Development and validation of a questionnaire to measure the service needs of families with children with developmental disabilities

Assessing the needs of caregivers of children with disabilities in Penang, Malaysia

“…The needs of families living with a child with disability are a reflection of the services which caregivers perceive to be important but are lacking to help their family function better and to improve their quality of life. These include need for practical or material help, need for information, need for respite care and need for emotional support (Bailey Jr & Simeonsson 1988, Douma et al 2006, Schmidt et al 2007, Park et al 2009, Leung et al 2010, Kertoy et al 2012.…”

The needs of parents of children with visual impairment studying in mainstream schools in Hong Kong

“…Anonymous raw data of parents of children attending mainstream primary schools (n=233) collected in Leung et al's study for the development of SNQ was accessed and analysed. 2 Three primary schools, one each from the territory's administrative regions, were requested to randomly select 135 students to participate using a random number generator. The schools distributed the questionnaires to parents; 246 parents returned the questionnaires in sealed envelopes (response rate 60.7%) and 233 provided complete data.…”

“…Among the 233 participants from the primary school group, 33 with reported behavioural/ learning difficulties were excluded, and 200 were included in the comparison (normal group). Since SNQ was jointly developed by CAS and Leung et al, 2 the research data were archived and shared between the two parties. Upon an agreement between CAS and Leung et al, 2 the research data were retrieved and analysed by authors.…”

“…Since SNQ was jointly developed by CAS and Leung et al, 2 the research data were archived and shared between the two parties. Upon an agreement between CAS and Leung et al, 2 the research data were retrieved and analysed by authors. Legitimacy of such arrangement was documented in the research protocol written for SNQ project.…”

“…More study on the various modes of accommodation for children with visual impairment and more collaborative work among different partners working in the field of rehabilitation will foster better service for these children and their families. 2 Although many studies have investigated service needs of disabled children, [3][4][5] few have attempted to investigate service needs of children with visual impairment (VI) and their families. The parents' perceived needs based on ethnicity, and the degree of vision loss in toddlers from Latino and Anglo backgrounds were reported based on qualitative description.…”