Development and validation of the Early Pediatric Groningen Defecation and Fecal Continence questionnaire

Verkuijl, Sanne J.; Trzpis, Monika; Broens, Paul M. A.

doi:10.1007/s00431-022-04714-2

Cited by 3 publications

(6 citation statements)

References 34 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The 49 articles identified a total of 29 PROMs. 66 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 93 94 95 96 97 98 99 100 101 102 103 104 105 The most frequently used PROM, applied predominantly in patients with esophageal atresia ( n = 11) or Hirschsprung's disease ( n = 8), was the Pediatric Quality-of-Life Inventory 4.0 generic core scales (PedsQL 4.0) 83 ( n = 31). Four common assessments for colorectal function, including (in)continence, in anorectal malformations and/or Hirschsprung's disease were the Rintala Bowel Function Scoring System 77 ( n = 9), Baylor Continence Scale (BCS) 78 ( n = 4), Cleveland Clinic Fecal Incontinence Severity Scoring System (or Wexner score) 81 82 ( n = 2), and the Krickenbeck criteria 102 ( n = 1).…”

Section: Resultsmentioning

confidence: 99%

A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the Field

Spivack,

Dellenmark-Blom,

Dingemann

et al. 2024

Eur J Pediatr Surg

View full text Add to dashboard Cite

Introduction Patient-reported outcome measures (PROMs) can be employed in both research and clinical care to enhance our understanding of outcomes that matter to patients. This narrative review aims to describe PROM use in recent pediatric surgical research, identify and describe psychometrically robust PROMs, providing an overview of those derived from pediatric patient input, and make recommendations for future research. Materials and Methods A search was conducted to identify articles published from 2021 to August 2023 describing the availability and/or use of at least one valid or reliable PROM in children with conditions including anorectal malformations, biliary atresia, congenital diaphragmatic hernia, duodenal atresia, esophageal atresia, abdominal wall defects, Hirschsprung's disease, sacrococcygeal teratoma, and short bowel syndrome. Articles were categorized based on their objectives in applying PROMs. Psychometrically robust PROMs were identified and described. Results Out of the 345 articles identified, 49 met the inclusion criteria. Seventeen focused on esophageal atresia and 14 on Hirschsprung's disease. Twenty-nine PROMs were identified, with 12 deemed psychometrically robust. Seven psychometrically robust PROMs were developed using patient input in the primary item generation. Most PROMs were applied to advance understanding of conditions and/or treatment and fewer were developed or psychometrically evaluated. No PROMs were assessed for their impact or incorporated into an implementation study. Conclusions This review reveals gaps in the application of PROMs in recent pediatric surgical research. Emphasis should be placed on the development and utilization of psychometrically robust PROMs, broadening the scope of covered diseases, conducting impact assessments, and evaluating implementation strategies.

show abstract

Section: Resultsmentioning

confidence: 99%

A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the Field

Spivack,

Dellenmark-Blom,

Dingemann

et al. 2024

Eur J Pediatr Surg

View full text Add to dashboard Cite

show abstract

“…We recommend annual assessment of voiding pattern using a detailed voiding history to identify symptoms of bladder dysfunction, such as the questionnaire developed by the Children's National Medical Center, offered by the National Kidney Foundation (https://www.kidney.org/sites/default/files/docs/voidhist.pdf). If the questionnaire suggests voiding dysfunction or if daytime continence is not achieved by age 5 years—the age of continence in typical children according to Verkuijl et al (2023), referral to a pediatric urologist is advised. In cases where clinical assessment is insufficient to determine the cause of voiding dysfunction, urodynamic studies should be considered.…”

Section: Discussionmentioning

confidence: 99%

Substantial incidence of bladder dysfunction in patients with VACTERL association: Implications for surveillance

