Development of a dementia assessment quality database

Johannsen, Peter; Jørgensen, Kasper; Kørner, Alex; Elmo, Elisabeth; Lauesen, Lene B.; Utzon, Jan

doi:10.1080/13607863.2010.508769

Cited by 14 publications

(11 citation statements)

References 16 publications

(16 reference statements)

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“…However, the specialist care units, where patients are visited by geriatricians and/or neurologists and/or psychiatrists, followed the guidelines to a significantly higher extent than primary care units. The use of a structural brain scan (CT or MRI) in Denmark has been reported to be as high as 93% [23], which is similar to the percentage reported in the present study.…”

Section: Discussionsupporting

confidence: 82%

The Use of MRI, CT and Lumbar Puncture in Dementia Diagnostics: Data from the SveDem Registry

Falahati

Fereshtehnejad

Religa³

et al. 2014

Dement Geriatr Cogn Disord

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Background/Aims: The use of structural brain imaging [computed tomography (CT)/magnetic resonance imaging (MRI)] and the analysis of cerebrospinal fluid biomarkers are included in the guidelines for the diagnosis of dementia. The influence of variables such as age, gender and disease severity on the use of MRI, CT and lumbar puncture (LP) for the differential diagnosis of dementia and the consonance with the recommendations of the Swedish national guidelines were investigated. Methods: From the National Swedish Dementia Registry (SveDem), 17,057 newly diagnosed dementia patients were included in our study, with the majority from specialist care units (90%). Results: In the diagnostic workup, a CT was performed in 87%, MRI in 16% and LP in 40% of the cases. Age (p < 0.001) and cognitive status (p < 0.001) significantly influenced the use of MRI, CT or LP. Older patients with severe dementia were often investigated with CT. LP and MRI were used more often when less common dementia disorders were suspected. Conclusion: Our findings indicate that age, severity of cognitive impairment and the type of dementia disorder suspected are determinants for the choice of CT, MRI or LP. The majority of the dementia workups in specialist care units follow the recommendations of the Swedish national guidelines where CT is performed as a basic workup, and MRI and LP are chosen when extended workup is needed. © 2014 S. Karger AG, Basel

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Section: Discussionsupporting

confidence: 82%

The Use of MRI, CT and Lumbar Puncture in Dementia Diagnostics: Data from the SveDem Registry

Falahati

Fereshtehnejad

Religa³

et al. 2014

Dement Geriatr Cogn Disord

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“…AD and related disorders databases already exist in several countries. Although the BNA provides a minimum dataset in comparison with others containing biological [19], histological [20,21], or clinical data [22,23], its advantage is of course its size and statistical power. With the example of the French Hospital Database on HIV [24], the BNA is one of the rare national databases allowing the ongoing collection of socio-demographic, epidemiological, and clinical data on AD and related disorders.…”

Section: Discussionmentioning

confidence: 99%

The 2008–2012 French Alzheimer Plan: Description of the National Alzheimer Information System

Duff

Develay

Quetel

et al. 2012

JAD

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In France, one of the aims of the current national Alzheimer's disease plan is to collect data from all memory centers (memory units, memory resource and research centers, independent neurologists) throughout the country. Here we describe the French Alzheimer Information System and present a 'snapshot' of the data collected throughout the country during the first year of operation. We analyzed all data transmitted by memory centers between January 2010 and December 2010. Each participating center is required to transmit information on patients to the French National Alzheimer dataBank (BNA). This involves completing a computer file containing 31 variables corresponding to a limited data set on AD (CIMA: Corpus minimum d'information Alzheimer). In 2010, the BNA received data from 320 memory centers relating to 199,113 consultations involving 118,776 patients. An analysis of the data shows that the initial MMSE (Mini Mental State Examination) mean score for patients in France was 16.8 points for Alzheimer's disease, 25.7 points for mild cognitive impairment, and 18.8 points for 'related disorders related disorders. The BNA will provide longitudinal data that can be used to assess the needs of individual local health areas and size specialized care provision in each regional health scheme. By contributing to the BNA, the memory centers enhance their clinical activity and help to advance knowledge in epidemiology and medical research in the important field of Alzheimer's disease and related dementias.

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“…There have been similar successful attempts in other countries to establish a quality dementia registry, such as in Denmark [ 12 ]. Whereas other registries have been developed to facilitate epidemiological studies [ 13 ], study the clinical expression of AD [ 14 ], provide a framework for recruitment of patients for clinical trials [ 15 ] or promote equality in the access for medical services [ 16 ].…”

Section: Discussionmentioning

confidence: 99%

SveDem, the Swedish Dementia Registry – A Tool for Improving the Quality of Diagnostics, Treatment and Care of Dementia Patients in Clinical Practice

et al. 2015

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BackgroundThe Swedish Dementia Registry (SveDem) was developed with the aim to improve the quality of diagnostic work-up, treatment and care of patients with dementia disorders in Sweden.MethodsSveDem is an internet based quality registry where several indicators can be followed over time. It includes information about the diagnostic work-up, medical treatment and community support (www.svedem.se). The patients are diagnosed and followed-up yearly in specialist units, primary care centres or in nursing homes.ResultsThe database was initiated in May 2007 and covers almost all of Sweden. There were 28 722 patients registered with a mean age of 79.3 years during 2007–2012. Each participating unit obtains continuous online statistics from its own registrations and they can be compared with regional and national data. A report from SveDem is published yearly to inform medical and care professionals as well as political and administrative decision-makers about the current quality of diagnostics, treatment and care of patients with dementia disorders in Sweden.ConclusionSveDem provides knowledge about current dementia care in Sweden and serves as a framework for ensuring the quality of diagnostics, treatment and care across the country. It also reflects changes in quality dementia care over time. Data from SveDem can be used to further develop the national guidelines for dementia and to generate new research hypotheses.

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Development of a dementia assessment quality database

Abstract: Clinical quality indicators based on all patients evaluated for dementia can be used to standardize and harmonize the evaluation process and improve clinical health services.

Cited by 14 publications

References 16 publications

The Use of MRI, CT and Lumbar Puncture in Dementia Diagnostics: Data from the SveDem Registry

The Use of MRI, CT and Lumbar Puncture in Dementia Diagnostics: Data from the SveDem Registry

The 2008–2012 French Alzheimer Plan: Description of the National Alzheimer Information System

SveDem, the Swedish Dementia Registry – A Tool for Improving the Quality of Diagnostics, Treatment and Care of Dementia Patients in Clinical Practice

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