Development and validation of the Crohnʼs disease perceived work disability questionnaire

Vergara, Mercedes; Montserrat, A.; Casellas, Francesc; Gallardo, Olga; Suarez, David L.; Motos, Jaume; Villòria, Albert; Miquel, Mireia; Martínez–Bauer, Eva; Calvet, Xavier

doi:10.1002/ibd.21604

Cited by 23 publications

(8 citation statements)

References 38 publications

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“…Additional details from these studies are provided to supplement the descriptions of concepts elicited from study participants (Table 2). The 6 most widely used and established IBD-specific health-related quality of life measures 9 were reviewed: the Inflammatory Bowel Disease (IBDQ) 6 Questionnaire, a 36-item version of the IBDQ 33 , the Crohn’s Disease Perceived Work Disability Questionnaire(CDPWDG) 34 , the Inflammatory Bowel Disease Stress Index (IBDSI) 8 , the Rating Form of IBD Patient Concerns (RFIPC 7 , and the Work Productivity and Activity Impairment Questionnaire: Crohn’s Disease (WPAI-CD) 35 . Concepts captured by items in the IBD-specific PRO measures were added to those identified by the focus groups, interviews, and qualitative studies in the literature to produce an inventory of all concepts identified by each of these 3 sources.…”

Section: Resultsmentioning

confidence: 99%

“… a CDPWDG: Crohn’s Disease Perceived Work Disability Questionnaire 34 IBDQ: Inflammatory Bowel Disease Questionnaire (32 items) 6 IBDQ-36: Inflammatory Bowel Disease Questionnaire (36 items) 33 IBDSI: Inflammatory Bowel Disease Stress Index 8 RFIPC: Rating Form of IBD Patient Concerns 7 WPAI-CD: Work Productivity and Activity Impairment Questionnaire: Crohn’s Disease 35 …”

Section: Figurementioning

confidence: 99%

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The Burden of Inflammatory Bowel Disease

Devlen¹,

Beusterien²,

Yen

et al. 2014

Inflammatory Bowel Diseases

110

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Background The aim of this study was to describe the impacts of inflammatory bowel disease (IBD) from the patients’ perspective, and to inform the development of a conceptual model. Methods Focus groups and one-on-one interviews were undertaken in adult patients with IBD. Transcripts from the focus groups and interviews were analyzed to identify themes and links between themes, assisted by qualitative data software MaxQDA. Themes from the qualitative research were supplemented with those reported in the literature and concepts included in IBD-specific patient-reported outcome (PRO) measures. Results Twenty-seven patients participated. Key physical symptoms included pain, bowel-related symptoms such as frequency, urgency, incontinence, diarrhea, passing blood, and systemic symptoms such as weight loss and fatigue. Participants described continuing and variable symptom experiences. IBD symptoms caused immediate disruption of activities but also had ongoing impacts on daily activities, including dietary restrictions, lifestyle changes, and maintaining close proximity to a toilet. More distal impacts included interference with work, school, parenting, social and leisure activities, relationships, and psychological well-being. The inconvenience of rectal medications, refrigerated biologics, and medication refills emerged as novel burdens not identified in existing PRO measures. Conclusions IBD symptoms cause immediate disruption in activities, but patients may continue to experience some symptoms on a chronic basis. The conceptual model presented here may be useful for identifying target concepts for measurement in future studies in IBD.

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Section: Resultsmentioning

confidence: 99%

Section: Figurementioning

confidence: 99%

The Burden of Inflammatory Bowel Disease

Devlen¹,

Beusterien²,

Yen

et al. 2014

Inflammatory Bowel Diseases

110

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“…The PROM characteristics such as the provided construct definitions, target populations, subscales, and range of scores are represented in Table 1 . Of all 44 instruments seven report to measure some concept of disability: two on perceived work disability 39 , 40 and the rest on a form of disease-related disability. 41–45 Eighteen PROMs could be categorised as measuring self-reported disease activity.…”

Section: Resultsmentioning

confidence: 99%

“…For six PROMs it was not clear how many subscales were present or which items made up the reported subscales. 39–41 , 44 ,67,78 The reported content validity studies represent the instruments as a whole. Comprehensibility was the most studied [ n = 17] aspect of content validity, including five on the IBDQ-32 [and modifications] and one on the IBDDI-14-s, aimed at testing an adaptation in a new language.…”

Section: Resultsmentioning

confidence: 99%

Systematic Review of Development and Content Validity of Patient-reported Outcome Measures in Inflammatory Bowel Disease: Do We Measure What We Measure?