Gomes,

Zapata,

Galarreta

et al. 2023

American J of Med Genetics Pt A

View full text Add to dashboard Cite

VACTERL association is defined as the nonrandom co‐occurrence of a minimum of three of the following six key components: Vertebral anomalies, Anal atresia, Cardiac malformations, Tracheo‐Esophageal fistula, Renal anomalies, and Limb abnormalities. Patients presenting with two components may also belong in the same spectrum. Additional components have been associated with VACTERL defects, including single umbilical artery, tethered spinal cord (TSC), and genital malformations. We observed a significant proportion of patients with bladder dysfunction (often called neurogenic bladder in the medical record) when reviewing a cohort of patients with VACTERL defects at our clinical center. Our finding calls attention to bladder dysfunction as an additional VACTERL phenotypic component. The prevalence of bladder dysfunction is greatest in those with genital anomalies, anorectal malformations, sacral dysplasia, renal anomalies, and TSC. We propose that patients with two or more VACTERL malformations be monitored for symptoms of bladder dysfunction if one or more of the identified risk factors are present until the achievement of urinary continence.

show abstract

“…We performed this cross-sectional study between April 2021 and August 2021. Parents/caregivers (hereafter referred to as parents) of children aged 1 month to 7 years were invited to complete the validated Early Pediatric Groningen Defecation and Fecal Continence (EP-DeFeC) questionnaire ( 13 ). The EP-DeFeC contains validated scoring systems and criteria regarding bowel and urinary functioning, but also questions regarding demographic characteristics, therapies, and the parents’ classification of their child’s bowel health ( 13 ).…”

Section: Methodsmentioning

confidence: 99%

“…Additionally, we examined the prevalence and severity of constipation, fecal incontinence, and urinary incontinence. To define these conditions, we used the validated scoring systems and criteria that are incorporated in the EP-DeFeC questionnaire ( 13 ).…”

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

The Prevalence of Bowel and Bladder Function During Early Childhood: A Population-Based Study

Verkuijl

Trzpis

Broens

2023

Journal of Pediatric Gastroenterology &Amp; Nutrition

Self Cite

View full text Add to dashboard Cite

Objectives: Our primary aim was to determine bowel and bladder function in children aged 1 month to 7 years in the general Dutch population. Second, we aimed to identify demographic factors associated with the presence of bowel and bladder dysfunction, and their coexistence. Methods: For this cross-sectional, population-based study, parents/caregivers of children aged from 1 month to 7 years were asked to complete the Early Pediatric Groningen Defecation and Fecal Continence questionnaire. Different parameters of bowel and bladder function were assessed using validated scoring systems such as the Rome IV criteria. Results:The mean age of the study population (N = 791) was 3.9 ± 2.2 years. The mean age at which parents/caregivers considered their child fully toilet-trained was 5.1 ± 1.5 years. Prevalence of fecal incontinence among toilet-trained children was 12%. Overall prevalence of constipation was 14%, with a constant probability and severity at all ages. We found significant associations between fecal incontinence and constipation [odds ratio (OR) = 3.88, 95% CI: 2.06-7.30], fecal incontinence and urinary inconti-nence (OR = 5.26, 95% CI: 2.78-9.98), and constipation and urinary incontinence (OR = 2.06, 95% CI: 1.24-3.42). Conclusions: Even though most children are fully toilet-trained at 5 years, fecal incontinence is common. Constipation appears to be common in infants, toddlers, and older children. Fecal incontinence and constipation frequently coexist and are often accompanied by urinary incontinence. Increased awareness of bowel and bladder dysfunction in infants, toddlers, and young children is required to prevent these problems from continuing at older ages.

show abstract

Development and validation of the Early Pediatric Groningen Defecation and Fecal Continence questionnaire

Cited by 3 publications

References 34 publications

A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the Field

A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the Field

Substantial incidence of bladder dysfunction in patients with VACTERL association: Implications for surveillance

The Prevalence of Bowel and Bladder Function During Early Childhood: A Population-Based Study

Contact Info

Product

Resources

About