from educational processes. This study of group processes contributes to our understanding of the reported reduction in frequency of disturbing behaviours and of the change in caregivers' behaviours.

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“…Group based rehabilitation components appear to be helpful 39,41,48,49,60 but what can other components contribute to positive patient outcomes e.g. homework, 'counselling for all', 'gadgets', 'a home based assessment' etc?…”

Section: B Future Research Agendamentioning

confidence: 99%

How Effective is Low Vision Service Provision? A Systematic Review

Binns

Bunce

Dickinson

et al. 2012

Survey of Ophthalmology

202

209

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This is the unspecified version of the paper.This version of the publication may differ from the final published version. Permanent repository link Abstract.Visual impairment is a large and growing socioeconomic problem. Good evidence on rehabilitation outcomes is required to guide service development and improve the lives of people with sight loss.Of the 478 potentially relevant articles identified, only 58 studies met our liberal inclusion criteria, and of these only 7 were randomized controlled trials. Although the literature is sufficient to confirm that rehabilitation services result in improved clinical and functional ability outcomes, the effects on mood, vision-related quality of life (QoL) and health-related QoL are less clear. There are some good data on the performance of particular types of intervention, but almost no useful data about outcomes in children, those of working age and other minority groups. There were no reports on cost effectiveness. Overall, the number of well designed and adequately reported studies is pitifully small; visual rehabilitation research needs higher quality research. We highlight study design and reporting considerations and suggest a future research agenda.

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Development of a health education programme for elderly with age-related macular degeneration: a focus group study

Cited by 52 publications

References 29 publications

Age-related macular degeneration patients’ awareness of nutritional factors

Age-related macular degeneration patients’ awareness of nutritional factors

Understanding the outcomes of a psycho-educational group intervention for caregivers of persons with dementia living at home: A process evaluation

How Effective is Low Vision Service Provision? A Systematic Review

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