Andel

Koopmann

Crouwel

et al. 2020

Journal of Crohn's and Colitis

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Background and Aims Patient-reported outcome measures are increasingly important in daily care and research in inflammatory bowel disease [IBD]. This study provides an overview of the content and content validity of IBD-specific patient-reported outcome measures on three selected constructs. Methods Databases were searched up to May 2019 for development and/or content validity studies on IBD-specific self-report measures on health-related quality of life, disability, and self-report disease activity in adults. Evidence was synthesised on content validity in three aspects: relevance, comprehensiveness, and comprehensibility following the COnsensus-based Standards for the selection of health Measurement INstruments methodology. Questionnaire items were organised in themes to provide an overview of important aspects of these constructs. Results For 14/44 instruments, 25 content validity studies were identified and 25/44 measures had sufficient content validity, the strongest evidence being of moderate quality, though most evidence is of low or very low quality. The Crohn’s Life Impact Questionnaire and IBD questionnaire-32 on quality of life, the IBD-Control on disease activity, and the IBD Disability Index Self-Report and its 8-item version on disability, have the strongest evidence of sufficient relevance, comprehensiveness, and comprehensibility, ranging from moderate to very low quality. A fair number of recurring items themes, possibly important for the selected constructs, was identified. Conclusions The body of evidence for content validity of IBD-specific health-related quality of life, self-report disease activity, and disability self-report measures is limited. More content validity studies should be performed after reaching consensus on the constructs of interest for IBD, and studies should involve patients.

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“…The psychometric properties of the UC-WDQ were evaluated. [ 12 ] The UC-WDQ's convergent validity was established by correlating its scores with disease activity (measured by the Mayo index and days of hospitalization) and QoL (measured by the IBDQ-9 and the EuroQol-5D). Discriminant validity was measured by comparing the UC-WDQ scores in patients with active vs inactive UC, hospitalized vs not hospitalized in the previous year, and patients who had needed sick leave vs those who had not, also in the previous year.…”

Section: Methodsmentioning

confidence: 99%

Validation of a self-reported work disability questionnaire for ulcerative colitis

et al. 2018

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Ulcerative colitis (UC) may severely limit patients’ capacity to work. Recently, we validated a work disability questionnaire (WDQ) for Crohn disease. As UC shares clinical characteristics with Crohn disease, we hypothesized that the questionnaire might also be useful for UC. The study was aimed to validate the WDQ for use in UC.Consecutive patients with UC (n = 142, 67 women; age 48 ± 1) completed the UC-WDQ and the inflammatory bowel disease questionnaire-9 (IBDQ-9), and EuroQoL-5D quality-of-life questionnaires. Validation of the UC-WDQ included an assessment of its construct validity, including: discriminant validity, convergent validity, and reproducibility (test–retest). We also calculated the intraclass correlation and the Cronbach alpha.Discriminant validity: Mean UC-WDQ scores were 12.8 ± 4.4 (remission phase) and 17.2 ± 6.1 (with clinical activity) (P < .05).Convergent validity: The correlations of UC-WDQ were r = 0.74 (P < .001) with IBDQ, r = 0.44 (P < .01) with disease activity, r = 0.56 (P < .01) with EuroQoL-5D, and r = 0.60 (P < .01) with the EuroQoL-5D visual scale.Reproducibility:Test–retest reproducibility: UC-WDQ scores obtained after a 2-week interval were similar (15.8 vs 15.1), (r = 0.91, P < .01).Intraclass correlation was 0.93 (95% confidence interval 0.92–0.95).Cronbach alpha was 0.94.The UC-WDQ is a valid and reliable tool for measuring work disability in patients with UC.

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Development and validation of the Crohnʼs disease perceived work disability questionnaire

Abstract: The CPWDQ seems to be a valid, reliable tool for measuring subjective work disability in CD.

Cited by 23 publications

References 38 publications

The Burden of Inflammatory Bowel Disease

The Burden of Inflammatory Bowel Disease

Systematic Review of Development and Content Validity of Patient-reported Outcome Measures in Inflammatory Bowel Disease: Do We Measure What We Measure?

Validation of a self-reported work disability questionnaire for ulcerative colitis

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