Development of a diagnosis disclosure model for perinatally HIV-infected children in Thailand

Boon-yasidhi, Vitharon; Chokephaibulkit, Kulkanya; Ms, McConnell; Vanprapar, Nirun; Leowsrisook, Pimsiri; Prasitsurbsai, W; Durier, Yuitiang; K, Klumthanom; Patel, Aashay; Sukwicha, W; Naiwatanakul, Thananda; T, Chotpitayasunond

doi:10.1080/09540121.2012.749331

Cited by 19 publications

(29 citation statements)

References 10 publications

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“…28 The youngest age of disclosure in this study was 5 years and this is in line with what some experts are advocating for, disclosure as early as 5 to 7 years. 25,29,30 However, in this study, most of the caretakers thought that younger children did not seem to understand the implications of HIV diagnosis. Most of the children thought the optimal age for specific discussions about an HIV infected child's health should be conducted at an average age of 10 years.…”

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confidence: 76%

Factors affecting disclosure of serostatus to children attending Jinja Hospital Paediatric HIV clinic, Uganda

Namasopo-Oleja¹,

Bagenda²,

Ekirapa-Kiracho³

2015

Afr H. Sci.

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Abstract:Background: Disclosure of HIV status is important for optimal adherence to antiretroviral therapy in children. Identifying factors that affect disclosure of sero-status to children will help improve the process of disclosure. The purpose of the study was to determine the rate of HIV disclosure by the parents/caretakers to their children and other factors affecting disclosure. Methods: A cross sectional study among 174 caretakers of children age 5-18 years, twenty children and all (ten) health workers at Jinja Hospital paediatric HIV clinic. Data was collected with standardized questionnaires on socio-demographic factors, disclosure status, health facility factors, fears and perceived benefits of disclosure. Results: We found disclosure rates in 56% of the children. Among those not disclosed to, non-disclosure was 19% and deception 25%. Factors associated with disclosure of sero-status to a child were age of child (X2 37.4 df 1 p< 0.001), child being on antiretroviral therapy (OR 2.0 CI 1.1-3.6 p=0.024) and child attending psychosocial support group (OR 7.4 CI 3.6-15.3 p < 0.001). There were no appropriate guidelines on disclosure and only half of health providers had training on disclosure of HIV serostatus to children. Conclusion:The overall prevalence of disclosure was low. Psychosocial support groups promoted disclosure.

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confidence: 76%

Factors affecting disclosure of serostatus to children attending Jinja Hospital Paediatric HIV clinic, Uganda

Namasopo-Oleja¹,

Bagenda²,

Ekirapa-Kiracho³

2015

Afr H. Sci.

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“…Psychosocial and mental health Strategies directed at health providers, families, teachers and HIV-infected adolescents to manage stigmaProviding life-skills and vocational supportOptimum disclosure strategies 161 Age-appropriate and culturally valid screening and management of mental health problems…”

Section: Panel 1: Suggested Interventions and Research Prioritiesmentioning

confidence: 99%

Perinatally acquired HIV infection in adolescents from sub-Saharan Africa: a review of emerging challenges

Lowenthal

Bakeera-Kitaka

Marukutira

et al. 2014

The Lancet Infectious Diseases

376

397

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Worldwide, more than three million children are infected with HIV, 90% of whom live in sub-Saharan Africa. As the HIV epidemic matures and antiretroviral treatment is scaled up, children with HIV are reaching adolescence in large numbers. The growing population of adolescents with perinatally acquired HIV infection living within this region presents not only unprecedented challenges but also opportunities to learn about the pathogenesis of HIV infection. In this Review, we discuss the changing epidemiology of paediatric HIV and the particular features of HIV infection in adolescents in sub-Saharan Africa. Longstanding HIV infection acquired when the immune system is not developed results in distinctive chronic clinical complications that cause severe morbidity. As well as dealing with chronic illness, HIV-infected adolescents have to confront psychosocial issues, maintain adherence to drugs, and learn to negotiate sexual relationships, while undergoing rapid physical and psychological development. Context-specific strategies for early identification of HIV infection in children and prompt linkage to care need to be developed. Clinical HIV care should integrate age-appropriate sexual and reproductive health and psychological, educational, and social services. Health-care workers will need to be trained to recognise and manage the needs of these young people so that the increasing numbers of children surviving to adolescence can access quality care beyond specialist services at low-level health-care facilities.

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“…To increase disclosure rates, caregiver satisfaction with the disclosure process and positive child outcomes, there may be a role for modelling to increase self-efficacy (Bandura, 1998; Gillard & Roark, 2013), motivational interviewing to sensitively address ambivalence (Miller & Rollnick, 2009), and health system interventions to enhance support. Some paediatric HIV disclosure interventions have been developed (Blasini et al, 2004b; Boon-Yasidhi et al, 2013; Cantrell, Patel, Mandrell, & Grissom, 2013; Nicastro et al, 2013; O’Malley et al, 2015), although with limited grounding in theory and an absence of comprehensive evaluation.…”

Section: Practice Implicationsmentioning

confidence: 99%

A model of caregiver paediatric HIV disclosure decision-making

Evangeli

Kagee

2015

Psychology, Health & Medicine

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Many of the over 3 million HIV-positive children will only be told of their status as adolescents. Knowing one’s status may increase treatment adherence, reduce onward HIV transmission, increase trust in caregivers, and maximise available support. Yet deciding whether, what, how, and when to tell HIV-positive children about their condition, is challenging for caregivers. We systematically review HIV disclosure theories before presenting a process model of caregiver paediatric HIV disclosure decision-making. The model, consisting of both a pre-intention and a post-intention stage, integrates individual and contextual determinants. It aims to be situationally-specific, broadly applicable, and consistent with the empirical literature. Research and practice implications are discussed.

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Development of a diagnosis disclosure model for perinatally HIV-infected children in Thailand

Cited by 19 publications

References 10 publications

Factors affecting disclosure of serostatus to children attending Jinja Hospital Paediatric HIV clinic, Uganda

Factors affecting disclosure of serostatus to children attending Jinja Hospital Paediatric HIV clinic, Uganda

Perinatally acquired HIV infection in adolescents from sub-Saharan Africa: a review of emerging challenges

A model of caregiver paediatric HIV disclosure decision-making

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