Development of a disease specific quality of life (QoL) questionnaire module to supplement the EORTC core cancer QoL questionnaire, the QLQ-C30 in patients with pancreatic cancer

Fitzsimmons, Deborah; Johnson, C. D.; George, Steve; Payne, Sheila; Sandberg, A; Bassi, Claudio; Beger, Hans G.; Birk, Dieter; Büchler, Markus W.; Dervenis, Christos; Cruz, Laureano Fernández; Frieß, Helmut; Grahm, Anna-Lena; Jeekel, J.; Laugier, R.; Meyer, Douglas; Singer, Marybeth; Tihanyi, Tibor

doi:10.1016/s0959-8049(99)00047-7

Cited by 230 publications

(158 citation statements)

References 7 publications

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“…Research and Treatment of Cancer Core Quality of Life Questionnaire (EORTC QLQ-C30, version 3.0) [22] including the QLQ-PAN26, a specific module for pancreatic cancer [23]. In line with the study objectives, this report only presents results from dietary intake, QLQ-PAN26 and the ESAS.…”

Section: Symptom Assessmentmentioning

confidence: 99%

“…A score of 4 or higher was identified as moderate to severe intensity [24]. The QLQ-PAN26 includes 26 items covering symptoms related to PC and its treatment (pancreatic pain, dietary changes, altered bowel habits, indigestion, flatulence, oral dryness, taste changes, cachexia and jaundice) as well as emotional problems (body image, fear of future health, healthcare satisfaction and sexuality) [23]. For this study we only used the eight items/scales covering symptoms most likely to influence dietary intake; pancreatic pain, dietary changes, altered bowel habits, indigestion, flatulence, oral dryness, taste changes and cachexia [25,26].…”

Section: Symptom Assessmentmentioning

confidence: 99%

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Symptoms in advanced pancreatic cancer are of importance for energy intake

Bye

Jordhøy

Skjegstad

et al. 2012

Support Care Cancer

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Purpose: Cancer cachexia and low energy intake (EI) probably contribute to weight loss in advanced pancreatic cancer (PC). However, little is known about the actual EI in this disease. Aims were to assess EI, weight loss and symptoms during the disease course and investigate associations between symptoms and EI.Methods: Thirty-nine patients (21 males) with advanced PC were consecutively included and followed every 4 weeks until the end of life. A 24-hour dietary recall was used to assess EI. The Edmonton Symptom Assessment System (ESAS) and the PC-specific health-related quality of life questionnaire (QLQ-PAN26) were used for symptom assessment. Conclusion:In this study several symptoms influenced EI negatively. Low EI did not completely explain weight loss in this patient group, but careful monitoring and early follow-up of symptoms may be important interventions to reduce weight loss in advanced PC.

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Section: Symptom Assessmentmentioning

confidence: 99%

Section: Symptom Assessmentmentioning

confidence: 99%

Symptoms in advanced pancreatic cancer are of importance for energy intake

Bye

Jordhøy

Skjegstad

et al. 2012

Support Care Cancer

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“…11 A reliable disease-specific quality-of-life questionnaire has been developed in Europe, which should enable the impact of pancreatic cancer to be assessed, but until then, the so-called intangible costs remain essentially unaccounted. 12 General cost evaluations have been reported in the USA. The total cost of cancer care in the USA in 1999 was reported by one group to be about US$146 billion and it was estimated that pancreatic cancer accounted for approximately 1.8% (US$2.6 billion) of the overall cost, while another estimate suggested the total cost could be as high as US$4.9 billion, the latter including some indirect costs.…”

Section: Financial Burdenmentioning

confidence: 99%

Pancreatic diseases

McNamara

2003

Aliment Pharmacol Ther

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“…Benefits in terms of survival time and the alleviation of symptoms may be outweighed by the cost of toxicity and deterioration in QoL. 104 There is some evidence to support the role of chemotherapy in advanced pancreatic cancer. In 1996, Glimelius and colleagues reported on 90 patients with advanced pancreatic and biliary cancer who were randomised to receive chemotherapy (5-FU, leucovorin with or without etoposide) plus BSC or BSC alone.…”

Section: Quality Of Life Issuementioning

confidence: 99%

A rapid and systematic review of the clinical effectiveness and cost-effectiveness of gemcitabine for the treatment of pancreatic cancer

Ward

Morris²,

Bansback³

et al. 2001

Health Technol Assess

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Development of a disease specific quality of life (QoL) questionnaire module to supplement the EORTC core cancer QoL questionnaire, the QLQ-C30 in patients with pancreatic cancer

Cited by 230 publications

References 7 publications

Symptoms in advanced pancreatic cancer are of importance for energy intake

Symptoms in advanced pancreatic cancer are of importance for energy intake

Pancreatic diseases

A rapid and systematic review of the clinical effectiveness and cost-effectiveness of gemcitabine for the treatment of pancreatic cancer

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